Hanging out in the bone marrow with Bhavisha Patel 🩸#ASH23

Fabulous presentation by Bhavisha Patel reporting on the inflammatory, hematologic and treatment of our NIH NHLBI #VEXAS cohort. AA&MDSIF ASH #ASH23

Nice talk from Pedro Prata from The EBMT looking at long-term #HSCT outcomes of #SAA patients who had clonal evolution. ASH #ASH23.

Interesting talk from Carlos Bravo-Perez Cleveland Clinic on the incidence of inborn errors of immunity on #BMFsm. ASH #ASH23

Carmelo Gurnari presents The EBMT retrospective data on transplant outcomes in #VEXAS. 2 year OS of 75% with 20-25% GVHD. ASH #ASH23

Prospective data being collected as part of our NIH NHLBI National Cancer Institute clinical trial using #HSCT for #VEXAS. clinicaltrials.gov/study/NCT05027… #ASH23

Registration is Open for the Ninth International Bone Marrow Failure Disease Scientific Symposium! More details and registration: cvent.me/mQOXMZ?locale=…

# VEXAS Comprehensive morphologic characterization of bone marrow biopsy findings in a large cohort of patients with VEXAS syndrome: A single-institution longitudinal study of 111 bone marrow samples from 52 patients academic.oup.com/ajcp/article-a…

Next Week! Hurry to register for the Ninth International Bone Marrow Failure Disease Scientific Symposium March 21-22 in Bethesda, MD with virtual option: cvent.me/mQOXMZ #professionals #research

Happy Holi, to all who observe!

If anyone missed it, see below for virtual viewing of an excellent #BMFsm and #MDSsm conference!

Olivier Kosmider gives a nice overview of the genetics of VEXAS in 2024 at the #VEXAS workshop. Showcasing work from Fernanda Gutierrez-Rodrigues Bhavisha Patel and Dan Landau’s lab.

Excited to see our NIH NHLBI NIAMS Mayo Clinic Comprehensive Cancer Center collaboration looking at #VTE in #VEXAS syndrome out in this issue of Blood Journal! Over 40% of patients had a VTE. yael kusne MD PhD Atefeh Ghorbanzadeh Bhavisha Patel ashpublications.org/blood/article-…

An amazing Day 1 of thought provoking ideas, collaborative efforts, and novel data from around the world in 1st International VEXAS Workshop. Amazing program Sophie Georgin-Lavialle Siniša Savić Peter Grayson Marcela Ferrada Emma M. Groarke Arsene Mekinian Kosmider olivier Benjamin Terrier

Many thanks to our French colleagues for hosting the first international VEXAS Congress in Paris. The only thing that was better than the science was the friendship. We had the best time with you! Sophie Georgin-Lavialle Benjamin Terrier Arsene Mekinian Bhavisha Patel Emma M. Groarke Marcela Ferrada

A look back at the first workshop on #VEXAS syndrome! > 100 participants from 19 countries came in Paris. Thanks to the support of Filière de santé FAI²R. Benjamin Terrier Arsene Mekinian Peter Grayson Marcela Ferrada Kosmider olivier _ERNRITA Rim Bourguiba Ciprian Jurcut

FDA approves imetelstat for low- to intermediate-1 risk myelodysplastic syndromes with transfusion-dependent anemia Find the full FDA announcement here: fda.gov/drugs/resource…

#VEXAS syndrome (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic): clinical review in a rapidly emerging field: Leukemia & Lymphoma: Vol 0, No 0 - Get Access tandfonline.com/doi/full/10.10… Luan Phan Danielle Hammond, MD Emma M. Groarke Mrinal Patnaik Naveen Pemmaraju, MD #endcancer

Excited to see our paper, led by NIAMS colleagues Ed Cowen, Peter Grayson and Isabella Tan, assessing skin manifestations of #VEXAS out today JAMA Dermatology. Skin manifestations commonest and often occur early; derm awareness is key in diagnosis. jamanetwork.com/journals/jamad…

Philosophical on confronting rejection - how can Wittgenstein help us examine the arena of scientific publishing? Check out this excellent article from Neal S Young M.D. NIH NHLBI & William Child University of Oxford exploring this topic through a philosophical lens. ora.ox.ac.uk/objects/uuid:c…