Heute Talk aus Anlass der Unterzeichnung der Bund-Länder-Vereinbarung zur #NCT Erweiterung. #Patientenbeteiligung in der #Krebsforschung im NCT ein wichtiger Aspekt. Gemeinsam mehr Erfolg für uns Patienten.

This is what it feels like on a typical #ASH23 evening after 13.49km and 18.012 steps at the San Diego Conference Center, chasing between meetings and sessions all day. The Acute Leukemia Advocates Network (ALAN) team at the ASH’s Annual Meeting calls it a day for today :)

Patient Advocacy at #ASH23

CML expert Andreas Hochhaus presenting data of the CML TIGER study at #ASH23. 95% 8year survival in this study of newly diagnosed CML patients. Amazing how far we have come in 2023, CML outcome and survival was still so different when I first attended ASH in 2008…

Look at these survival curves on CML as presented by Andreas Hochhaus at #ASH23. Who still remembers the 30% survival curves of the pre-TKI era?

Interesting presentation of Andreas Hochhaus at #ASH23 about 8 year Asciminib data of phase-I study of Asciminib. With median treatment of -6yrs, only 13% patients discontinued due to AEs. No increased risk of AEs with longer exposure, no new safety signals

„Ich bin sehr stolz, was in den ersten 5⃣ Jahren der #XgegenKrebs geschaffen wurde. #Patientenbeteiligung ist überall dabei. Wir haben viel erreicht", so Jan Geissler.

Suche great pleasure and honor to contribute to your important research project Teodora Lalova-Spinks Robbe

„Bei der Begutachtung von Förderprojekten des BMBF entscheiden #Patientenvertretende immer mit.“ Alexia Parsons, Leiterin des Referats Nationale Dekade gegen Krebs, in der #PEAK-Session beim #DKK2024. Aspekte der Patientenbeteiligung in Forschungsanträgen werden diskutiert. #XgegenKrebs

Ananda Plate speaking about cross border access to trials: The ultimate aim should be to bring trials to patients. Until we achieve this there are actions we can take as advocates. #MPEMasterclass #ClinicalTrials

European Patients' Forum EUPATI Jan Geissler : "It is unlikely that many clinicians will attend this meeting. In the cancer community, we learned early on that we must push #patientengagement into their heads. We go where they are."

At this #CMLHZ24, be sparking not still! :) welcome to CML Horizons 2024 in Vilnius, dear advocates as clinicians!

Bahija Gouimi, our CML Queen of Africa and one of the best patient advocates I know, talking about what CML community has done to establish guardrails of therapy cessation in deep remission in low and middle income countries, and where the challenges with TFR are. #cmlhz24

Amazing session at #CMLHZ24 where we are discussing a truly global perspective on TFR in high, middle and low income countries, including perspectives from clinicians, nurses and patient advocates from different regions. A true 360 degree view we can’t see at any medical conf.

I still have some hope to develop some intelligence myself in this Artificial Intelligence session at #CMLHZ24. Hopeless, I know! :)

Is this 5*100mg + 2* Oh-my-god or zero milligrams? :-) #cmlhz24

What a memorable #EHA2024 Congress! 15.5K on-site + 3K virtual attendees, top voices in #hematology on patient issues. Congrats to European Hematology Association! European Patient Advocacy Institute & @Patvocates were active throughout. Congrats Yunus Borowczak & Charles McGrath, elected to EHA’s AYA Task Force! 👏(1/2)

#EHA2024 Highlights: Ana Amariutei on behalf of @AnandaPlate on #cancer & #fertility, MerceCases on PROs in hematology trials & WECAN #EuroACT, and great training by PNH Global Alliance ADP. Thanks to all, especially Alba Ubide, eglys gonzález, Inés Cañada and EHA! #PatientAdvocacy (2/2)