“Grading foveal hypoplasia is correlated to low vision and can help in deciding whether further treatments or investigations are necessary to improve patients VA” Prof. Dominique Bremond-Gignac , University hospital Necker enfants malades, Paris #europeananiridiaconference2024

“Consequently, I would like to reiterate that the decision to perform keratoplasty in AAK patients is challenging and must be individually considered. The patient needs to understand what he is up to!” prof. Francisco Figueiredo, Newcastle university, UK #europeananiridiaconf

“Children with PAX6 related aniridia are likely to be at increased risk of neurodevelopmental disorders than their sighted peers even when the effects of visual impairment are accounted for” prof. Mariya Moosajee comments the results of her research#europeananiridiaconference2024

We just had a very interesting Q&A session with profesors Peter Netland, Mariya Moosajee, Sophie Valleix & James Lauderdale. Doctors answered patient’s questions on glaucoma, cornea and genetic topics #europeananiridiaconference2024

Todays sesion on new therapies started with prof. Elizabeth M.Simpson, University of British Columbia, Canada very interesting presentation on “Gene editing & nonsense suppression therapy approaches for aniridia” #europeananiridiaconference2024 #genetherapies #aniridia

“ Sutureless AMT are a promising tool for specialised care - potentially prevent Aniridia-Associated OSD progression” conclusion by prof. Andrew Hopkinson, University of Nottingham, UK #europeananiridiaconference2024 #amnioticmembrane #aniridia

Take home message from prof. Tor Paaske Utheim, MD, Oslo university hospital, Norway concerning dry eye disease at the last day of 7th European Aniridia conference in Stockholm #europeananiridiaconference2024 #takehomemessage #aniridia

We are pleased to present the European conference summary for patients, meticulously prepared by Prof. Neil Lagali. aniridia.eu/2024/06/11/sum… This conference has been exceptional and immensely valuable! Conference recordings will be available on AE youtube channel soon!

During European Aniridia Leadership Academy (EALA) in Stockholm, Aniridia Europe, organized 1st multiplier event for the Erasmus+ project “Together for inclusion: young people with low vision for active participation and associationism around the world” #sighttogether #Erasmus

Let’s mark Aniridia Day and create a collective impact ! Here are a few ways you can join us in this campaign: Support AE projects, consider participating in research trials, raise awareness, volunteer. WE CAN DO IT TOGETHER! 👉aniridia.eu/about-us/suppo… #AniridiaDay

On Aniridia Day 2024 we are happy to share news from our fellow association ANA , as they are launching EYEris, the Aniridia Patient Registry ! The registry will foster a better understanding of all aspects of the condition ! More info: aniridiana.org/eyeris-aniridi…

We are happy to share the news from our colleagues at IWSA that the WAGR Weekend US 2024 in California was a great success, as announced in their latest newsletter. The event received positive feedback and was met with great enthusiasm from all participants.

📢We are excited to announce you, that all the recordings of the 7th European Aniridia Conference 2024 are available on Aniridia Europe’s YouTube channel!👉▶️aniridia.eu/2024/07/31/rec…

✅Check out some awesome tips on devices that can make studying easier for young people with low vision! 🤝Sharing your own experiences can be one of the most powerful ways to promote inclusion and make a real difference. Let us know your thoughts in the comments below👇

Today it’s WAGR Awareness Day! We are supporting our colleagues from IWSA whose hard work is dedicated to improve the lives of individuals with WAGR syndrome. We all know that INFORMATION IS POWER! So we would like to share IWSA updated information on WAGR related topics. #WAGR

Join ANA and Dr. John Freeman as he discusses the aniridic cornea, starting with an introduction to basic eye anatomy and how aniridia affects the cornea. 📅 Date: Wednesday, February 12 ⏰ Time: 7:30 PM EST( 1:30AM CEST) 🔗 Sign up now:zoom.us/meeting/regist…

Save the date ❗️8th European Aniridia Conference will take place in Sofia, Bulgaria, from April 17 to 19, 2026. Join us to exchange insights, share experiences, and foster collaborations to advance research. For more information and updates, please visit: aniridiaconference.org/eac2026/

🌟 WAGR Weekend 2025 🌟 📍 Arundel, West Sussex, UK We’re excited to help spread the word about this amazing event for the WAGR community! 💙 ✨ Connect with families 🧠 Hear from UK experts 📢 Get IWSA updates 🌊 Enjoy a beautiful weekend 🔗 More info: wagr.org/WW25

🌞 June 21 is #InternationalAniridiaDay! We’re proud to support the #RestoreVision project – EU-funded research to develop treatments for rare eye diseases like aniridia! Together, we’re building a brighter future 🔗 youtu.be/1jPn-OjnOFA #AniridiaDay #AniridiaEurope #research

👁️ AE is in Alicante for the 2nd #RESTOREVISION Consortium Meeting! We’re proud to bring the patient voice into this EU-funded effort to develop treatments for #aniridia and other rare eye diseases 🔗 Follow the project: restorevision-project.eu RestoreVision 🇪🇺 Funded by the EU