🇲🇽 In the last of a three-part series, people with neuroimmune diseases in Mexico speak up about the wide-ranging consequences of the disease on their life. 🤔 Common themes include exercise, gender bias, and domestic abuse. phoenixrising.me/myalgic-enceph…

#MEAwarenessHour 🇲🇽 In the first of a three-part series, people describe the challenges of living with #MEcfs or #fibromialgia in Mexico. 🤔 The science is discussed, & we try to understand why the latest science is not informing proper medical treatment.phoenixrising.me/myalgic-enceph…

🇲🇽 In Mexico, patients with #LongCOVID are shocked by the new reality they face. 🤔 We spoke with Covid Persistente México Comunidad Solidaria to learn more. phoenixrising.me/myalgic-enceph…

Bhupesh K Prusty Where might we be today with #MECFS research if we had looked at brain biopsies back in 1984?

Some scientific discoveries, unfortunately, are only possible by examining dead patients. There have been very few public autopsy reports on #MEcfs patients, but these few reports may reveal significant findings: forums.phoenixrising.me/threads/autops…

🤔 Confused about #autoimmunity in #MEcfs? You're not alone! 🗣️ We spoke with Carmen Scheibenbogen to try to understand where the science currently stands... phoenixrising.me/myalgic-enceph…

🎆 Happy New Year (early) 🎆 We end this year with a few quotes from #MEcfs expert Dr. Komaroff: Quote 1 "I think most people in this field think that [...] the symptoms are caused primarily by brain abnormalities, that include [...] neuroinflammation..."phoenixrising.me/myalgic-enceph…

🎆 Happy New Year (early) 🎆 We end this year with quotes from #MEcfs expert Dr. Komaroff: Quote 2 "If [neuroinflammation] were confirmed by multiple other investigators it would, for me, say there is a low-grade, chronic encephalitis in these patients." phoenixrising.me/myalgic-enceph…

🎆Happy New Year (early) Lastly, Quote 3 from #MEcfs expert Dr. Komaroff: "Brain MRI has shown elevated levels of lactic acid consistent with oxidative stress... [Oxidative stress] may be a marker for […] inflammation in response to infection or injury."phoenixrising.me/myalgic-enceph…

👩‍🔬 From the CDC to Solve ME/CFS Initiative to Bateman Horne Center, Suzanne D Vernon has been trying to crack the case of #MEcfs for over 25 years. 🗣️ We spoke with her to learn more: phoenixrising.me/myalgic-enceph…

🫤 We all know the stigma of #MEcfs all too well. But it's not the only stigmatized neurological illness triggered by infection. 😯 Hear a story about a boy suffering from PANS (Pediatric Acute-onset Neurological Syndrome): #pans #pandas #panspandashour forums.phoenixrising.me/threads/a-boy-…