“All the big breakthroughs that have happened...it’s been because of a study exactly like this one. It’s the start of something, not the end.” shorturl.at/fwKM0 Thank you to Channel 4 News for showcasing #DecodeME and to @therealmecfs and all our other participants.

With your help, #DecodeME has built the world’s largest data set on ME/CFS. We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases. Find out more ➡️ shorturl.at/iBW78

#DecodeME supports calls for more investment in research into #ME/CFS. Watch the full Westminster Hall debate on parliamentlive.tv shorturl.at/svET6 (from 16.30.20 onwards) or read transcript on Hansard shorturl.at/dwDFU

#DecodeME supports #WorldMEDay 2024. Create your own poster and add your photo to become a #GlobalVoiceForME World ME Alliance ➡️ shorturl.at/dnxNZ

This #WorldMEday, #DecodeME hopes that by building recognition, fostering global cooperation and sharing research findings, we can help accelerate research towards possible diagnostic tests and treatments for #MECFS. #GlobalVoiceForME

Our PPI group is at the heart of #DecodeME. They provide lived experience & expertise to ensure National Standards for Public Involvement are met. This #WorldMEDay we want to thank them for their commitment to accelerating research into #MECFS & all their behind the scenes work

Following #WorldMEday, we wish to champion our partners who are helping us accelerate research into #MECFS. To read more about PrecisionLife x #DecodeME go to: shorturl.at/qHLVW #GlobalVoiceForME

Through accessing consented #DecodeME data, University of Glasgow are helping us accelerate research into MECFS. To read more about University of Glasgow x #DecodeME, go to: shorturl.at/qtST8 #GlobalVoiceForME #WorldMEDay

#DecodeME will be presenting at the BACME conference today. As this is a clinician focussed event, & not everyone can attend, we wanted to share our presentation*. decodeme.org.uk/media/ *This is a prerecording of the presentation that will be delivered live at the conference.

Sharing impact from DecodeME the ME/CFS Study with Chris Ponting Action for M.E. for The University of Edinburgh colleagues as a result of patient & public involvement @ the very heart #MyalgicEncephalomyelitis #MECFS

There is no help – final message of woman with ME bbc.in/4c1PbFI

DecodeME Investigator, Chris Ponting, talks to BBC Radio Scotland about DecodeME, what is ME? and the need for funding around ME research. Go to 24:52 bbc.co.uk/sounds/play/m0… to hear his interview. #DecodeME #MECFS #pwME

Tune into BBC Radio Scotland Drivetime around 4:45pm today to hear Action For ME CEO, Sonya Chowdhury, talk about #MECFS

Tune into BBC Scotland News today at 9pm to hear Action for M.E. CEO, Sonya Chowdhury, talk about ME

*TRIGGER WARNING* Last night, Action for ME CEO Sonya spoke to BBC News Scotland’s The Nine programme about the impact of ME and the need to accelerate research. Sonya appears from 10 minutes in, watch here: bbc.co.uk/iplayer/episod…

Thanks to the thousands of #pwSevereME who took part in #DecodeME, we know that being female, older & having #ME for 10+ years = more likely to have #SevereME. During genetic analyses, we hope to make further discoveries & direct future research toward treatments/cure for #pwME

For this we used up to 1,455 #pwME in UK Biobank and 131,303 controls – the largest ME blood ‘omics study to date. Results were highly reproducible between females and males indicating that female and male ME are similar 3/4

Such a large number of replicated and diverse blood biomarkers that differentiate ME cases from controls should now dispel any lingering perception that ME is psychosomatic This was a fab collaboration including Ava Khamseh, nima hejazi and Sjoerd Beentjes. 4/4

Interesting study from Chris Ponting