Rare Patient Voice (@rarepatientvoic) 's Twitter Profile
Rare Patient Voice

@rarepatientvoic

We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.

ID: 2189258191

linkhttps://www.rarepatientvoice.com/ calendar_today12-11-2013 00:06:40

1,1K Tweet

1,1K Takipçi

3,3K Takip Edilen

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

#ClinicalTrials are a vital step in the development of new treatments to improve lives. With our community of 145,000+ patients & family caregivers across 1,500+ rare & non-rare diseases, RPV can help with your clinical trial recruitment needs. rarepatientvoice.com/clinical-trial…

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

We'll be exploring beautiful Athens next month! For the first time, RPV will exhibit at the ESOMAR Congress, Sept 8-11 in Athens, Greece, where we will dive into new ideas & innovative approaches in the world of insights. esomar-congress.com #insights #MRX #international

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Tyesha is our latest #WeeklyWarrior. "I have Spinal Muscular Atrophy Type 3. I was diagnosed at 28 years old after having some weakness. I could no longer walk without assistance so I got a rollator walker at the age of 41. I am on a gene therapy medicine called Eversdi."

Tyesha is our latest #WeeklyWarrior. 
"I have Spinal Muscular Atrophy Type 3. I was diagnosed at 28 years old after having some weakness. I could no longer walk without assistance so I got a rollator walker at the age of 41. I am on a gene therapy medicine called Eversdi."
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

For the first time, Rare Patient Voice will be exhibiting at the ESOMAR Congress, where we will dive into new ideas and innovative approaches in the world of insights. For more on the event: esomar-congress.com #insights #marketing #international

For the first time, <a href="/rarepatientvoic/">Rare Patient Voice</a> will be exhibiting at the ESOMAR Congress, where we will dive into new ideas and innovative approaches in the world of insights. For more on the event: esomar-congress.com
#insights #marketing #international
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Spoon Full of Strength is a new podcast on all things chronic illness. In this episode, Pam Cusick speaks with hosts Rachel & Tina about how RPV gives patients & family caregivers the chance to share their voices by participating in research. Listen: podcasts.apple.com/de/podcast/rar…

Spoon Full of Strength is a new podcast on all things chronic illness. In this episode, Pam Cusick speaks with hosts Rachel &amp; Tina about how RPV gives patients &amp; family caregivers the chance to share their voices by participating in research. Listen:
podcasts.apple.com/de/podcast/rar…
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Meet Our Team! Ginger Segala has been a valued member of our Business Development Team since 2021. rarepatientvoice.com/meet-our-team-… #TeamWork #sales#PatientRecruitment

Meet Our Team! Ginger Segala has been a valued member of our Business Development Team since 2021.
rarepatientvoice.com/meet-our-team-…
#TeamWork #sales#PatientRecruitment
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Our latest #WeeklyWarrior is Keyla, a 38 year-old living with Crohn's disease & other chronic conditions & care partner to a 13 year-old with ulcerative colitis. Read her story here: rarepatientvoice.com/weekly-warrior… #Crohns #ChronicIllness #PatientStory

Our latest #WeeklyWarrior is Keyla, a 38 year-old living with Crohn's disease &amp; other chronic conditions &amp; care partner to a 13 year-old with ulcerative colitis. Read her story here: rarepatientvoice.com/weekly-warrior…
#Crohns #ChronicIllness #PatientStory
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

ICYMI: Wes Michael was a guest on the Run Radio Podcast earlier this month, discussing how RPV empowers patients & family caregivers to share their voices with researchers & companies to develop products, devices, & treatments to improve lives. youtube.com/watch?v=hNYAGq…

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Thank you for working hard, all year around! A very happy #LaborDay2024 weekend to you and yours, from all of us at Rare Patient Voice! #holiday #rest #BBQ

Thank you for working hard, all year around! A very happy #LaborDay2024 weekend to you and yours, from all of us at Rare Patient Voice!
#holiday #rest #BBQ
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Patients play a critical role in clinical trials. Learn how Rare Patient Voice can connect you with the patients and/or family caregivers you need for your next study. #ClinicalResearch #ClinicalTrials#PatientRecruitment rarepatientvoice.com/clinical-trial…

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

The Special Needs Voice podcast features interviews with leaders in the special needs community. Pam Cusick recently provided an overview of RPV, discussed visible & invisible disabilities, & explained the importance of accessibility for everyone. Listen: spotifyanchor-web.app.link/e/186ztOsvuMb

