👀 Join the BIND study and help uncover important insights into the impact of DMD/BMD on the brain. Contact your nearest study site to learn more about how you can participate. bindproject.eu/bind-study-inf…

🔎 BIND puts great efforts in improving the understanding of brain comorbidities in #Duchenne and #Becker muscular dystrophy. Together, we can help to improve treatments and outcomes for those living with these conditions. → Learn more about BIND: bindproject.eu/about/

👋 Join us in raising awareness about brain involvement in DMD and BMD by subscribing to the BIND newsletter. Stay updated with our research on localizing dystrophin isoforms in the brain, defining brain comorbidities, and creating outcome measures. → eepurl.com/g5c811

📍Gathered in London for the final General Assembly meeting of the BIND project! Over the next two days, all partners unite to advance research on learning & behaviour challenges in #Duchenne and #Becker muscular dystrophy. 👇 Learn more here bindproject.eu

👇 This educational video sheds light on the challenges people living with Duchenne and Becker MD may face and the importance of understanding brain comorbidities. Watch the video by World Duchenne Organization here: youtu.be/yuB_87NoxGU

🌟 Registrations for 𝗗𝘂𝗰𝗵𝗲𝗻𝗻𝗲 𝗖𝗮𝗿𝗲 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝟮𝟬𝟮𝟰 are now open! This year’s theme emphasizes mastering foundational care strategies, even in countries where not all modern technologies are present. 👇 Secure your spot now: worldduchenne.org/news/duchenne-…

Attention to brain involvement in Duchenne and Becker MD is crucial, and the BIND project is leading the way. Stay updated with the latest findings and research by subscribing to the newsletter. ✍️ eepurl.com/g5c811

🎈 This year, World Duchenne Awareness Day will be focused on... Duchenne & Disability Rights We shine a spotlight on what it's like to live with Duchenne and fighting for disability rights everywhere in the world. → Follow our campaign and share the communication contents!

🇪🇸 Today, BIND is presented at the Duchenne Parent Project España conference. In the session moderated by Dr Montolio del Olmo, De Miranda presents on the cognitive aspects in DMD/BMD. He is joined by Prof Mercuri, Dr Hendriksen and Prof Skuse. More info: bindproject.eu #congresodppe2024

Our next webinar will be on Wednesday 29th May at 5:30pm with Professor Francesco Muntoni and Anna Kolesnik and they'll discuss the BIND study. REGISTER: bit.ly/WebinarBIND #learningandbehaviour #duchenneandthebrain #learning #understanding #scienceeducation

🧠 Understanding learning and behavioral challenges is key in Duchenne care. Dr. Jos Hendriksen will discuss screening methods at the upcoming Duchenne Care Conference, taking place May 27 & 28 online. 📣 Secure your #DuchenneCare2024 spot now: worldduchenne.org/news/duchenne-…

Dr. Jos Hendriksen presented at the Duchenne Care Conference 2024. ✨His talk presented the BIND screener: a quick, easy to complete and reliable tool for screening and identifying neurocognitive and neuropsychiatric problems. Results are published soon. bindproject.eu/bind-project-p…

Last Action Duchenne Spring Webinar, the BIND project was presented. Prof Muntoni, Dr. Hendriksen, Dr. Miranda and Dr. Kolesnik provided insights into learning and behavioural challenges associated with Duchenne & Becker. Thank you for the invitation! bindproject.eu/action-duchenn…

Just out! In the latest BIND newsletter, we summarise the latest publications on brain comorbidity research in Duchenne and Becker MD. Each publication had a lay summary available. Read the full newsletter here 👉 mailchi.mp/2b605bcaa3b0/b…

We have a vacancy for a PhD student 👇 PhD Candidate 3D Muscle Cultures for Duchenne Muscular Dystrophy | LUMC

At the Duchenne Parent Project España Annual Conference last May, representatives from the BIND consortium participated in a session titled “Cognitive Part in DMD/BMD: Project BIND.” → A summary of what was presented and discussed is now available: bindproject.eu/bind-presentat…

You are invited to join the BIND Patient Community webinar 'Understanding the role of dystrophin in the brain' 🗓 Monday, September 23 🕕 18:00 CEST 📍 Online via Zoom 👉 Please register your interest here: bindproject.eu/bind-patient-w…

Thrilled to announce that LUMC Leiden and Duchenne Data Foundation have secured funding to further continue deep phenotyping of the brain in Duchenne and Becker muscular dystrophy. 🤝 This will further enhance the understanding of brain involvement in DMD and BMD. bindproject.eu/bind-secures-f…

🧠 Dr. Hermien Kan used advanced MRI scans of the brain to see how DMD/BMD affect the structure and function of the brain. Join us next Monday September 23 at 18:00 CEST and learn about this & more insights from the BIND Project 🔗 Register here: bindproject.eu/bind-patient-w…

Next Monday, Dr. Amel Saoudi from CNRS 🌍 shares what we have learnt on dystrophin in the brain from mouse models. Join the BIND Patient Community Webinar to find out! 🗓️ Monday September 23, 18:00 CEST bindproject.eu/bind-patient-w…