I am uncomfortable with this paper. The concepts are correct, but the problems are more complex than what this simplistic overview suggests x.com/firestormmer/s…

Russell Fleming Taylor&Francis News I'm bedbound tube fed, can't bear touch, swallow etc, is gravity& deconditionin my big worry or their preocc?

Taylor&Francis News Further comments about this narrative review and the effects of gravity: forums.phoenixrising.me/index.php?thre… via Phoenix Rising #MECFS

Taylor&Francis News Phoenix Rising "Maybe I'm reading this wrong, but is it implying that orthostatic intolerance is caused from prolonged periods of horizontalness?" #MECFS

Taylor&Francis News Phoenix Rising Further comments: forums.phoenixrising.me/index.php?thre… via Phoenix Rising #MECFS

ME and me: making films about disability to raise awareness - go.shr.lc/2qZw5Np via Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 #Disability #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "He hopes the films will raise awareness of different disabilities, and ME in particular." via Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "I find walking very difficult and therefore use a manual wheelchair, a mobility scooter or crutches to get around." #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "ME has also messed up my bladder control, so I wear incontinence pads all the time." With you there my brother 😒 #MECFS #Incontinence

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "Rather than present my condition as a series of facts, I wanted to use it to tell a story." via Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "My main reason for writing Awaken and The Black Box as narrative fiction was because I wanted to create a character with ME that people...

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 would be able to relate to and identify with, even if they didn’t have the condition." via Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 "Keeping everything contained in a single space would visually represent the extreme isolation you can feel when you have ME." #MECFS

Shareaholic Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 .Thom Jackson-Wood🧑🏻‍🦽🇪🇺🇬🇧 🇺🇦 I'm really looking forward to watching your films. Thanks for raising awareness in such an effective way. Awesome! #MECFS

Terri Wilder New York Health Commissioner Howard Zucker: #MECFS #MEAwarenessMonth

Terri Wilder New York Health Commissioner Howard Zucker: #MECFS #MEAwarenessMonth

Listening now. When patients and researchers face-off: The PACE Trial and ME/CFS with Julie Rehmeyer and others. #MECFS #PACETrial x.com/undiscoveredpo…

Russell Fleming Julie Rehmeyer It's an interesting podcast. Wasn't wild about the 'over acheiver' bit as that has been used to patient blame but overall good.