Boisterous Ben (@benboisterous) 's Twitter Profile
Boisterous Ben

@benboisterous

Ben is 12, he suffers from severe intractable epilepsy. In 2019 Ben was given a UK private prescription for medicinal cannabis. I am campaigning for NHS access.

ID: 1143470224097841152

linkhttps://endourpain.org/find-my-mp/ calendar_today25-06-2019 10:45:20

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Boisterous Ben (@benboisterous) 's Twitter Profile Photo

Ben needs the funding he was promised over seven years ago. What is happening in the U.K. is wrong and it’s risking children’s lives. I hope Lucy Powell MP can help us now. 🙏🏻

End Our Pain (@end_our_pain) 's Twitter Profile Photo

2018: Promises made. 2025: Promises broken. Families were assured free NHS access to medicinal cannabis, but seven years later, they still wait. With fewer than five prescriptions being issued by the NHS, the gap between promise and reality widens. Sajid Javid, then Home

2018: Promises made.  
2025: Promises broken.

Families were assured free NHS access to medicinal cannabis, but seven years later, they still wait. With fewer than five prescriptions being issued by the NHS, the gap between promise and reality widens. <a href="/sajidjavid/">Sajid Javid</a>, then Home
leafie (@teamleafie) 's Twitter Profile Photo

From learning how to join a clinic to strain reviews that read like wine tasting notes, patients are creating support networks to help others. Looking to find your tribe? Check out our guide to the world of online patient communities. leafie.co.uk/cannabis/onlin…

Dalgety (@dalgety_mc) 's Twitter Profile Photo

Proud to share “Breaking the Grass Ceiling” on making UK medical cannabis credible, compassionate & inclusive. Thank you Anastacia Peters, Heidi Whitman & Ellen. 🔗 dalgetyuk.co.uk/breaking-the-g… #cannabISmedicine #MedCanAwareness #PatientAccess #WomenInCannabis

Proud to share “Breaking the Grass Ceiling” on making UK medical cannabis credible, compassionate &amp; inclusive. Thank you Anastacia Peters, <a href="/HeidiWhitman/">Heidi Whitman</a> &amp; <a href="/EllenJardim/">Ellen</a>.
🔗 dalgetyuk.co.uk/breaking-the-g…

#cannabISmedicine #MedCanAwareness #PatientAccess #WomenInCannabis
Boisterous Ben (@benboisterous) 's Twitter Profile Photo

States in Debs TV interview on YouTube 12 years ago that trials were being conducted in the U.K. to obtain the evidence so why are we still waiting for access 12 years later Wes Streeting ??? lan Byrne MP Ronnie Cowan

End Our Pain (@end_our_pain) 's Twitter Profile Photo

Joanne has jumped through every bureaucratic hoop only to find it leading to yet another block in her journey to obtain her child’s medical cannabis access. Boisterous Ben has been using cannabis oils to treat his cerebral palsy clonus, and severe epilepsy since 2016, after

MedCan (@medcan_za) 's Twitter Profile Photo

Plant-based medicine is science-backed, tested for purity, and prescribed with care — not guesswork. 🌿 Evidence ensures safety, education builds trust, and research replaces stigma with understanding. #cannabISmedicine #MedCanAwareness #PatientAccess

Plant-based medicine is science-backed, tested for purity, and prescribed with care — not guesswork. 🌿
Evidence ensures safety, education builds trust, and research replaces stigma with understanding.
#cannabISmedicine #MedCanAwareness #PatientAccess
End Our Pain (@end_our_pain) 's Twitter Profile Photo

Valid Prescriptions. Denied in Hospital. When a patient lacks capacity, their prescribed medication shouldn’t stop at the hospital door. The Reality Children and adults with valid cannabis prescriptions face dangerous gaps in care when admitted to NHS hospitals: 💔 Parents

Valid Prescriptions. Denied in Hospital.

When a patient lacks capacity, their prescribed medication shouldn’t stop at the hospital door.

The Reality

Children and adults with valid cannabis prescriptions face dangerous gaps in care when admitted to NHS hospitals:

💔 Parents
leafie (@teamleafie) 's Twitter Profile Photo

No two patients are equal, so no two cannabis treatments will work the same. While many in the industry accept that a Dr knows best approach doesn’t always work, some advocate for stronger guidelines. Sam Ashton argues the case for the Hybrid Patient leafie.co.uk/cannabis/opini…

Boisterous Ben (@benboisterous) 's Twitter Profile Photo

We witnessed what happened when our son ran out of his Bedica; he nearly died from back-to-back seizures, with his oxygen levels at 72% despite full oxygen delivery and a heart rate of 218 bpm. I thought the NHS was there to heal people, not to cause their deaths!

Boisterous Ben (@benboisterous) 's Twitter Profile Photo

Disabled medical cannabis patients are being excluded from NHS hospitals because no other medicine worked! Wes Streeting what are you doing about this? My son nearly died when he ran out of his prescribed bedica and if we are not there to administer the medication the NHS won’t

Lyphe Clinic (@lypheclinic) 's Twitter Profile Photo

Compliance, Care & Capability: How Lyphe Leads the Way youtu.be/R-FMYmr73v0?si… via YouTube #CannabISmedicine #MedCanAwareness #PatientAccess #lypheclinic

Boisterous Ben (@benboisterous) 's Twitter Profile Photo

With April’s 25% NICE threshold increase for high cost drugs, time to reassess cannabis medications. 7 years, families denied NHS access despite legalisation. Real-world evidence exists. Wes Streeting NICE - will you commit to review? Tonia Antoniazzi Paul Foster MP

Líse McNally (@lisemcnally) 's Twitter Profile Photo

Liverpool MP lan Byrne MP says he's having sleepless nights over potentially having to vote against the Hillsborough Law. The stakes are very high if campaigners and Govt can't find a common ground, on how the legal duty of candour should apply to members of the secret service:

End Our Pain (@end_our_pain) 's Twitter Profile Photo

Great news from the BNF! Lara raised this important safety issue and we’re pleased to say End Our Pain has now received two responses: one from the MHRA in September 2025, and one from the BNF just this week. We’ll share more on this tomorrow. #MedicalCannabis #EndOurPain

End Our Pain (@end_our_pain) 's Twitter Profile Photo

On this day six years ago, the Health Minister and DHSC assured the End Our Pain campaign that a roundtable meeting with health stakeholders would be set up within two weeks. Here we are, still waiting! It’s incredibly frustrating to see such a crucial promise remain unfulfilled.

Intractable Epilepsy (@intractableuk) 's Twitter Profile Photo

Behind every seizure is a child, a parent, and a fight that never stops 💜 For many families, that fight includes access to treatment 🌿 This #PurpleDay we raise awareness for epilepsy and the reality families face daily. Why is access still a battle? ⬇️

Behind every seizure is a child, a parent, and a fight that never stops 💜

For many families, that fight includes access to treatment 🌿

This #PurpleDay we raise awareness for epilepsy and the reality families face daily.

Why is access still a battle? ⬇️