“Delays in seeking care increases morbidity and mortality [in sickle cell disease patients]” - Stephanie Ibemere NIH NHLBI #AnnualSickleCellDiseaseResearchMeeting

Has fertility preservation for Rare Disease Warriors ever crossed your mind? I'm concerned raredisease.net/caregiver/fert… via #rarediseasenet #sicklecell #SickleCellAdvocate #sicklecelltreatments #sicklecelleducation #caregiver @healthunion

Loudoun Schools to Start Monitoring Students with T1D through Apps loudounnow.com/news/loudoun-s… via Loudoun Now

There are some moments they will stay with you forever. Pure joy just feels good! #socialhealth #wearefierce #advocacy #award

Back down memory lane.

P.Allen Jones Independence School District Raytown Schools KCPS Sickle Cell Consortium Akshat Jain MD MPH FRCP Elle Cole (She/her) KCTV5 News Alexandra Power-Hays, MD Amber M Yates, MD Power 105.1 KC Yes! We've found school nurses & districts to be very receptive to our School Nurses SCD Education Initiatives. Their engagement & eagerness to learn make our presentations truly impactful. I'm Extra proud of our Board Members' dedication in leading this program!- VP #sicklecell

.Rep. Glenn Ivey Please Support the SCREEN for Type 1 Diabetes Act www2.breakthrought1d.org/site/Advocacy?… #T1D #typeone

.Senator Ben Cardin Please Support the SCREEN for Type 1 Diabetes Act www2.breakthrought1d.org/site/Advocacy?… #typonediabetes #type1diabetes

Hear it straight from a #sicklecell warrior! President Kevin Wake on KCTV5 News: 'I've lived past my expiration date.' His story highlights the power of #blooddonation. Join the fight against the national shortage & donateblood @ the Sept 20th #blooddrive! youtube.com/live/MCdUwtJsU…

New PAID Opportunity! You must be: ➡️ Diagnosed with #sicklecelldisease or providing care to a loved one who has been diagnosed ➡️ Both a patient and caregiver must complete individual applications to be considered for this opportunity. ➡️ US resident ➡️ 18+

Global Genes Week in RARE event from September 25-28! Please come join me and fellow rare disease advocates for insightful sessions on advocacy best practices, actionable strategies for our communities, and valuable connections within the rare disease community for future

The 5 Stages of Grief: How to Cope With the Loss of a Loved One cleverlychanging.com/2024/09/the-5-…

#sicklecellawareness #sicklecell ashpublications.org/ashclinicalnew…

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I love this exhibit of Hertz’s work. I’m so glad the traveling art exhibit is making it’s way to Torrance, CA Sept 18-21. eventbrite.com/e/nod-to-naz-t…

REPOST: 🎉 Excited for #GSV x #PennState: The Global Impact Forum (#TGIF) 2024 in #Philadelphia! 💡 Scholarships still available! Email [email protected] for details. #TGIF2024 #AIForGood #EducationInnovation 🌍 Join global leaders from September 22-25, 2024, to explore the

September is #SickleCell Awareness Month, and #VoyageBaltimore is highlighting one of our own in the #SickleCellCommunity: Elle Cole (Elle Cole (She/her)) is an author, entrepreneur, and #SickleCellDisease Caregiver. ❤️ Read more: voyagebaltimore.com/interview/meet… #sicklecellawareness

Ashaunta Anderson, MD, MPH, MSHS, questions why children with sickle cell disease are not receiving the care they deserve in her recent op-ed. Her latest study reveals that children with SDC are not getting crucial preventative services. Read more here. tinyurl.com/46uuj79s

Thank you Elle Cole (She/her) for sharing your story! This article has great insight for anyone working with families or caregivers of a child with SCD! 📚

D’Pharaoh Woon-A-Tai arrived to the #Emmys with a red handprint over his mouth in solidarity with missing and murdered Indigenous women.