Learning from Lives and Deaths - LeDeR researchers (@aliveleder) 's Twitter Profile
Learning from Lives and Deaths - LeDeR researchers

@aliveleder

Our team aims to help improve healthcare for people with a learning disability and/or autism. We're from KCL and share work with researchers from UCLan + KU.

ID: 1488156170497970181

linkhttps://www.kcl.ac.uk/research/leder calendar_today31-01-2022 14:27:00

471 Tweet

800 Followers

112 Following

Rory Sheehan (@dr_rorysheehan) 's Twitter Profile Photo

We’re hosting the 21st Seattle Club Conference for Research in Intellectual & Developmental Disabilities King's College London on 12-13 December. Great opportunity to share your work & meet other researchers - submit abstracts by 20 Sept, bookings open Oct 📝🎟️ estore.kcl.ac.uk/conferences-an…

Deborah Chinn (@deborah_chinn) 's Twitter Profile Photo

Call for proposals for the UK 2024 Seattle Club Conference for intellectual and developmental disability research is now open! Go to tinyurl.com/326wkv6m to submit a proposal. Two themes this year - health inequalities and inclusive research.

Call for proposals for the UK 2024 Seattle Club Conference for intellectual and developmental disability research is now open!  Go to tinyurl.com/326wkv6m to submit a proposal.  Two themes this year - health inequalities and inclusive research.
The Victoria & Stuart Project (@victstuproject) 's Twitter Profile Photo

After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections youtu.be/8P-6Z6rRlm8?si… Leon, you’ve been wonderful!!!

After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections
youtu.be/8P-6Z6rRlm8?si…
Leon, you’ve been wonderful!!!
Irene Tuffrey-Wijne (@tuffreywijne) 's Twitter Profile Photo

Fascinating and important paper. How “not doing” more medical interventions is part of “doing” in end of life care - and how palliative care staff intervene for the patient’s benefit, different from conventional medical interventionism Kathryn Mannix

Rory Sheehan (@dr_rorysheehan) 's Twitter Profile Photo

Remember to submit abstracts to Seattle Club conference - deadline this Friday 20th Sept! See link in tweet below. You must be named on an abstract to attend - especially good for PhD students and ECRs!

Learning from Lives and Deaths - LeDeR researchers (@aliveleder) 's Twitter Profile Photo

LeDeR data: 15% of learning disability bowel cancer deaths occurred under age 50. Current screening starts at 54. Our research recommends starting at 45 for people with LD. See our international comparison, Bowel cancer in people with LD: tinyurl.com/y83n5fyj Institute of Psychiatry, Psychology & Neuroscience

Learning from Lives and Deaths - LeDeR researchers (@aliveleder) 's Twitter Profile Photo

LeDeR research reveals 50+% of people with a learning disability were prescribed multiple constipation-causing medications. This serious issue often goes unrecognised and untreated. Full findings in our deep dive on constipation: tinyurl.com/hkrn522d Institute of Psychiatry, Psychology & Neuroscience #DoYouSeeMe

Learning from Lives and Deaths - LeDeR researchers (@aliveleder) 's Twitter Profile Photo

Our open-access research examines medication-induced constipation in people with learning disabilities, a preventable risk affecting healthcare outcomes. Read the full paper: journals.sagepub.com/doi/10.1177/17… #LeDeR #DoYouSeeMe #LDWeek2025 Institute of Psychiatry, Psychology & Neuroscience

Learning from Lives and Deaths - LeDeR researchers (@aliveleder) 's Twitter Profile Photo

Deaths from pneumonia in people with LD are unnecessarily high. Key risk factors: poor mobility, swallowing difficulties & heart conditions. Our research shows these vulnerable groups need proactive monitoring, not reactive care tinyurl.com/5n8pv6yh Institute of Psychiatry, Psychology & Neuroscience #DoYouSeeMe