peter_levy Will the bridge be disabled friendly?

Stiff Person Syndrome support Group; One in a million worlwide. We provide help, support to sufferers and their families. smssupportgroup.co.uk

I’m supporting Rare Disease UK by sharing my rare disease experience, to offer comfort and hope to other patients and their families. Illuminate the #RareReality Read my story and add your star for #RareDiseaseDay rarereality.raredisease.org.uk/star/378

Prime Minister Theresa May: Stop the NHS Denying Patients Access to Medical Cannabis - Sign the Petition! chng.it/X6jBRsdP via Change.org UK

@DavisAngesdavis Hi Angela, where do you live? Are you aware of the UK website smssupportgroup.co.uk My email is on there if I can help.

Read this comment, and sign the petition. My daughter has Stiff Person Syndrome and want to raise a... change.org/p/internationa… via Change.org UK

Long term friends online meet at Findacure has become Beacon, follow us @RareBeacon #rareworkshop #ataxia #StiffLegSyndrome liz blows #RareDisease

Thanks Angela, when will we SPSers be noticed anywhere? A rare disease which is not taken seriously!!! Please help us across the world. x.com/DavisAngesdavi…

My Name is Jennifer and I Have Stiff Person Syndrome (SPS) globalgenes.org/raredaily/name…

My Name is Jennifer and I Have Stiff Person Syndrome (SPS) globalgenes.org/raredaily/name… Hi Jennifer, I run the UK Charity. Would you email me?

Hi Jennifer, I have been a sufferer for 20 years. Hoping for raising awareness soon. email- [email protected] Mail if you can.

I am attending the CRDS! Abstract & poster done. Now waiting for response. SPS WILL be noticed, on stage or not! Fingers crossed.

Well, sadly not in the top five. Never mind, good luck to all who entered.

Hi Jennifer, just a note to ask how you are, I too have IDDM & a pump. from a fellow SPSer in the UK. [email protected] FB me.

Stiff Person Syndrome. A One in a Million Rare Disease! smssupportgroup.co.uk Here for sufferers, family and carers.

Haveyou seen this? x.com/Friedreichsata…

Do you have twitter? There is quite a lot about FA on there

Hi Sonia, I too suffer with SPS. Please have a look at our website smssupportgroup.co.uk We have a closed fb page where you will find people from around the world who want to help. x.com/toughermomma/s…