That sensation is so horrific. It’s indescribable. I don’t think doctors and researchers who don’t have LC have the slightest inkling how bad it actually feels.

Omg, I just learned that Bridget O'Shea has passed. I am so angry at this disease for killing my friends. Rest in peace Bridget, I’m sorry for all the suffering you had to endure.

Bridget O'Shea was a much beloved member of this community. I’m so sad and horrified she’s gone and her last experiences were abandonment by her family Rest in peace angel I’m so sorry of the hardships you faced here. Praying you are somewhere easier xx

Rest in Peace Bridget. Im so glad I got to know you and you deserved so much better than this. I’ll miss you.

x.com/i/spaces/1BRJj…

Kyle MacLean ❤️🌹🥀 dignitymemorial.com/obituaries/chi…

Heartbroken to hear about Bridget O'Shea. I spoke to her on Spaces many times and she was a truly lovely woman. (This was her flyer we handed out on LC Awareness Day) #LongCovid and #MECFS kill!!!

Drank 8 bottles of water yesterday and it may as well have been 2 gallons of toxic sludge for how poisoned I have felt since.

She’s still on my mind. 💔 😢 🙏

Pls help if you can had to spend $500 + stocking up supplements it’s honestly ludicrous how much we need just to survive at the lowest level of health so we don’t lose the tiny bit of mobility I currently have

Another birthday spent rotting away in bed. Another year I’ll never get back. Every year I say it can’t possibly get worse , and every year it does.

Rest in Power Winnie. The most amazing human died of Long Covid today. She was a friend to so many and helped anybody she could. She also was the smartest and kindest person I have ever met. My thoughts are with her family as they grieve and try to make sense of all this.

Please donate and share to my gofundme so that I can afford a good lawyer! gofund.me/276ccec65

I just saw this on Facebook. I'm fucking gutted right now. Gutted Megs please tell me this isn't true

This is incredibly difficult for me to post, but I’ve been alone for all these years and finally and I’m in need of help. If anyone feels like sharing donating or reading my journey, it would mean the world to me. Thank you. It could help me survive gofund.me/4a5afdd6c

I need help to pay for food, supplements & other medical expenses for January 😰🙏🏻 after everything I lost this Xmas... pls help if you can ❤️ I love you all gofund.me/1d9cd1905

gofund.me/1bcb78eaa

8 years ago tonight I went out to a bar on NYE. Was feeling fine one moment - then in an instant my body felt poisoned completely out of nowhere. Thought someone spiked my drink. That feeling of being poisoned has never left me.

we love you Leurah. you are important and you matter love

🧵1/3 Hi everyone, My friend sean stidston has had M.E. since the age of 18 and has become severely debilitated from several covid infections in the last few years. Recently a skin punch biopsy confirmed that he also has SFN (small fiber neuropathy). Aside from paraesthesia and