We’re working with NHSBT on the review of the National Liver Offering Scheme (NLOS). 👉 If you’ve had a liver transplant, are waiting for one, or are a family member, share your experiences in the NLOS survey. Find out more: britishlivertrust.org.uk/your-voice-mat…

Thank you to everyone who participated in the 7th Global Research Conference and 10th Patient Congress in Lisbon, Portugal. Your presence, insights, and commitment made this gathering of the global Alpha-1 community truly impactful. 🌎

Your liver is amazing, it does loads of important tasks to keep you well. A healthy diet is great way to give it the fuel it needs. Small wins can help you to look after your liver. Read more: britishlivertrust.org.uk/world-liver-da… #WorldLiverDay

Alpha-1 doesn’t just affect the lungs, it can impact the liver, too. On #WorldLiverDay, we’re shining a light on Alpha-1 liver disease and the importance of early diagnosis and support. To learn more about Alpha-1 and the liver, visit: alpha1.org/liver-disease/ #Alpha1Awareness

🧬#WorldLiverDay Your liver does 500+ vital jobs. Don’t take it for granted! For people with Alpha-1 Antitrypsin Deficiency, liver disease can be serious & silent. 🩺 Early detection matters. Ask your doctor about AATD. #LiverHealth #Alpha1 #Alpha1awareness

🐰🌸 Wishing our Alpha-1 UK community a joyful and peaceful Easter! Whether you're spending it with family, friends, or having a quiet moment to yourself — we’re thinking of you 💜 Thank you for being part of our journey. #Alpha1UK #HappyEaster #RareButReal

Today is European Alpha-1 Awareness Day! #April25🛡️ What if the Viking legacy left you more than bravery? Alpha-1 is a hereditary condition that can affect your lungs & liver. 📷 Early diagnosis saves lives. Learn more: alpha1awarenessday.org #Alpha1 #TheVikingLegacy

🏹 Could #Alpha1AntitrypsinDeficiency (AATD) be part of your 𝑽𝒊𝒌𝒊𝒏𝒈 𝒉𝒆𝒓𝒊𝒕𝒂𝒈𝒆? This rare genetic condition affects lungs & liver — and often goes undiagnosed. 📷 alpha1awarenessday.org #UnitedForAlpha1 #LungHealth #Alpha1Awareness #AATD

Call for Proposals – ERN RARE-LIVER Workshops 2026 We're inviting Disease Working Groups to submit ideas for on-site workshops on rare liver diseases. 📅 Deadline: 30 May 2025 🔗 Info: rare-liver.eu/news/detail/er… 📝 Form: rare-liver.eu/media/proposal… #ERNRARELIVER #RareLiverDiseases

📣 May is #Ichthyosis Awareness Month! ✨ Let’s take time to raise awareness about ichthyosis, a rare and often misunderstood skin condition. 💬 Behind the visible symptoms are stories of courage, daily challenges, and incredible strength. #IAM2025 #ichthyosisawareness

ERN RARE-LIVER is now on Instagram 🎉 Follow us for updates on rare liver disease research 🔬, insights from our European Reference Network 🧩, upcoming events 🗓️, and behind-the-scenes stories 👥 from our team. 📱 Scan & follow: @ernrare_liver See you on Instagram! 👋

On World Asthma Day 2025, the call to action is clear: ‘Make Inhaled Treatments Accessible for ALL’. Most asthma deaths are preventable. Inhaled corticosteroid-containing medications are essential for managing asthma and preventing attacks, yet access to these proven treatments

This #WorldAsthmaDay, ELF supports Global Initiative for Asthma (GINA) 's call for accessible inhalers for all. Inhalers are an important tool to manage #asthma but many still face barriers. 💬 Dominique and Hilary from ELF's Asthma PAG shared their insights. 🔗 Learn more: europeanlung.org/en/information…

Today is World Asthma Day 2025 This year’s theme from @GINAsthma is: “Make Inhaled Treatments Accessible for ALL” Learn more at: ginasthma.org/wad-2025 #WorldAsthmaDay #AsthmaAwareness #Alpha1UK #GINAAsthma #LungHealth #MakeInhaledTreatmentsAccessible #AATD #RareDiseaseAwareness

A1F is proud to attend and exhibit at the European Association for the Study of the Liver (EASL) Congress 2025. The congress, taking place from May 7-10 in Amsterdam and online, brings together over 8,000 international delegates for unparalleled scientific exchange,

📣 Tomorrow’s the day! We’re excited to join #IPPC2025 and connect with inspiring advocates and leaders working to improve access to plasma-derived medicines. 🎤 Our President, 𝗙𝗲𝗿𝗻𝗮𝗻𝗱𝗮 𝗔𝘀𝗽𝗶𝗹𝗰𝗵𝗲 𝗙𝗲𝗿𝗿𝗼, will be speaking on the panel: "Patient-Driven Progress:

📢 Join the next UKODTRN public webinar. 28th May 6-7pm Researchers want to find out whether an exercise & motivation programme could help to improve the quality of life in people who have a liver transplant. Come along to find out what it’s all about, and ask any questions

🛡️ Did you know Alpha-1 Antitrypsin Deficiency (AATD) might trace back to our #Viking heritage? Symptoms in adults may include: Jaundice , Itching, Fatigue A simple blood test can help. alpha1awarenessday.org #TheVikingLegacy #UnitedForAlpha1 #LiverHealth #RareDiseases #Alpha1