MND Register (@mndregister) 's Twitter Profile
MND Register

@mndregister

MND Register for England, Wales & Northern Ireland #MND #ALS

ID: 1069973502768410625

linkhttps://mndregister.ac.uk calendar_today04-12-2018 15:15:36

296 Tweet

406 Takipçi

352 Takip Edilen

Ammar Al-Chalabi (@ammaralchalabi) 's Twitter Profile Photo

We're hiring! Are you interested in a PhD in #ALS #MND data science? Alfredo Iacoangeli and I have a funded project waiting for the right person! Modelling virtual populations to make our clinical trials faster, better and more patient-friendly Details: preview-kcl.cloud.contensis.com/nmes/assets/pr…

Oxford MND Research (@mndoxford) 's Twitter Profile Photo

Nuffield Department of Clinical Neurosciences and Sheffield CTRU are building The EXPErimental medicine Route To Success in ALS: experts-als.uk We will use human biomarkers to more rapidly screen and prioritise drugs for clinical trials #EXPERTS #ALS #MND UK MND Research Institute

UK MND Research Institute (@ukmndri) 's Twitter Profile Photo

🔬 Learn more about the new UKMNDRI from our co-directors @ProfAmmarAlChalabi and Chris McDermott. 🎥Watch our new film here: bit.ly/3uETarP Read more about the Institute: ukmndri.org #UKMNDRI #United2EndMND #MND

MND Scotland (@mndscotland) 's Twitter Profile Photo

Motor neuron disease does not discriminate. This devastating disease can affect you regardless of your age, gender or social background. There is no cure or meaningful treatments. Find out more and help us make time count for people affected by #MND: mndscotland.org.uk/campaigns/mnd-…

David Setters (@dsetters) 's Twitter Profile Photo

So good to see Lesley Mates, Ash Willmott & @Willmott84 interviewed at Brighton #extramile on BBC Breakfast this morning. Sorry didn't get to see you, Ash. Huge thanks to Claire Ryan & all the team at BBC Breakfast for excellent coverage of #7in7in7 #United2EndMND

Heather Marriott (@hevmarriott) 's Twitter Profile Photo

It was a lovely (and very nerve-racking) time to be one of the guest speakers of this podcast! All the ECR guests were so welcoming and it was a great discussion of our highlights of the #alsmndsymp . Also my first podcast so apologies if nerves got in the way of the discussion!

Alfredo Iacoangeli (@alfredoiacoange) 's Twitter Profile Photo

Many congrats to Heather Marriott in our latest work actaneurocomms.biomedcentral.com/articles/10.11… we derive a robust model to identify ALS molecular subtypes using gene expression, setting potential basis for a personalised approach to ALS research Ammar Al-Chalabi King's MND Centre PHIDL EPSRC DRIVE-Health CDT in Data-Driven Health

Ammar Al-Chalabi (@ammaralchalabi) 's Twitter Profile Photo

The UK MND Research Institute UK MND Research Institute has three goals in its mission to accelerate the search for a cure for #ALS #MND - understand ALS, develop new treatments, test those treatments. Thanks to Daily Express and Sunday Express for campaigning with us express.co.uk/life-style/hea…

Ammar Al-Chalabi (@ammaralchalabi) 's Twitter Profile Photo

50% of people with #ALS #MND die within 2 years of first symptoms. Riluzole improves survival by about 35% and is the only licensed disease-modifying therapy for this condition in the UK. Riluzole must be made available for people living with ALS / MND. theguardian.com/society/2024/j…

Ammar Al-Chalabi (@ammaralchalabi) 's Twitter Profile Photo

This is a wonderful decision from the MND Association and will have a big impact on how fast we can deliver clinical trials for #ALS #MND in the UK. A crucial piece of national infrastructure for the UK MND Research Institute UK MND Research Institute. Thank you MND Association! mndassociation.org/media/latest-n…

Oxford MND Research (@mndoxford) 's Twitter Profile Photo

🚨Job alert🚨! Oxford MND Research Nuffield Department of Clinical Neurosciences are looking for an enthusiastic postdoc for a cutting-edge project to systematically investigate calcium channel blockers in amyotrophic lateral sclerosis #ALS using iPSC and ESC models. Please RT & find out more📷my.corehr.com/pls/uoxrecruit…

IMNDA (@imnda) 's Twitter Profile Photo

Good luck to Joe Mahon who starts out on his 100k on Knocknarea for IMNDA starting Sat 2nd March & continuing over the month of March. #MNDAwarenss For more: idonate.ie/fundraiser/Joe…

Good luck to Joe Mahon who starts out on his 100k on Knocknarea for <a href="/IMNDA/">IMNDA</a> starting Sat 2nd March &amp; continuing over the month of March. #MNDAwarenss
For more: idonate.ie/fundraiser/Joe…
MND Research (@premiumxremark) 's Twitter Profile Photo

Our genes could help us understand more about disease progression and risk of developing #MND #ALS. 🧬 Heather Marriott covers some of the exciting genetic research happening around the world and the impact it could have. Read more: mndresearch.blog/2024/03/12/cra…

Our genes could help us understand more about disease progression and risk of developing #MND #ALS. 🧬

<a href="/HevMarriott/">Heather Marriott</a> covers some of the exciting genetic research happening around the world and the impact it could have.

Read more: mndresearch.blog/2024/03/12/cra…
Heather Marriott (@hevmarriott) 's Twitter Profile Photo

Check out this blog I recently wrote for the MNDA, which summarises some highlights of the genetics research presented at the 34th #alsmndsymp, and what impact this could have for the #ALS #MND community 🧬💻

Ammar Al-Chalabi (@ammaralchalabi) 's Twitter Profile Photo

This decision by NICE is utterly wrong and is likely to deny a life-saving treatment for people with SOD1 #ALS #MND that is already approved in Europe and the US. A terrible, wrong-headed decision that must be changed. Department of Health and Social Care MND Association My Name'5 Doddie Foundation MND Scotland

MND Register (@mndregister) 's Twitter Profile Photo

We're pleased to announce that our new website is officially live!📢 We are the first comprehensive source of info about people with #MND/#ALS. This will act as a resource that will give us vital information about how many people and who have MND. Make sure to check it out!

UK MND Research Institute (@ukmndri) 's Twitter Profile Photo

This week, we launched our brand new and redesigned website for the MND Register.🗺️ But why is it so important? Find out how this vital resource is helping researchers understand who is affected by #MND/#ALS and why. 📖Read more below. ukmndri.org/2025/05/28/mnd…