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Attending the ESOMAR Congress in Athens? Be sure to visit the Rare Patient Voice booth, #2, & learn how RPV can connect you with patients for all types of research studies around the world! #MRX #conference #PatientRecruitment

Attending the <a href="/ESOMAR/">ESOMAR</a> Congress in Athens? Be sure to visit the Rare Patient Voice booth, #2, &amp; learn how RPV can connect you with patients for all types of research studies around the world!
#MRX #conference #PatientRecruitment
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

The 2024 ESOMAR Congress has begun in Athens! Here are RPV’s Pam Cusick & Tiffany White visiting with marketing wiz Norbert Sari in the Rare Patient Voice booth today. #MRX #insights #PatientRecruitment

The 2024 <a href="/ESOMAR/">ESOMAR</a> Congress has begun in Athens! Here are RPV’s Pam Cusick &amp; Tiffany White visiting with marketing wiz Norbert Sari in the <a href="/rarepatientvoic/">Rare Patient Voice</a> booth today.
#MRX #insights #PatientRecruitment
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

“The Pickle Jar Podcast" host Jill Battle’s mission is to help empower people living with Addison's disease & other invisible illnesses to live their best lives. On this episode, RPV's Pam Cusick discusses the need for patients to be heard. Listen here: youtube.com/watch?v=3hV9WX…

“The Pickle Jar Podcast" host Jill Battle’s mission is to help empower people living with Addison's disease &amp; other invisible illnesses to live their best lives. On this episode, RPV's Pam Cusick discusses the need for patients to be heard. Listen here:
youtube.com/watch?v=3hV9WX…
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Day 2 of the @Intellus Worldwide Fall Institute in New Brunswick, NJ is in full swing, & RPV's Wes Michael & Ben Shedlock are on the scene! #MRX #HealthcareMarketing #IntellusInstitute

Day 2 of the @Intellus Worldwide Fall Institute in New Brunswick, NJ is in full swing, &amp; RPV's Wes Michael &amp; Ben Shedlock are on the scene!
#MRX #HealthcareMarketing #IntellusInstitute
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Last night at the Intellus Fall Institute, RPV's Wes Michael received an Intellus Impact Award for Advocacy, recognizing his contributions in empowering patients & family caregivers to share their voices through research participation. Read more: intellus.org/Portals/0/awar…

Last night at the <a href="/IntellusWW/">Intellus</a> Fall Institute, RPV's Wes Michael received an Intellus Impact Award for Advocacy, recognizing his contributions in empowering patients &amp; family caregivers to share their voices through research participation. Read more:
intellus.org/Portals/0/awar…
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Rare Patient Voice has surpassed a major milestone! More on this achievement:  rarepatientvoice.com/rare-patient-v… #MRX #PatientRecruitment #ClinicalTrials

<a href="/rarepatientvoic/">Rare Patient Voice</a> has surpassed a major milestone! More on this achievement: 
rarepatientvoice.com/rare-patient-v…

#MRX #PatientRecruitment #ClinicalTrials
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

RPV's Wes Michael is on the scene at the 2024 DPHARM conference in Philly! This morning's keynotes included a stirring speech from legendary Captain Sully Sullenberger, pictured here. More: linkedin.com/posts/rare-pat…

Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Meet our team! Skyler Swagart joined Rare Patient Voice in 2021 & is now a Patient Advocacy Associate. Read more: rarepatientvoice.com/meet-our-team-… #MRX #team #PatientAdvocacy

Meet our team! Skyler Swagart joined <a href="/rarepatientvoic/">Rare Patient Voice</a> in 2021 &amp; is now a Patient Advocacy Associate. Read more: rarepatientvoice.com/meet-our-team-…
#MRX #team #PatientAdvocacy
Rare Patient Voice (@rarepatientvoic) 's Twitter Profile Photo

Our latest #WeeklyWarrior is Amy, a passionate patient advocate, public speaker, program developer, & educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Read more of Amy's story here: rarepatientvoice.com/weekly-warrior… #scleroderma #PatientAdvocate#PatientStory

Our latest #WeeklyWarrior is Amy, a passionate patient advocate, public speaker, program developer, &amp; educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Read more of Amy's story here:
rarepatientvoice.com/weekly-warrior…
#scleroderma #PatientAdvocate#PatientStory