Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile
Fragile X International (FraXI)

@fraxi_fragilex

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world.

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linkhttp://www.fraxi.org calendar_today28-09-2021 13:00:35

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Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: Speakers and topics. Here we are with Dr Michael Field, Prof Sundus Alusi, Prof Don Bailey. fraxi.org #FraXIcongress #togethermakingadifference #fragilexsyndrome #research #fragilexinternational #barcelona2024

First Fragile X International Congress: Speakers and topics. Here we are with Dr Michael Field, Prof Sundus Alusi, Prof Don Bailey.
fraxi.org
#FraXIcongress #togethermakingadifference #fragilexsyndrome  #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: Speakers and topics. Here we are with Prof Vincent De Portes, Prof Claudia Bagni, Prof David Godler. fraxi.org #FraXIcongress #togethermakingadifference #fragilexsyndrome #research #fragilexinternational #barcelona2024

First Fragile X International Congress: Speakers and topics. Here we are with Prof Vincent De Portes, Prof Claudia Bagni, Prof David Godler.
fraxi.org
#FraXIcongress #togethermakingadifference #fragilexsyndrome  #research #fragilexinternational  #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Here we are with Dr Paolo Alfieri, Dr Karolina Śledzińska and Dr Jessica Klusek. fraxi.org. #FraXIcongress #togethermakingadifference #research #barcelona2024

First Fragile X International Congress: speakers and topics. Here we are with Dr Paolo Alfieri, Dr Karolina Śledzińska and Dr Jessica Klusek.
fraxi.org.
#FraXIcongress #togethermakingadifference #research #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

We continue the presentation of the speakers at the First Fragile X International Congress. Here we are with Dr Laia Rodríguez-Revenga, Dr Joanna Moss and Dr Alice Montanaro. fraxi.org. #FraXIcongress #togethermakingadifference #research #barcelona2024

We continue the presentation of the speakers at the First Fragile X International Congress. Here we are with Dr Laia Rodríguez-Revenga, Dr Joanna Moss and Dr Alice Montanaro.
fraxi.org.
#FraXIcongress #togethermakingadifference #research #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Here we are with Dr Matthias Nybro Smith, Dr Andrew Stanfield and Dr Hadassa Kwetsie. fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024

First Fragile X International Congress: speakers and topics. Here we are with Dr Matthias Nybro Smith, Dr Andrew Stanfield and Dr Hadassa Kwetsie.
 fraxi.org
#FraXIcongress #togethermakingadifference  #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Prof Jozef Gecz and Prof Dragana Protic will be speaking. Find out their research. fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024

First Fragile X International Congress: speakers and topics. Prof Jozef Gecz and Prof Dragana Protic will be speaking. Find out their research. fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Discover the researchers and specialists who will participate in the congress. Here we are with Dr. Abigail Hogan, Dr. Katherine Ellis and Dr. Alexander Dück. fraxi.org #FraXIcongress #barcelona2024

First Fragile X International Congress: speakers and topics. Discover the researchers and specialists who will participate in the congress. Here we are with Dr. Abigail Hogan, Dr. Katherine Ellis and Dr. Alexander Dück.
fraxi.org
#FraXIcongress #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Here we are with Prof Gaia Scerif, Prof Siham Chafai Elalaoui and Prof Zimi Sawacha. fraxi.org. #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024

First Fragile X International Congress: speakers and topics. Here we are with Prof Gaia Scerif, Prof Siham Chafai Elalaoui and Prof Zimi Sawacha.
fraxi.org.
#FraXIcongress #togethermakingadifference  #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Here we are with Dr Ulrike Gaiser, Dr Andrew McKechanie and Prof Jonathan Herring. fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024

First Fragile X International Congress: speakers and topics. Here we are with Dr Ulrike Gaiser, Dr Andrew McKechanie and Prof Jonathan Herring.
fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First Fragile X International Congress: speakers and topics. Here we are with Dr Andre Rietman, Dr Bram Dierckx, Dr Ana Roche Martínez and Dr Andrea Elias Mas. fraxi.org #FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024

First Fragile X International Congress: speakers and topics. Here we are with Dr Andre Rietman, Dr Bram Dierckx, Dr Ana Roche Martínez and Dr Andrea Elias Mas.  
fraxi.org 
#FraXIcongress #togethermakingadifference #research #fragilexinternational #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

The first FraXI Congress has officially begun. A splendid venue in Barcelona hosts international Fragile X experts. This is a crucial opportunity to exchange skills and common growth. fraxi.org #FraXIcongress #togethermakingadifference #fragilexsyndrome

The first FraXI Congress has officially begun. A splendid venue in Barcelona hosts international Fragile X experts. This is a crucial opportunity to exchange skills and common growth. 
 fraxi.org 
#FraXIcongress #togethermakingadifference #fragilexsyndrome
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

First FraXI Congress: Day 2 Working together and learning from each other's experiences, embracing all the new goals to achieve. Thanks to all the speakers and family delegates from around the world. fraxi.org #FraXIcongress #barcelona2024

First FraXI Congress: Day 2
Working together and learning from each other's experiences, embracing all the new goals to achieve. Thanks to all the speakers and family delegates from around the world.
fraxi.org
#FraXIcongress #barcelona2024
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

We are thrilled to share a special video from Professor Flora Tassone following her participation in the First Fragile X International Congress! A heartfelt thank you for her inspiring words and dedication! #FraXIcongress #barcelona2024 #weareaforce fraxi.org

Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

Today we share another special video featuring the reflections and testimonials of some of the professionals who participated in the First Fragile X International Congress. #FraXIcongress #barcelona2024 fraxi.org

Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

We are incredibly grateful to Professor Claudia Bagni for her invaluable feedback following her participation in the First Fragile X International Congress. Her words perfectly capture the essence of our vision and mission. #FraXIcongress #barcelona2024 fraxi.org

Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

We wish to extend our sincere gratitude to everyone who contributed to the remarkable success of the first Fragile X International Congress in Barcelona. #FraXIcongress #barcelona2024 fraxi.org

Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

Rare Disease Day 2025 Watch the video here youtu.be/fIvqxQPjisI?fe…, share it, and be part of the change, because together we can do more, more than you can imagine! #RareDiseaseDay2025 Rare Disease Day EURORDIS-Rare Diseases Europe @rarediseasesint fraxi.org.

Rare Disease Day 2025
Watch the video here youtu.be/fIvqxQPjisI?fe…, share it, and be part of the change, because together we can do more, more than you can imagine! 
#RareDiseaseDay2025  
<a href="/rarediseaseday/">Rare Disease Day</a>  <a href="/eurordis/">EURORDIS-Rare Diseases Europe</a>  @rarediseasesint 
 fraxi.org.
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

Fragile X International joins the Italian and global Fragile X community in mourning the loss of Professor Murgia. Thank you, Professor Murgia for you dedication, expertise and empathy. Your legacy will continue to shine brightly in our lives.

Fragile X International joins the Italian and global Fragile X community in mourning the loss of Professor Murgia.
Thank you, Professor Murgia for you dedication, expertise and empathy. Your legacy will continue to shine brightly in our lives.
Fragile X International (FraXI) (@fraxi_fragilex) 's Twitter Profile Photo

International Day of Persons with Disabilities: true strength lies in the freedom to decide, and the power to do so must remain in the hands of these people. #internationaldayofpersonswithdisabilities #freetochoose #togethermakingadifference fraxi.org

International Day of Persons with Disabilities: true strength lies in the freedom to decide, and the power to do so must remain in the hands of these people. 
#internationaldayofpersonswithdisabilities #freetochoose #togethermakingadifference fraxi.org