📣 We're pleased to announce the launch of the Motor Neurone Disease (MND) Research Data Catalyst in partnership with Dementias Platform UK, supported by UK Dementia Research Institute, to accelerate the discovery of new diagnostics, treatments and improve care for patients with MND. 🔗hdruk.ac.uk/news/accelerat…

🖋️ New on our blog – discover a growing community with lots of ideas as Shayda Kashef at ADR UK reflects on her involvement in the Public Engagement with Data Research Initiative (PEDRI) and the opportunities for you and your organisation. hubs.li/Q02JbHZH0

🤩 We can't wait to attend Broadlands Fun Day in #Bridgend next month. Come along for an exciting day full of family-friendly activities on 31 August 2024 at Maes Yr Haul Primary School. You'll find us in the science tent! Learn more about the event: hubs.li/Q02J6dlp0

Current projections estimate 153 million people will be living with dementia by 2050. Nearly half of dementia cases could be prevented or delayed by tackling 14 risk factors starting in childhood, suggests new report from a standing Lancet Commission: buff.ly/46nvoPR

It was great meeting several interns from Health Data Research UK (HDR UK)'s Black Internship Programme!Thank you, #DonaReddiar, for the invite, #RachelThornton, for the support, & Public Advisory Board members, #Munisa & #Sarah, for planning the session and presenting with me! #PPIE #BlackInternProg🌟🚀

We've made 19 recommendations for system-wide action to help improve the way health and social care research is carried out. The recommendations aim to improve the experience of people taking part in research. Read more ➡️hra.nhs.uk/planning-and-i… #PeopleCentredClinicalResearch

"Trustworthiness is the magic that helps to build quality into human relationships, so that people want to work with you." Find out about a blog our Director Dr Emma Gordon wrote for Office for Statistics Regulation, following a report on analytical leadership. adruk.org/news-publicati…

⏳ We're counting down the days until Broadlands Fun Day in Bridgend! Come along to the science tent at Maes Yr Haul Primary School on Saturday 31 August and take part in a fun day of activities, for the whole family. Learn more about the event: hubs.li/Q02LhJJh0

Led by Sara Khalid at NDORMS and supported by BHFDataScience, researchers studied ethnicity data in the electronic health records of over 60 million people in England to improve the quality of the data – vital for tackling healthcare inequalities. 🔗hubs.li/Q02LrSwn0

🌟 We can't wait to attend #OrkneySciFest next month! Enjoy various family-friendly activities, including our discussion on "how health data can help us all" on Sat 7 September 2024 at 2pm. Book your place 👇 hubs.li/Q02LzVpK0 Orkney Science Fest #OISF

📣 We're excited to announce our first joint #hackathon with ELIXIR UK! Got an idea that needs a little push? 🚀 📅 Dates: 12-14 Feb 2025 📍 Location: Nottingham, UK 💡 Project proposal deadline: 27 Sept 🔗 hubs.li/Q02LSwPX0 #Hackathon #HealthData #LifeSciences

🧠 An AI tool aims to predict a person’s risk of dementia, using brain scans from the whole Scottish population. As part of the SCAN-DAN project — a NEURii 'pathfinder', which is supported by Health Data Research UK (HDR UK) — scientists from The University of Edinburgh and University of Dundee will analyse 1.6 million

Come work with me and our lovely team Health Data Research UK (HDR UK)! I am currently recruiting for a Programme Manager to support delivery, integration and impact of our Research Driver Programmes. If you have experience of health data research/health data ecosystem - apply! hdruk.ac.uk/jobs/senior-pr…

🎉 Today we’re celebrating our Class of 2024 #BlackInternProg at our Closing Ceremony. Stay tuned for a celebration with interns, host organisations, a steel drum band and more! Follow along in the thread below for live updates and to experience the excitement firsthand 👇

And that’s a wrap! Congrats to Priscilla Akyaa Kyei-Baffour for winning the Poster Award at the #BlackInternProg Closing Ceremony🎉! Massive thanks to the team, including our Public Advisory Board member Munisa, for supporting the public-facing showcase of interns' projects #PPIE

🎪 We had lots of fun at #OrkneySciFest at the weekend! Our range of activities and 'Health from data?' discussion with Cathie Sudlow (Strategic Advisor at HDR UK) and Chris Monk (Public Contributor) were a hit! Thanks for having us @OrkneySciFest 😄

Looking forward to today's talks at #IPDLN2024 following the inspiring opening by NYU Prof Julia Lane, who called for a bottom-up, community-led approach to 'trustworthy and responsible AI' in #DataScience. 'The time is now'.

Still not over Monday’s keynote by J. Abrams McLean PhD on Fair Count & the crucial role of data accessibility, literacy, privacy, visualisation, & storytelling in driving empowerment & advocacy! Excited for #IPDLN24 Day 2 International Population Data Linkage Network