Last week Patients United2EndMND supporters Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Ed Slater & Jo, Marcus & Louise Stewart asked vital questions of 4 UK #Mirocals Consortium members. Pls go to united2endmnd.org/support-miroca… to read & sign to support our plea for transparency

2 years since #Mirocals trial ended and still no results and still no answers from Consortium members.

#attackmnd

Artists Against MND is a passionate community of creative individuals dedicated to making a difference in the fight against MND.

Every penny goes straight to fund research through Darby Rimmer MND Foundation and The Mel Evans MBE Foundation.

@artistsagainstmnd
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Huge thanks Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Jo & Ed Slater Marcus & Louise Stewart for sending open letter requesting TRANSPARENCY on commercial contracts for #Mirocals to involved scientists & MND Association To show support please see united2endmnd.org/support-miroca…

Tanya Curry Daniel Boffey It's also vital Patients United2EndMND MotorNeuroneDisease challenge 'accepted ways' of accessing new treatments & demand transparency required of a taxpayer/charity funded trial like #Mirocals , especially when our lead charity is a member of Consortium. MND Association King's MND Centre SussexNeuro

So true and agree Tanya Curry this needs addressing urgently for those who are eligible for Tofersen. Do you have any thoughts on being denied a second treatment for mnd (Proleukin) due to MND Association and other Consortium members agreeing a deal with ILTOO as well?

#attackmnd

2 years ago today we lost our friend and co-founder Chris Rimmer, yet his fight and determination is still at the heart of everything we do.

You are still inspiring us all. We all miss you mate ❤️

#attackmnd
#darbyrimmerMNDfoundation
#MNDresearch
#ChrisRimmer

People with MND write to Rt Hon Andrew Stephenson MP urging him to act on the decision of NICE to assess #Tofersen through a pathway that means this life changing treatment is unlikely to be approved. Please listen to us 🙏

united2endmnd.org/2024/04/13/let…

Another 3 months & still no results or transparency on commercial arrangements for taxpayer/charity donor funded #Mirocals trial. @MNDpatients know results may not be +ve but pls give clarity MND Association Neuroscience Institute King's MND Centre SussexNeuro united2endmnd.org/2024/01/08/mir… Darby Rimmer MND Foundation

Absolutely thrilled to hear that March of the Day has smashed the £200,000 barrier for Darby Rimmer MND Foundation Absolutely delighted for Stephen and Marcus — and imagining how proud Chris Rimmer would be. Incredible work by them, the heroic Mike Wilson* and many others #marchoftheday #MND

Pls share. We need DHSC Media Centre Department for Science, Innovation and Technology to listen urgently for MotorNeuroneDisease like Eleanor Dalley united2endmnd.org/2024/04/13/let…. Also for future of precision medicine in UK. BBC Breakfast Claire Ryan Fergus Walsh Huge thanks for your support Darby Rimmer MND Foundation Geoff Burrow

Unbelievable news this morning. The original target for #MarchOfTheDay was £50k. Smashed that. Amazing support for Darby Rimmer MND Foundation

John McGinlay Josh Wilson Kevin Darby Steph Houghton MBE Len Houghton Jamie Hoyland Martin Paul Martyn Clarke Marty Royal - Sports Massage Therapy & Recovery Oliver Kay

Thank you to everyone STFC Official Supporters Club for your incredible support and generosity.

#attackmnd

We're sad to hear of the death of James Clarke & our thoughts are with his friends & family. James was a great supporter of ours & a Doddie Champion too.

His efforts to drive MND research were tireless & he accomplished a huge amount.

Full statement:
myname5doddie.co.uk/whats-on/artic…

#FansTo5k helped fans from inactivity to 5k fit, now those fans are setting their sights at the #Bristol10k & raising💰for Darby Rimmer MND Foundation in support of Marcus Stewart
Clubs connect with fans✅
Fans ⬆️ healthy & active✅
Charity projects supported✅
#EveryoneWins #HealthyRivalry

Our football shirts auction closes tonight at 7pm.

Don't miss out, visit the link below to see all shirts on auction

32auctions.com/organizations/…

@liverpoolfc @sunderlandafcofficial @nufc @laticsofficial @sheffieldunited @officialbwfc @southamptonfc @redsmail

The Chris Rimmer Grant and your support making a difference

“The grant received from Darby Rimmer MND foundation has massively helped my family in the hardest year of my life.”

buff.ly/3TOCZks

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#chrisrimmergrant
#darbyrimmermndfoundation

If we had transparency we've requested for months on process followed by #Mirocals Consortium to select commercial partner #Iltoo , it would help. Why a small company? Why a NEW drug when trial drug #Proleukin already available? Lessons MUST be learned for future trials-see image

Broken record

Whatever the data will be, will be. It’s the processes that have got us to this situation that is more worrying. Serious lessons need to be learned.

#attackmnd

Darby Rimmer MND Foundation funding advances the potential for repurposing existing drugs for MND

buff.ly/4aj6ty3

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#attackmnd