65MilesIn65Hours4CF (@65hoursforcf) 's Twitter Profile
65MilesIn65Hours4CF

@65hoursforcf

Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH
#CureCF

ID: 1634595555291611137

linkhttps://passion.cff.org/65milesin65hoursforcf calendar_today11-03-2023 16:42:24

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Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer. on.cff.org/3U7H4A0

Vertex Pharmaceuticals (@vertexpharma) 's Twitter Profile Photo

As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF

As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF
65MilesIn65Hours4CF (@65hoursforcf) 's Twitter Profile Photo

May is Cystic Fibrosis Awareness Month. In August, I'll be running 6.5 miles every 6.5 hours for 65 hours to raise $1,000,000 for the Cystic Fibrosis Foundation . #CureCF

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

Cystic fibrosis is a progressive, genetic disease. People with CF have inherited two copies of the defective CF gene — one copy from each parent. Both parents must have at least one copy of the defective gene. #CFAwarenessMonth

65MilesIn65Hours4CF (@65hoursforcf) 's Twitter Profile Photo

Let the training begin. Long run Monday! In August, I hit the streets for my 6.5 x 6.5 x 65 passion fundraiser for the Cystic Fibrosis Foundation. ✅️6.5 Miles. ✅️Every 6.5 hours. ✅️For 65 hours. ✅️For CF. Follow me for more updates on how to support and participate. 🙏

Let the training begin. Long run Monday!
In August, I hit the streets for my 6.5 x 6.5 x 65 passion fundraiser for the <a href="/CF_Foundation/">Cystic Fibrosis Foundation</a>.
✅️6.5 Miles. 
✅️Every 6.5 hours.
✅️For 65 hours.
✅️For CF.
Follow me for more updates on how to support and participate. 🙏