Colossians 3:12 KJV [12] Put on therefore, as the elect of God, holy and beloved, bowels of mercies, kindness, humbleness of mind, meekness, longsuffering; bible.com/bible/1/col.3.…

"For unto you is born this day in the city of David a Saviour, which is Christ the Lord." - Luke 2:11 (KJV) May your heart be filled with the joy and peace of His presence today and always! From our family to yours, Merry Christmas!

#MerryChristmas2024

1 Peter 4:1 KJV [1] Forasmuch then as Christ hath suffered for us in the flesh, arm yourselves likewise with the same mind: for he that hath suffered in the flesh hath ceased from sin; bible.com/bible/1/1pe.4.…

One Minute Mondays are back! Today, we're talking about resolving to be your best! Before we can show up for others, we have to show up for ourself. What does being your best self look like? Kickstart your week with one minute of the Being Rare Podcast! #podcast #selfcare

I remember the pressure of holding up the car line, but learned, I don’t need to rush. To the teachers who had my back? The support empowered me to own our pace. Watch Ep 102. Hello 2025: What's In, What's Out buff.ly/4hnpSAT or listen wherever you stream your podcasts!

Amazing time at Disney On Ice at the Von Braun Center this weekend! Huge thanks to @feldentertainment for bringing the magic to Huntsville! ✨ Incredible sets & performances. So much fun for the family! ⛸️ #DisneyOnIce #DisneyMagic #FamilyFun #Huntsville

#🧊🧊🧊

Finally wrestled the lawnmower out of hibernation! 😅 The reward? These glorious stripes! Who else feels a sense of accomplishment after that first mow? 💪🏾 #LawnCareLife #FirstMowDone #YardWorkPaysOff #SpringCleaningOutdoors

A little bit of grace at the gas pump. This Jesus figurine is was a sweet surprise... Now watch me fill up!!! #faithjourney #gaspump #unexpectedjoy

Enjoying this delicious salad tonight! 🥗 Fresh ingredients and vibrant flavors make for a perfect meal. #salad #healthyfood #dinner

Help us make the Bob Jones High School football season a success! Our fundraiser is live, and your contribution will directly benefit our student-athletes. Click the link to learn more and donate: raise.snap.app/donate/bob-jon… #BobJonesFootball

For everyone who said the Medicaid "changes, cuts," whatever you want to call them wouldn't affect people with disabilities - LIES! Elijah's Medicaid was terminated! Yes, we have primary insurance but Elijah's care REQUIRES supplemental coverage and support. This is ridiculous!

September is Newborn Screening Awareness Month! Every baby deserves a healthy start—and newborn screening makes that possible. This month, we’ll be sharing stories, facts, and advocacy updates to shine a light on why NBS matters, especially for families impacted by rare diseases.

$190 short of goal, 2 days left! Sarita Edwards we are SO close! raise.snap.app/donate/bob-jon…

Did you know? Newborn screening happens in the first 24–48 hours of life and checks for dozens of rare but serious conditions. But access isn’t equal — leaving some families in the dark. That’s why advocacy matters. Learn more about our efforts: theewefoundation.org/newbornscreeni…

Did you know? Newborn screening happens in the first 24–48 hours of life and checks for dozens of rare but serious conditions. But access isn’t equal — leaving some families in the dark. That’s why advocacy matters. Learn more about our efforts: theewefoundation.org/newbornscreeni…

In this episode of the Being Rare Podcast, Sarita is joined by Swapna Kakani and Jasmine Hightower - and briefly by Brooke Thomas - to talk about newborn screening and state level advocacy. Check out the full episode here: youtu.be/u4pqI5XdTQ4?si…