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John thought he had a hernai but it was #pseudomyxomaperitonei #appendixcancer bit.ly/2NMHXgn

So pleased to share that we're supporting exciting new research into the biology of #pseudomyxomaperitonei (PMP). The study is collaboration between PMI Basingstoke and Cancer Sciences Unit, University of Southampton More @ link ow.ly/huA050Bpgjz #appendixcancer #pmpsurvivor

"Stop stressing. Stress can kill you. Don’t let others stress you out. I have become very protective of my emotions." ~ Becky bit.ly/31jEB8U

How many twenty year olds can expect to be a cancer patient? Then you find out it's a rare cancer. That's how SLee13 felt. pseudomyxomasurvivor.org/too-young-for-… #appendixcancer #pseudomyxomaperitonei j.mp/3kjgq43

"I’m getting stronger every day physically. I put on a few pounds and the feeling of tightness in my abdomen has subsided." ~ Marty bit.ly/2JNBZLl

"Men can be stubborn when it comes to admitting they need to see a doctor." ~ Richard bit.ly/richardpmp

So excited to share our upcoming workshops for those being affected by #pseudomyxomaperitonei and #appendixcancer. Online and facilitated by Dr Jason Spendelow and Pseudomyxoma Survivor. Follow the link to find out more, including how to book your reservation - mailchi.mp/pseudomyxomasu…

Are you excited by the work Pseudomyxoma Survivor does? Do you share our values? Think you can take active part in the work of our Board? We want to hear from you! pseudomyxomasurvivor.org/were-looking-f… #giveyourtime #dosomegood #pseudomyxomaperitonei #appendixcancer #trustees

Pilot RCT shows prehab with wearables improves functional capacity before CRS/HIPEC & major cancer surgery. Thanks ⁦Pseudomyxoma Survivor⁩. Planning a multicentre RCT. Please get in touch if interested. ⁦prehab4cancer⁩ ⁦⁦⁦⁦SoMe4Peritoneum⁩ link.springer.com/article/10.100…

Organisations can't prevent use of accessible bathrooms as not all disabilities are visible. @invisibledisab2 Hidden Disabilities Deborah James @so_bad_ass Irish Cancer Society Pseudomyxoma Survivor Appendix Cancer PMP Research Foundation Appendix Cancer/PMP Crohn's & Colitis UK Bowel Cancer UK @BowelDiseaseUK irishtimes.com/news/ireland/i…

Why Me? We all ask ourselves this when we receive a diagnosis of #pseudomyxomaperitonei or #appendixcancer. If you've looked after yourself, eaten well and are a non-smoking, teetotaller marathon runner, you must feel particularly perplexed. #pmpsurvivor #pmpcancer #pmpawareness

Happiness is a choice ~ Valerie Bertinelli

These lyrics from a song by Sara Bareilles remind us that sometimes we bottle up our feelings and it can be better to find someone to share just how brave you are by discussing them instead. Do you have someone to be brave with? #appendixcancer #pmpsurvivor #peudomyxomaperitonei

It is with a heavy heart that we share that our friend and colleague, Dr Georgina Morgan has died. We have been honoured to have Georgina as a Trustee here at Pseudomyxoma Survivor for over two years. - Susan, Chair Pseudomyxoma Survivor pseudomyxomasurvivor.org/georgina/

"You gotta be bad you gotta be bold You gotta be wiser you gotta be hard You gotta be tough you gotta be stronger" Whilst we don't hold with being bad, these lyrics from Des'ree sum up for us how we have to be as patients... How have you become stronger since your diagnosis?

..."you gotta be bold You gotta be wiser..." as patients, we have to be bold and ask those questions and be wiser and learn about our disease so that we can be better advoctes for our own health care. #appendixcancer #pmpsurvivor #pseudomyxomasurvivor

"...You gotta be hard..." You have to be hard on those around you and times and learn when to just say no. We can't do everything and it isn't a failing to admit that. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

"...you gotta be tough..." No one said this was going to be easy, you need to be tough to dealwith it but our community is here to help and support you. #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

By being bold, wise, hard and tough, we will be stronger. #withyoueverystepoftheway #appendixcancer #pmpsurvivor #pseudomyxomaperitonei

If you love our work then tell the world! Won’t you help us raise visibility for our work by posting a brief story of your experience with us? It’s easy and only takes a few minutes. Go here to get started: greatnonprofits.org/reviews/write/…