Congratulations go to Craig for completing his first ever London Marathon! Here he is sporting his medal after completing the course in 3 hours 58 secs. Craig has absolutely smashed his fundraising target and has raised £1020.75 which will go towards supporting our families.

It's our 9th anniversary as Phelan-McDermid Syndrome Foundation UK! We have grown to just over 300 families and have become a supportive inclusive community. Thank you so much for your support by raising awareness, fundraising and being there for our families. #PMSFUK rocks!!!

Our #PMSFUK 2022 Outstanding Contribution Awards have just started arriving in the post! Up first it's Andy Cothliff from ABC Design. Andy is a graphic designer and has created lots of designs over the years for #PMSFUK. Congratulations Andy! #supportingpmsfuk

Up next it's Matthew receiving one of our Outstanding Contribution Awards. Matthew completed a 100 mile bike ride starting at London Victoria Embankment going via the glorious Essex countryside and then on to the finishing line at London Tower Bridge. Congratulations Matthew!

Up next it's Nicola, Ian and Jane and everyone at Ikon Design in Yorkshire receiving their PMSF UK Outstanding Contribution Awards. To read more please follow this link: tinyurl.com/3h4f2m3h #supportingpmsfuk #makingadifference #outstandingcontribution2022 #PMSF

The Bliss Phamily are fundraising for #PMSFUK! The family have decided to walk, cycle or wheel 22km by 22nd October 2023 to raise awareness and to coincide with International #PhelanMcDermidSyndrome Awareness Day. #supportingpmsfuk #raisingawarenesstogether #PMSAD

Having taken on the Royal Parks Half Marathon last year, whilst raising money for PMSF UK, Rebecca will be hoping to complete the course again! Please help and donate via Rebecca's Just Giving page. tinyurl.com/mtasnaky Thank you for supporting us! #PMSFUK #royalparkshalf

A huge thank you goes to our Royal Parks Half Marathon runners who have been raising awareness and funds for PMSF UK! Helen, Jamima, Karolina, Kellie, Rebecca and Tim all completed the half marathon today! Congratulations! #PMSFUK #phelanmcdermidsyndrome #supportpmsfuk

We hope that as we celebrate Phelan-McDermid Syndrome Awareness Day today, Sunday, 22nd October, that you’ve been able to #shinegreen in some way to mark this special day in the calendar. #PMSAD #PMSFUK #phelanmcdermidsyndrome #raredisease #pmschangeseverything

What will this year's seasonal card and sweatshirt design look like? Watch this space! All will be revealed tomorrow! #PMSFUK #seasonalmerchandise #supportpmsfuk #holidaysarecoming #raisingawarenesstogether

And the wait is finally over ........ we are pleased to share with you this year's Seasonal Card design. The cards are now available to purchase via our online shop. pmsf.org.uk/shop They are available in packs of 10, complete with envelopes, priced at just £5. #PMSFUK

And now, the design you've all been waiting for ...... we are pleased to share with you this year's Seasonal Sweatshirt design. The sweatshirts are now available to purchase via our online shop. pmsf.org.uk/shop Orders are now being taken on a pre-order payment basis.

Here's the Kay family getting ready for their Halloween celebrations! Charlie and his younger brother Jude have really enjoyed decorating their pumpkins to show their support for #PMSFUK, whilst raising awareness too. What a fabulous idea! #decoratingpumpkins

Would you like to order some of our #PMSFUK seasonal cards or seasonal sweatshirts, but don't have a PayPal account? Please email [email protected] or send a messenger request, to enquire about alternative payment options. #supportpmsfuk #pmsfukseasonalsweatshirts

We have now sold over a quarter of the stock of our seasonal cards! They are available in packs of 10, complete with envelopes, priced at just £5, via our online shop. pmsf.org.uk/shop Many thanks for continuing to support #PMSFUK! #seasonalcards #supportpmsfuk

Just a gentle reminder that our Seasonal Sweatshirts are available to pre-order via our website. pmsf.org.uk/shop They are only available as a pre-order and the deadine is Monday, 13th November. With only one more weekend to go, don't miss out, order yours today!

** Calling all last pre-orders for our Seasonal Sweatshirts ** Don't forget to order your PMSF UK Seasonal Sweatshirt. We can only accept pre-orders up until tomorrow, Monday, 13th November at 10pm. Don't miss out! Visit our website. pmsf.org.uk/shop #supportpmsfuk

A big thank you to everyone who placed a pre-order for our PMSF UK Seasonal Sweatshirts. We are pleased to confirm our bulk order is due to be delivered tomorrow, Friday 1st Dec. All orders will be packed over the weekend and you will start to receive them early next week.

Which of our Seasonal tops will you be wearing today on Christmas Jumper day? #PMSFUK #phelanmcdermidsyndrome #pmsfukseasonalsweatshirts #supportpmsfuk

A big thank you to everyone who placed a pre-order for our PMSF UK Seasonal Sweatshirts. If you didn't get chance to order we now have a few limited sizes in stock. Please visit our online shop to see if we have your size! pmsf.org.uk/shop Thank you for supporting us!