Boisterous Ben
@benboisterous
Ben is 12, he suffers from severe intractable epilepsy. In 2019 Ben was given a UK private prescription for medicinal cannabis. I am campaigning for NHS access.
ID: 1143470224097841152
https://endourpain.org/find-my-mp/ 25-06-2019 10:45:20
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Ben needs the funding he was promised over seven years ago. What is happening in the U.K. is wrong and it’s risking children’s lives. I hope Lucy Powell MP can help us now. 🙏🏻
2018: Promises made. 2025: Promises broken. Families were assured free NHS access to medicinal cannabis, but seven years later, they still wait. With fewer than five prescriptions being issued by the NHS, the gap between promise and reality widens. Sajid Javid, then Home
Ineffective treatment costing the tax payer when the cost could be reduced by using an effective cannabis oil. Ronnie Cowan Tonia Antoniazzi
States in Debs TV interview on YouTube 12 years ago that trials were being conducted in the U.K. to obtain the evidence so why are we still waiting for access 12 years later Wes Streeting ??? lan Byrne MP Ronnie Cowan
Joanne has jumped through every bureaucratic hoop only to find it leading to yet another block in her journey to obtain her child’s medical cannabis access. Boisterous Ben has been using cannabis oils to treat his cerebral palsy clonus, and severe epilepsy since 2016, after
Disabled medical cannabis patients are being excluded from NHS hospitals because no other medicine worked! Wes Streeting what are you doing about this? My son nearly died when he ran out of his prescribed bedica and if we are not there to administer the medication the NHS won’t
With April’s 25% NICE threshold increase for high cost drugs, time to reassess cannabis medications. 7 years, families denied NHS access despite legalisation. Real-world evidence exists. Wes Streeting NICE - will you commit to review? Tonia Antoniazzi Paul Foster MP
Liverpool MP lan Byrne MP says he's having sleepless nights over potentially having to vote against the Hillsborough Law. The stakes are very high if campaigners and Govt can't find a common ground, on how the legal duty of candour should apply to members of the secret service: