HPS Network (@hpsnetwork) 's Twitter Profile
HPS Network

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Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis

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linkhttp://www.hpsnetwork.org calendar_today11-05-2011 22:03:29

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HPS Network
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5 months ago

No rest for the weary! Our next conference is in Mayaguez, Puerto Rico on May 4th and 5th. Registration and info is on our website! #curehps #hpspuertorico

No rest for the weary! Our next conference is in Mayaguez, Puerto Rico on May 4th and 5th. Registration and info is on our website! #curehps #hpspuertorico