Study demonstrated increased amount of arterial hypertension in their #inclusionbodymyositis cohort but not in primary #heart muscle #inflammation. #myositis #Cardiology #rheumatology #Neurology link.springer.com/article/10.100…

We're looking for people living with dermatomyositis and polymyositis to participate in a clinical research study: kezarlifesciences.com/presidiostudy/ #myositis #clinicaltrials

nytimes.com/2020/03/23/opi…

The cleaning staff at our hospitals are hardly ever mentioned and they also deserve a tribute!

Coronavirus pandemic brings hundreds of clinical trials to a halt. wamu.org/story/20/04/11…

TMA has grant program for innovative pilot research into any type of immune-mediated #myositis. Fellowship funding is available for $50,000 per year for 2 years, and pilot project grant funding is available for a maximum of $100,000 per year for 2 years. myositis.org/research/tma-g…

As of April 1, Orphazyme did not anticipate interruption of the arimoclomol trial for IBM. orphazyme.com

Our PRESIDIO study continues to recruit those with dermatomyositis and polymyositis. Find out here: kezarlifesciences.com/presidiostudy/ #presidiostudy #mysoitis #dermatomyositis #polymysositis

Registrations are about to close for #2020RDDS at 5pm ET, today. Send us an email at [email protected] if you're a patient, patient advocate or researcher interested in attending to get a free registration code! #gcchat #MedTwitter #raredisease #patientadvocate #CarersWeek

Bill Birchard just rode 45 minutes for Team Cure IBM in the Million Dollar Bike Ride spin class. He’s helping raise money for inclusion body myositis research. Online credit card donations can be made until the end of June. socialfundraising.apps.upenn.edu/socialFundrais…

My family and I unicycled, walked, danced, and biked to celebrate the virtual Million Dollar Bike Ride on Saturday. Donations can still be made until the end of June. Every dollar will fund inclusion body myositis research. UPenn Million Dollar Bike Ride by ODC #PennMedMDBR2020 socialfundraising.apps.upenn.edu/socialFundrais…

Some further information on our upcoming Sirolimus in IBM project! #Myositis #InclusionBodyMyositis Murdoch University Perron Institute MyositisAssocAust @cureibm Myositis Support and Understanding (MSU) The Myositis Association notredame.edu.au/news-items/new…

A new $68,245 research grant for the study of inclusion body myositis is now available due to the efforts of Team Cure IBM in the Million Dollar Bike Ride. We are now seeking research proposals from doctors and scientists from around the world. cureibm.org/68245-grant-av…

Congratulations, Michael! A well-played game, and another wonderful achievement for you!

Vitamin D deficiency may impair mitochondrial function in skeletal muscle of mice. eurekalert.org/pub_releases/2…

Experimental ankle exoskeleton has potential to help older adults walk faster. scienceblog.com/522433/ankle-e…

You may know Rhonda as the Myositis Warrior. In honor of Myositis Awareness Month, we spoke with her about how IBM patients can be involved in research. Myositis Support and Understanding (MSU) allstripes.com/blog/ways-pati…

Jerry (Jerry Williams 🇺🇸💙🏳️‍🌈) is the founder and president of Myositis Support and Understanding (MSU) and an ambassador for AllStripes’ dermatomyositis research program. Learn more: allstripes.com/dm

Randomized trial finds the gut microbiome metabolite urolithin A enhanced muscle endurance and improved mitochondrial health in older adults. Study highlights potential role of mitophagy activation to improve muscle health. ja.ma/3IrfIhn

The INSPIRE-IBM study is recruiting and needs more patients. Consider participating, and spread the word — let’s make this important study a success! cureibm.org/participants-n…