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Thanks @pinkhopeaus for your work throughout 2022 engaging with people with metastatic cancer. It was a privilage to be involved and I am delighted to see the report launched today #MBC Awareness Day. lnkd.in/g_CTWMxT

Delighted to have co-authored this wtih Sophie Lewis and Dr Katherine Kenny. 'I’m not going to be cured'. How breast cancer awareness and support sidelines people with metastatic disease theconversation.com/im-not-going-t… via The Conversation - Australia + New Zealand

Working closely with 3 fantastic consumers, we are delighted to report on the effectiveness of professionally-led support groups for people with metastatic cancer & factors critical to implementation success in real-world settings. Open access Journal of Cancer Survivorship, rdcu.be/dvumA

Do you know any Melbourne-based PhD students or recent post-docs who might be interested in an exciting 0.5FTE fixed-term (0.6 months) opportunity BCNA for a Policy and Advocay Officer focusing on metastatic breast cancer? Please share. seek.com.au/job/72926900

It was an honour and deeply moving to be there for the funding announcement. #MBC is the most serious type of breast cancer and the only one you will die from. Stage and recurrence data will help make us visible in the sea of pink and drive better support, services & MBC outcomes

I'm incredibly proud of how BCNA listened to people with #MBC when we said we felt invisible. And of what we have jointly achieved in 18 months that contributed to this funding announcement: an MBC Issues Paper; Roundtable in Canberra; & Roadmap tinyurl.com/bdfajesy

Agree completly Dr. Kelly Shanahan These standards are a critically important step in setting expectations & highlighting urgent gaps in survivorship services for those with metastatic cancer. Now we just need to get them put into practice!

Thanks Janice Cowden! We're immensely proud of our Journal of Cancer Survivorship article highlighting importance of MBC support groups - which are underfunded yet desperately needed not just in Australia but internationally. Thanks to my amazing co-authors Grace Mackie, Fran Boyle she/her Sophie Lewis

Exciting opportunity with a great team!

Agree completely Janice. Nearly 9 years after my de novo #MBC diagnosis and having lost many friends to this incurable disease I too celebrate my cancer anniversary. I am very aware how lucky I am. I delight in being here and having the privilege of getting older 😊

Supportive care for #MBC is challenging: 'To improve quality of care provided to pts & minimise risk of professional burnout, greater attention is needed in supportive care guidelines to ethical, moral & emotional complexities experienced by professionals'. Great paper Marika!

Thank you! Incredibly proud of the consumers I've worked with to make this happen. mbcaction.org.au will drive much needed advocacy for those living with #MBC. We're Australia's 1st ever MBC-specific advocacy org and unapologetic in the urgency of our calls for action

More evidence for need to revisit how drugs get listed on PBS in Australia. So many inequities. Patients with life-limiting, incurable metastatic cancers often die before TGA approved drug gets onto PBS. For some rare cancers there’ll never be enough evidence to get listed.

Great point! Almost everyone who dies from breast cancer dies from metastatic breast cancer #MBC. But there’s such limited awareness of MBC. See BCNA media guidelines for great tips bcna-dxp.azureedge.net/media/t0qm2ax4…

Great to catch up with so many awesome colleagues & friends at the Cancer Institute NSW Premiers Awards for Outstanding #CancerResearch last night & an honour to be a finalist for the #MCR award along with #SurvOnc ✨ Dr Andrea Smith & Nicolas Hart ❤️the NSW cancer research community🥂

It was an honour to be a finalist with colleagues A/Prof Ben Smith @bensmithphd.bsky.social & @DrNicholasHart at Cancer Institute NSW Premiers Awards for Outstanding #CancerResearch. A joy to be shortlisted with such dedicated cancer survivorship researchers. Congrats to✨ @DrNicholasHart who took out the award.

Building on our recent MASCC-ASCO Survivorship Care Standards for People affected by Advanced or Metastatic Cancer (ascopubs.org/doi/10.1200/ED…), we provide suggestions for stakeholders, and opportunities to expand clinical care, research, and advocacy across resource settings.

One of the most impactful additions of our article (ascopubs.org/doi/pdfdirect/…) is undoubtedly the personal contributions of Dr Andrea Smith who, through her lived experience with metastatic cancer, provides powerful insights and recommendations to improve outcomes this population.

Important & powerful conversation about improving services & research for people with metastatic disease 💗 & the complexities that come with this diagnosis “We’re not cured but not actively dying” Nicolas Hart Dr Andrea Smith Bogda Koczwara 🌻🌻🌻 The Daffodil Centre

Coming to ASCO in-person or virtual (on-demand)? Make sure you attend our Session on 1st June, Sunday (GMT-5) at 8am - Larissa Nekhlyudov FASCO, Prof Michael Jefford FASCO, Dr Andrea Smith, and I expand on the MASCC-ASCO Survivorship Care Standards for Advanced or Metastatic Cancer.