Parent of son with DMD, Laura McLinn: “It meant so much to me to hear my son feel so proud that maybe we were at this point today and that other boys, future babies born with Duchene, would have opportunities that he did not…Secretary Kennedy, this means the world to us and our

Insanely sad, and also a reminder: Get a MRI every year & a GRAIL test every 2-3 The earlier you catch cancer the greater your survival rate You “will” get cancer if you live long enough & don’t die from something else first

Live look at my future wife and our son after I’ve conquered DMD:

I love my mom! I gave this speech back in October and her pancreatic cancer biomarker (CA 19-9) had fallen from ~63,000, which is off the charts high, to ~17,000, which is still astronomically high. For reference, normal range is 1-37. Today, on the Eve of Christmas, her latest

You know what is next that is also a small molecule? 😏

Later loss of ambulation (LOA) in DMD patients was associated with better preservation of heart function in adulthood, specifically measured by left ventricular ejection fraction (LVEF). Losing the ability to walk after age ~12 was linked to a 5-fold reduced risk of having an

One day this won’t be an AI generated photo.

Happy New Years! 2026 is going to be the year where DMD doesn’t mean the same thing as it did in the past. I do not think we are going to make tiny improvements, but gigantic leaps (we already have and now need to complete the job!) Cheers to minimizing human suffering in 2026!

New Year’s dinner… interesting fortune cookie I got 😏

SAT-3247!! This will sound rather obvious, but the problems from DMD are from lack of muscle. We talk so much about dystrophin, when we really should be talking about regenerating muscle.

WE BUILT DIFFERENT 🇺🇸🇺🇸🇺🇸

Genuinely I am so happy to hear Scott Adams state he is going to become a Christian as he’s facing his death bed right now. I been praying and hoping for this. As he is a man of logic, he is reciting Pascal’s wager, which says it's more rational to bet on God's existence

CJ Stroud on if God is blessing the Texans because of their testimony: “I don’t want it to ever be confused, I don’t think God is like ‘the Texans are gunna win.’, but I think regardless, win or loss he gets the glory, and that’s up to us, that’s just worship. Him giving us our

There is no need to have sick patients fly to LA to receive our drugs!!!! They should receive treatment where they live. This kills us all to hear about this. Our prayers go out to the family.

Amazing! AI will dramatically change health.