Today is #RareDiseaseDay2022. It’s a day to raise awareness for the 300 million people worldwide with over 6000 rare diseases. At Altum, we're proud to know and work with many rare disease funders on #ProposalCentral. NORD CZI Science TESS Research Foundation Official ALGSA Tweet Cure CMD

#RareDiseaseDay !! Read, "Action in Advocacy: A 3 Minute Guide," written by Roberta Smith, President of the Official ALGSA Tweet Click the link below to read! rd-360.com/alagille-syndr… #raredisease360 #raredisease #rare #disease #diseases #rarediseaseawareness

It's #RareDiseaseDay, and we will once again be sharing #RareDiseaseTruth posts from our Alagille Syndrome Alliance community throughout the day. We are starting off the day with a truth about #AlagilleSyndrome! #RareDiseaseTruth #ALGSA #ALGSAware #RareDiseaseDay

#RareDiseaseTruth #ALGSA #ALGSAware #RareDiseaseDay

#RareDiseaseTruth #ALGSA #ALGSAware #RareDiseaseDay

#RareDiseaseTruth #ALGSA #ALGSAware #AlagilleSyndromeAlliance #RareDiseaseDay

#RareDiseaseTruth #ALGSA #ALGSAware #AlagilleSyndromeAlliance #RareDiseaseDay

#RareDiseaseTruth #ALGSA #ALGSAware #AlagilleSyndrome #RareDiseaseDay

.Official ALGSA Tweet has announced a $150,000 scientific research grant RFP, an award given over two years and developed to create more opportunities for #Alagille focused science. The application deadline is on 4/30. For more information visit here: bit.ly/3hdZnB1 #ALGS

10th International Symposium & Scientific Meeting on Alagille Syndrome presented by Mirum Pharmaceuticals and @AlbireoPharma! Details, agendas, registration and travel scholarship application at alagille.org. #alagillesyndrome #algs #raredisease #rarediseaseresearch

Among the many symptoms associated with Alagille syndrome, pruritus is one of the most common and persistent. Read about "Relieving the ‘Devastating’ Severe Itching Faced by Patients With Alagille Syndrome:" buff.ly/3tJi5az #ALGS #AlagilleSyndrome

Thank you Altum for these incredible platforms. Excited to share the impact with other #raredisease nonprofit leaders!

President of the Official ALGSA Tweet and mom to a teen with #AlagilleSyndrome, Roberta shares her experience of becoming a “parent expert” on her daughter’s condition, the emotional “burden of disease” and solace and friendship she found in the ALGSA Community bit.ly/OurBestIsEnough

The data we can find through Insights is helping us streamline connections and offer quicker support to researchers in our field. Thank you, Altum, for this incredible tool!

Register today and learn how Altum is helping us build a powerful scientific network. #raredisease #science

It’s been an amazing 10th International Symposium & Scientific Meeting on #AlagilleSyndrome. Thank you to each and every family and stakeholder for attending, sharing, and inspiring! Thank you Mirum Pharmaceuticals @AlbireoPharma Travere Therapeutics and all of our sponsors!

Tomorrow is the day! If you don’t know about Altum join us tomorrow for this exciting webinar! #altum and #algsa #insights #scientificnetwork

We are thrilled to announce this year's recipient of the 2022 ALGSA Collaborative Scientific Research Grant, funded by ALGSA initiatives and private donors. Congratulations Noelle Ebel! We are excited about Dr. Ebel's work and her dedication to the #AlagilleSyndrome community!

#RareDisease #nonprofit leaders - Altum’s ProposalCentral and Insights can make a huge impact in building a scientific network! Replay of our talk available now.

Thank you @AlbireoPharma for this incredible gift to our community! What a great time filled with families and science!