H-abc Foundation UK
@habc_uk
Our mission is to improve lives of children affected by h-abc (hypomyelination with atrophy of the basal ganglion and cerebellum) through personalised therapy
ID: 2322715397
http://www.h-abcfoundation.org 03-02-2014 21:59:38
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Great piece on Sky News, where Darren Hardy talks about why he's setting off first thing tomorrow to run 5 marathons in 50-hours! ๐๐โโ๏ธ H-abc Foundation UK #leukodystrophy #raredisease #fundraiser #charity
Ali and Rich on Sky News talking about their amazing daughter Aggie and how Darren Hardy is giving them new hope #habc #leukodystrophy #fundraising #extremeendurance H-abc Foundation UK
Track Darren Hardy on his incredible 5 marathons in 50 hours challenge for H-abc Foundation UK here! Heโs just set off! Go Darren! ๐โโ๏ธ๐โฑโ๏ธ#fundraising #extremeendurance #marathon #habc ๐ URL to donate in this photo! events.geotracks.co.uk/live/657
Incredible challenge ๐ฏfor โฆH-abc Foundation UKโฉ - 130+ miles in 50hrs, good luck โฆDarren Hardyโฉ #habc #challenge #5in50 #healthforall podcasts.apple.com/gb/podcast/heaโฆ
Good luck Darren Hardy on your 5 marathons in 50 hours for H-abc Foundation UK. Link to donate justgiving.com/fundraising/daโฆ You can follow his journey live: events.geotracks.co.uk/live/657 #habc #raredisease #fundraiser #extremeendurance
Run Darren Run! Together, we'll beat this disease. All our donations goes towards research Children's Hospital Sunetra Sase akshata almad Link to donate justgiving.com/fundraising/daโฆโฆ Follow his journey live: events.geotracks.co.uk/live/657 #habc #raredisease #tubb4a #leukodystrophy
Darren is now half way through his 5 marathons in 50 hours to save 12 year-old Aggie! Read his words here, with a link to donate โญ๏ธโค๏ธโญ๏ธ H-abc Foundation UK H-abc Foundation UK fundraising #raredisease #extremeendurance #fundraising #leukodystrophy metro.co.uk/2021/04/09/dadโฆ via Metro
Hope it's going well Darren Hardy great work for H-abc Foundation UK ๐๐๐๐ metro.co.uk/2021/04/09/dadโฆ via Metro
Hi @redknapp Please could you share this link for Darren Hardy who is running 5 marathons in 50 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this terrible disease, finishing in Sandbanks 10am tomorrow. Thanks justgiving.com/fundraising/daโฆ
.Josie Griffiths this story you wrote thesun.co.uk/fabulous/12370โฆ inspired Darren Hardy to run 5 marathons in 50 hours this week for Aggie, raising ยฃ20k so far with donations still rolling in. Publicity like this can lead to incredible acts of kindness, saving lives ๐ H-abc Foundation UK
Darren Hardy from Fleet ran an extraordinary five marathons back-to-back to raise money for H-abc Foundation UK. Story here on InYourArea.co.uk inyourarea.co.uk/news/fleet-manโฆ
Today SolRoots band @ private outdoor event in Rockville Maryland. HappyBirthday! Also to raise awareness for H-ABC, a rare genetic disorder that progressively damages the nervous system. H-ABC has no known cure, & affects mainly children. Learn more & donate: h-abc.org
And he's done it! ๐ Darren Hardy from #Fleet has completed his challenge to pull a one and a half tonne car more than 30 miles for the charity H-abc Foundation UK. He's also broken two world records for the longest car pull in 24 hours, and for the longest car pull ever (53km).
Hi This Morning Ex soldier Darren Hardy is doing 10 marathons in 100 hours to support H-abc Foundation UK in the race to find a cure for the kids affected by this disease. He would love to come on the show to talk about the challenge! ๐โโ๏ธjustgiving.com/fundraising/daโฆ
Coming up ITV London Former soldier Darren Hardy reached Hyde Park this afternoon having run 300km in 100 hours. He did it to raise money for Aggie Candy-Waters & others incl Frankie (on the right) who live with H-ABC H-abc Foundation UK
