#FacialPain can be unbearably intense, taking control of nearly every aspect of daily life. Most people don’t understand it, and those who do wouldn’t wish it on anyone. #TrigeminalNeuralgiaAwareness #FacialPainAwarenessMonth despitepain.com/2021/10/01/its… via Despite Pain

Sharing some news ❤️

DWP admits its benefits helpline is driving disabled people to self harm The DWP has only admitted this chaos because they’ve had to, and of course they haven’t admitted this publicly - but in a private email, writes Rachel Charlton-Dailey thecanary.co/uk/analysis/20…

Have you been told you need to strengthen your core before anything else? That advice might be incomplete and not the right step forward for hypermobility. Stability and strength are of course important for hypermobility, but we first need to find some connection and safety

Some of the files of evidence I have to keep to support family with PIP etc assessments . However according to some you just pick up the phone and there you have it BMW on your doorstep no evidence needed . Tsk.

Do you have trouble with cooking, chopping, peeling, standing in the kitchen? This blog is for you. A great resource with top tips from Jo Southall, OT on my latest blog. jeanniedibon.com/cooking-eds-hy…

You get cars based on how many points you score for mobility on your PIP assessment, not for a specific illness. Kemi knows this, other politicians spouting it know this and so do all the news orgs sharing this btw

She has absolutely no say or control on what people spend PIP on. The Motability scheme is not run by the government and it benefits the car industry. She is saying this purely to get on side all the ignorant people that believe people with ADHD are actually getting free cars.

He makes at least three major errors about PIP but it is a bit shocking that the shadow Chancellor thinks £187.45 a week - the very maximum - amounts to ‘thousands of pounds a month’. At its lowest it is £29.20 a week.

22 fans living with Alzheimer's accompanied England and Wales players during the anthems before this evening's game at Wembley ❤️

This

It's World Mental Health Day so I'd like to say a big f*** you to the Labour Govt & the DWP who are doing their utmost to minimise the struggles of people suffering with mental health issues & to regress attitudes back to a time when "pull your socks up" was an accepted response

For nearly 50 years Motability Foundation has given back mobility to disabled people. Founded by Lords Goodman and Sterling under the finest disability Minister we have had, Alf Morris. It uses the benefit he created to lease cars. I have never known this scheme so under ignorant attack.

This #WorldMentalHealthDay we are highlighting the importance of recognising the signs of overwhelm. 🌍💜 For tips on managing overwhelm check out our website:tinyurl.com/3jemzr7v #WMHD #WMHD25 #MentalHealthAwareness #MentalHealthMatters

Please never be embarrassed or too afraid to talk about your mental health. You’re tired from being strong. There’s nothing wrong with seeking assistance with getting along. #WorldMentalHealthDay #WMHD25 #MentalHealth

Job advisers will be at GP surgeries & Hospitals to tackle the UK’s long-term "sick" problem. Let's unpick this shall we. Are these advisers versed in disability & mental health training? access needs? medical knowledge? Will they be Disabled? Asking for sanities sake.

Update On Gene Linked to Hypermobile EDS - the Norris Lab published their final study results in 2025: buff.ly/y0TmObZ #EDS #hEDS #HSD #Hypermobility #Zebras #Research #Doctors #medicine #Genetics #NEISvoid #Science #MedEd

Agree with this opinion published in Neurology. In addition, I urge all neurologists and American Academy of Neurology to include #Dysautonomia - a disturbance of the autonomic NERVOUS system (ANS) - in every neurology residency curriculum. The ANS curriculum must include not just neurogenic

Do you know if you have symptomatic hypermobility you are more likely to have POTS (Postural Tachycardia Syndrome) It's Dysautonomia awareness month and POTS is one of the common diagnoses our members have particularly after infections or illness too. This was evident in the

A quick guide for looking after yourself when living life with chronic illness : instagram.com/p/DPtw3TUjCUf/… #chronicillness #chronicpain #spoonie #disability #life #mentalhealth #SelfCareSunday #sundayvibes #quotes #inspiration