🏴󠁧󠁢󠁷󠁬󠁳󠁿#Diagnosis #dementia yn #Cymru?🏴󠁧󠁢󠁷󠁬󠁳󠁿 Hoffem glywed gennych: bit.ly/3wAkQvb Rhannwch eich profiadau, beth sy'n gweithio, beth sydd angen ei wella, i wneud gwahaniaeth i eraill yn y dyfodol #DementiaActionWeek #DAW2022 Alzheimer's Society Cymru (ASC) Older People’s Commissioner for Wales CADR

🏴󠁧󠁢󠁷󠁬󠁳󠁿#Diagnosis of #dementia in #Wales?🏴󠁧󠁢󠁷󠁬󠁳󠁿 • We want to hear from you: bit.ly/3FWEaXQ • Share your experiences - what works, what needs improving - to make a difference to others in the future #DementiaActionWeek #DAW2022 Alzheimer's Society Cymru (ASC) Older People’s Commissioner for Wales CADR

As the theme of Dementia Awareness Week this year is diagnosis, we wanted to share this young onset #dementia diagnosis related fact with you. Let us know how long it took to get your diagnosis, or that of your family member.

🔊Actor, director & Headliner #HarrietWalter with a wonderful reading from RareDementiaSupport's new poetry book #ThereIsSoMuchICouldSay - all created by members of the Rare Dementia Support Impact Study Available ➡️ nationalbrainappeal.org/shop #DementiaActionWeek2022 #DAW2022

#diagnosis #dementia #Cymru #Wales? We want to hear from you: bit.ly/3FWEaXQ Share your experiences to make a difference to others in the future. Thank you • Hoffem glywed gennych: bit.ly/3wAkQvb Rhannwch eich profiadau i helpu eraill yn y dyfodol. Diolch

Josh Stott form ADAPT Lab will be talking at the #FTD RareDementiaSupport meeting about our "Better Living with bvFTD". This is a 6 module training course #Coproduced with families of people with #bvFTD. @RDSCanada International Society for Frontotemporal Dementias Rare Dementia Support Impact Study FTD News The AFTD

Check out our latest #protocolpaper led by Claire Waddington + published in Journal of Medical Internet Research this week 🤩 outlining #codesign, delivery + how we are evaluating the impact of videoconference-based RareDementiaSupport Support group discussions JMIR Publications DRC@UCL UCL Early Career Researchers

Our Rare Dementia Support Impact Study clinical trial protocol is live. We are testing a blended (online+human) programme to support families of people living with: 🔸Posterior Cortical Atrophy 🔸Primary Progressive Aphasia 🔸behaviour variant FTD. Learn more about it 👇 clinicaltrials.gov/ct2/show/NCT05…

An example of the research we are translating into practice within Rare Dementia Support Canada. To register for support service please see link ⬇️ 1/2

Research poetry from the RareDementiaSupport Support Impact study - link below to hear ‘A Glass Half Full’ read by poet Lawrence Wilson

More poetry from Rare Dementia Support Impact Study

Delighted to announce the launch of ‘Dementia and Hope’ from Innovations in Dementia for #onedementiavoice - a free resource setting out the collective vision of a group of dementia orgs inc. RDS ✨ featuring contributions from DRC@UCL’s Prof Seb Crutch + Millie van der Byl Williams + Trish O’Hara

The boss of the food chain Iceland will climb Everest to raise money for a new treatment centre for people suffering from rare early-onset dementia thetimes.co.uk/article/icelan…

Thank you Richard Walker Kenton Cool and Bear Grylls OBE for everything you are doing to inspire and promote this incredible journey towards the summit of Everest and the world’s 1st RareDementiaSupport Support Centre

We co-produced an online 💻educational programme for supporters of people living with: - #PCA - #bvFTD - #PPA Come check the results of our feasibility trial! 👉 Online Poster 75329 👈 #AAIC23 RareDementiaSupport Amber John @PaulCamic Mary Patricia Sullivan Zoë Hoare Dr Emilie Brotherhood

Feasibility results from our Rare Dementia Support Impact Study - the online 💻 Better Living trial 💻 led by Dr Aida Suarez-Gonzalez and developed with supporters of people living with #PPA #PCA and #FTD 👇

How rare is #raredementia? Check out our Rare Dementia Support Impact Study rapid review led and presented by Ollie Hayes at #AAIC23 @ P1-796 👇👇 • Co-authors Céline El Baou Keir Yong @PaulCamic & Prof. Seb Crutch

What can we learn from language use in rare dementia caregivers support groups? Come and find out at P2-606! #AAIC2023 Rare Dementia Support Impact Study RareDementiaSupport Oliver Hayes, Dr Emilie Brotherhood CJ Hardy Emma Harding and Seb Crutch

Our Impact researchers Sam Rossi-Harries & Emma Harding present Talking Lines - portraying RareDementiaSupport experiences through a single line 📈📉🖋️✏️ • 33rd Alzheimer’s Europe Conference, Helsinki #33AEC Charles R Harrison @PaulCamic Mary Patricia Sullivan Adetola Georgina Grillo