Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile
Dr. Rachele Hendricks-Sturrup

@rachelehsturrup

Scientist. Researcher. Journalist.

ID: 943221084056322048

calendar_today19-12-2017 20:46:45

88 Tweet

170 Takipçi

208 Takip Edilen

Dr. Gabriela Zanfir-Fortuna (@gabrielazanfir) 's Twitter Profile Photo

And since you are all here, my brilliant colleagues from Future of Privacy Forum are organizing this training on understanding the data flows and some technical aspects of data governance of AI, on May 20: eventbrite.com/e/understandin…

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A1 Acceptance of the importance of #diversity is key to ensure that community voices are heard. Researchers and data experts should feel comfortable reaching out to diverse communities as collaborators and persons with lived experience, not as mere research subjects. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A2 Blending #privacy into the #design process is the art of #privacybydesign. Blending other aspects into the design process, like #ethics, #security, and #accessibility, is the art of #humancentereddesign. Both arts are equally important. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A3 Awareness around key issues is paramount to any engagement initiative at every level. For purposes of #accessibility is important to meet people where they are to effectively serve and engage them as stakeholders. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A4 #Data misuse was an issue that predated COVID-19 and is an issue that continues today. Knowing what tools are at your disposal to protect yourself and your work or business from #data misuse is the first step in the right direction. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A5 Any inferential dataset, when applied broadly, has the potential to perpetuate conscious or unconscious #bias. Dangers might include improper diagnosis or even inaccurate profiling of an individual, which might create harmful consequences for persons & populations. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

A6 Most things in life are not one-size-fits-all and technology is no exception, as we see especially during COVID-19. Developers should get feedback from #diverse users to improve the #accessibility of tech and address the #digitaldivide through smart design. #AXSChat

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

The #callforproposals for the 2021 virtual #AllInData4Health National Meeting is now live! Looking forward to diving into community work around racial equity, navigating the spectrum of community engagement, & advancing policy change. Submit by June 11: bit.ly/3vYufe8

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

Responsible data sharing requires that we hear from community service providers. Take the All In National Inventory of Data Sharing Collaborations Survey today! #communitydata #communityhealth #healthequity #health #HealthForAll #data tinyurl.com/DASHinventory2…

Health Affairs (@health_affairs) 's Twitter Profile Photo

In their new Forefront article, Caleigh Propes (she/her), Trevan Locke + Dr. Rachele Hendricks-Sturrup from Duke-Margolis discuss how a point-of-care trial is an operational approach to conducting clinical trials that integrates clinical research and routine care delivery. bit.ly/3cfbBdN

JPCRR (@jpcrr) 's Twitter Profile Photo

This is so important. See also this recent article in JPCRR exploring how patient perspectives are critical to optimizing care following FH test results: institutionalrepository.aah.org/jpcrr/vol8/iss… Harvard Medical School Dr. Rachele Hendricks-Sturrup @TheFHFoundation National Lipid Association #FHAwarenessDay #PROs #KnowFH

Dr. Rachele Hendricks-Sturrup (@rachelehsturrup) 's Twitter Profile Photo

Happy to share some of my latest work entitled "A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers," published today in the Journal of Personalized Medicine. lnkd.in/ewkAuGeW #realworlddata #privacy

Division of Health Policy and Insurance Research (@healthpolicydpm) 's Twitter Profile Photo

Happy #ResearchWednesday! Check out an article by #HPI's #FangZhang and Christine Lu that assesses how privacy-related experiences may shape participants' willingness to share data with researchers. Read it here: mdpi.com/2075-4426/12/1…

Happy #ResearchWednesday! Check out an article by #HPI's #FangZhang and <a href="/ChrisLuPhD/">Christine Lu</a> that assesses how privacy-related experiences may shape participants' willingness to share data with researchers. Read it here: mdpi.com/2075-4426/12/1…
GA4GH (@ga4gh) 's Twitter Profile Photo

The #GA4GH Equity, Diversity, and Inclusion (EDI) Advisory Group has published a paper in Cell Genomics! 🤩Read now: doi.org/10.1016/j.xgen…

ELSIhub | CERA (@elsihub) 's Twitter Profile Photo

This roundtable, moderated by Malaika Simmons, featuring Dr. Rachele Hendricks-Sturrup, Gabriella Waters, Dr. Laurie Novak, Martin Were and Sajid Hussain, explores several ways to enhance ethics and equity in #AI/ML, including the study of workflow impacts. Read here: ow.ly/kk3O50Q4Fwo

ELSIhub | CERA (@elsihub) 's Twitter Profile Photo

Join Session Two of our ELSIconversations series with Duke-Margolis on 4/5 at 12pm ET discussing pharmacogenomic testing in psychiatric care. Join the conversation with: Deepak Voora, MD, Robert Schuck, PhD, Gary Proctor, MD and Dr. Rachele Hendricks-Sturrup. Register: ow.ly/7zTc50QXfaX

Join Session Two of our ELSIconversations series with <a href="/DukeMargolis/">Duke-Margolis</a> on 4/5 at 12pm ET discussing pharmacogenomic testing in psychiatric care. Join the conversation with: Deepak Voora, MD, Robert Schuck, PhD, Gary Proctor, MD and <a href="/rachelehsturrup/">Dr. Rachele Hendricks-Sturrup</a>. Register: ow.ly/7zTc50QXfaX