🗣️Join the conversation on treatment preferences and management strategies in MCDS-Therapy 's survey!

You have until the 30th April to have your say... ⏰

Find out more 👇

Are you or your child living with a rare bone disease, musculoskeletal condition, or a specific childhood cancer? We want to hear from you!

Make your voice heard on treatment preferences.

The survey takes 30 minutes to complete and closes on 30th April.

ow.ly/RukQ50QT7IJ

𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝘄𝗼𝗿𝗸𝘀𝗵𝗼𝗽: 𝗖𝗿𝗼𝘀𝘀-𝗯𝗼𝗿𝗱𝗲𝗿 𝗵𝗲𝗮𝗹𝘁𝗵𝗰𝗮𝗿𝗲: 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀' 𝗿𝗶𝗴𝗵𝘁𝘀 𝗮𝗻𝗱 𝗰𝗼𝗼𝗽𝗲𝗿𝗮𝘁𝗶𝗼𝗻 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗘𝗨 𝗠𝗲𝗺𝗯𝗲𝗿 𝗦𝘁𝗮𝘁𝗲𝘀

⏰11 April 2024
📍 Rome (Italy)
🔗 bit.ly/4aSdiXj

Blue-tiful 🪻💙

I can’t actually believe that I made this list but feeling very proud to be amongst such amazing people #RadioTimesTV100 #num26

youtu.be/i0Mfi_I1hUg?si…
Great educational work from our animation team! Please share with newly diagnosed families or anyone else wanting to learn more about the most common form of short stature #skeletaldysplasia #achondroplasia
CU Pediatric Orthopedic Surgery
Children’s Colorado Research and Innovation

Yukiko, an eight-year-old with achondroplasia, and her mother, Yukie, share their journey of living with achondroplasia and the need to raise awareness of rare conditions around the world. Hear more of their story: bit.ly/3Ur7crT

The EAF Spring Workshop is tomorrow! 🚨

Interested in exploring outcome measures in #Achondroplasia ?

Discover insights from our faculty, including Chair Dr Melita Irving. 📝

Last chance to register! ⬇️⬇️⬇️

us02web.zoom.us/meeting/regist…

DSAuk members feeling inspired after an incredible day at Bath University's Paralympic Potential event! 🌟 Huge thanks to Paralympics GB for this amazing opportunity to try out various sports alongside phenomenal Paralympians and coaches. 💪🏅 #BeTheFuture

Saved! 📅

⏳ Only 3 days left to apply! Join IRDiRC's Interdisciplinary Scientific Committee and be part of groundbreaking projects! 🚀 4 positions available starting May. Seeking diverse experts, especially from Middle East, Africa, North/South America.
More info: irdirc.org/ongoing-call-f…

REMEDi4ALL invites all stakeholders in the Osteogenesis Imperfecta (OI) research community to an event on 13 June in Bologna, Italy that will discuss & develop patient-centric approaches to research & medicines development for OI.

👉 Find out more here: remedi4all.org/event/multi-st…

Register now! 📝

Join us for our virtual workshop on 9th April from 14:00 to 17:00 CET, Assessing Outcomes in a New Era of Achondroplasia Treatment Don't miss out on this interactive session!

us02web.zoom.us/meeting/regist…

Exciting news!!

Join the global AKU patient registry to influence rare bone disease research 🦴

A kind, highly experienced clinician and a superb diagnostician defining the future of genetics Melita Irving the topic of your next talk could be : “Clinical Trials : ask me anything” Evelina London GSTT_SpecAmbulatory Guy's and St Thomas' Research