CF patients in India has all rights to have access to the modulator.Vertex Pharmaceuticals and Ministry of Health Should look into it.Dailyhunt m.dailyhunt.in/news/india/eng…

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Court battle looms over life-saving drug for #CysticFibrosis as Vertex Pharmaceuticals monopolises the market and sets extremely high prices. We will continue fighting for affordable access to CF medicines until it is available for every patient, everywhere! health-e.org.za/2023/02/21/cys…

Thank you to Chris Riches and the Daily Express for this excellent coverage of yesterday's hand in UK Prime Minister, calling on the Prime Minister Rishi Sunak to urgently review the outdated prescription charges exemption list. Sir Jeremy Hunt MP Steve Barclay #ReviewTheList

Read: 📚 "One company holds a monopoly on the manufacture and sale of CFTR modulator therapies and is choosing not to make new CF treatments available to people in the developing world through the normal channels..." - that co. is Vertex Pharmaceuticals Link:📲 spotlightnsp.co.za/2023/03/07/ana…

“It is not for the pharma industry to decide who lives and who dies in order to maximise its profits” 👏 Thanks Medicines Law&Policy for this write-up of our Right to Breathe campaign: medicineslawandpolicy.org/2023/02/right-… We demand global access to lifesaving #cysticfibrosis treatment NOW! 🌍

“The number of people with CF who need a lung transplant continues to decrease with only 32 lung transplants for people with CF in 2022 and very few on the wait list. Prior to 2019, about 250 individuals received a lung transplant each year on average.” – Whitney Brown, MD

"The cost of the #cysticfibrosis medicine that his 2-year-old started taking was about to climb from just $180 to a whopping $43,600 in 2023... due to a decision by Vertex Pharmaceuticals to slash the amount of financial assistance that it offers" READ MORE👇 statnews.com/pharmalot/2023…

US company Vertex Pharmaceuticals is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-for-a…

Chelsea Stahl (Spruance) was afraid she wouldn’t get married because of her cystic fibrosis. She shared three approaches that helped her manage her CF while celebrating her dream wedding. on.cff.org/3JelZPc

cysticfibrosisnewstoday.com/news/cf-patien… Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis. Vertex Pharmaceuticals MUST make global access its priority. #CFcantwait.

On #WorldHealthDay please join us and sign the petition if you agree that every #cysticfibrosis patient, everywhere should have access to lifesaving drugs. No family should have to watch their loves-ones suffer and die when lifesaving drugs exist. 🔻🔻🔻 actionnetwork.org/forms/cf-drugs…

Today at the Brazilian Cystic Fibrosis Congress a protest was held at the Vertex Pharmaceuticals stand. Participants are demanding that they lower their prices and enable access to #Trikafta in Brazil and around the world. The global CF community is united and demand action now 👊💊🌎

MAY IS CYSTIC FIBROSIS AWARENESS MONTH! Please share & sign the petition! bit.ly/vsupetition #RightToBreathe #Trikafta4All #NoOneLeftBehind

I just wrote to the CEO of Vertex Pharmaceuticals urging her to stop denying access to lifesaving #cysticfibrosis treatment. Thousands of patients are being left to suffer & die because of Vertex's staggering $326,000 price tag! Take action here: actionnetwork.org/letters/vertex… #RightToBreathe