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𝟭𝟳 𝗡𝗼𝘃𝗲𝗺𝗯𝗲𝗿 𝗶𝘀 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝗲𝗺𝗮𝘁𝘂𝗿𝗶𝘁𝘆 𝗗𝗮𝘆 💜 More than 13 million babies born preterm worldwide each year. Join us and support this year’s #WorldPrematurityDay2023

⭐Children's Mental Health Awareness Week⭐ 'My Voice Matters' NEC UK are committed to empowering children and young people to express their feelings. As parents and carers, there are many ways we can support our children to give them the best chance to stay mentally healthy.

💔 listening2Martha’s mum like many families feel their concerns weren’t listened or acting on.Martha’s Rule allows families to request an urgent critical care review for their child.After the death of Martha Mills from sepsis despite pleas for help from her parents #marthasrule

We are delighted to share that we have received #NationalLottery funding from The National Lottery Community Fund for our project! Thank you to National Lottery players for helping us make our family day happen 💙💚 #MakeAmazingHappen.

Announcement Legoland and Chester Zoo Applications Now Open wix.to/ohYOFtU Thank you to The National Lottery for funding our family days💙💚 Thank you National Lottery players for helping us make our family day happen #MakeAmazingHappen #NationalLottery The National Lottery Community Fund

Join the NEC UK Team as we recognize NEC Awareness Day by fundraising and raising awareness of Necrotising Enterocolitis throughout the Month of May. Our JustGiving Campaign in NOW LIVE justgiving.com/campaign/necuk…

ERNICA Annual Meeting. It’s a pleasure and a privilege to join so many incredible professionals and patient family advocates all working to combat rare neonatal and congenital diseases. #PatientsFirst #PreventNEC ERNICA Maz spruce

Legoland Windsor on the 18th MAY Application Closes at MIDNIGHT! wix.to/A5Op3Tf

NEC AWARENESS DAY 2024 ONE DAY TO GO!!! May 17th Is NEC Awareness Day! Help us to raise much needed awareness of this devastating condition. Here’s how you can get involved: wix.to/ieZdWUO

What batter day to share this incredible research project than international NEC awareness Day. It was a pleasure and privilege to work with Daphne Klerk and the whole team to complete the core outcome set for NEC helping to drive research is so important for our families.

⭐️ HELP NEEDED ⭐️ Feeling Overwhelmed we are run completely by volunteers and we only have a few. We have jobs and children (some with complex medical needs). If we aren’t able to get some more help the charity can’t function. Could u help? necuk.org.uk/volunteer-oppo…

Really pleased to see our SR (rdcu.be/dKmFN) on identification of surgical NEC now in Pediatric Research. 63 methods available but many require external validation to determine which is most effective. National Institute for Health and Care Research NEC_UK Cheryl Battersby Marian Knight MBE Nigel Hall

📣 have you had a child for in neonatal intensive care? Dr Victoria Adkins and I are hoping to hear about your experiences and your views on artificial placentas. You can take part in our Future of Human Reproduction funded study by completing this survey: surveymonkey.com/r/TT6V3PB

Thanks as always to the families involved in this work, the funders (Wellcome and The Lister Institute of Preventive Medicine), and the local (Tiny Lives Trust) and national (NEC_UK) charities for all they do for preterm infants at risk of NEC.

A big shout out to our families #firstdayofschool. Those who’s babies are no longer physically with them, those with complex needs, those who are terrified to let their precious miracles go. We know how you feel!Be kind to yourself You’ve got this! #allcareisbraincare #PreventNEC

We are sending our NEC bundles to NICU'S across the UK for World Prematurity Day November 17th 💜 ​Please order here by 7th October for them to arrive in time. necuk.org.uk/necukbundle Bundle Incudes: 6-Care Packs 6- Hygiene Bags 1 Ardo Breast Pump 1- Hospital Pack

Special Announcement 💙💚 November 17th Chester Zoo & Lanterns and Lights Experience wix.to/6j9DMYn

Start of our research meeting looking at this vital topic of ‘transition and adult care’. Transition can be particularly difficult if you have a rare disease especially one like NEC that is considered as a ‘neonatal disease’ yet we know for many has lifelong complications.