Santa Fe New Mexican: 'Coming Sunday and Monday' 'Focusing on long COVID in Santa Fe' 'Experts from around the world in long COVID and similar post-acute infection syndromes will gather in Santa Fe from Aug. 10 to 13 for a medical symposium...' santafenewmexican.com/news/local_new…

When will world elected leaders admit to the public what their advisors told them for years? Their gamble to short the economy before Long Covid tanks it was a very short short — the number of people with Long Covid after 3-4 infections is so high, the economy can’t sustain it

Just watched Materialists with Pedro Pascal Remembered in 2019 when Pedro Pascal read this moving essay on Modern Love’s (NYT) podcast: “Love Means Never Having to Say…Anything” on Severe ME/CFS & Love by Jamison Hill youtu.be/uSueeafJgdQ?fe…

Patient-Led Research Collaborative Patient-Led Research Collaborative 2025 Webinar youtube.com/watch?v=eqV7Me… Presents the latest progress from the 10 studies funded by the Patient-Led Research Fund — biomedical research projects selected by a panel of patient-researchers. #LongCovid #MEcfs

Medicare for All isn’t a wild left fantasy. It’s the bare minimum we need to survive the US. So why are we still acting like it’s too much to ask? Or expect? Stop letting Dems shrink the horizon. M4A is the floor. What would you want M4A to make possible—beyond just surviving?

Based on the draft agenda shared yesterday, it seems that RECOVER-TLC has selected the following 4 agents to trial next for Long COVID treatment. Low-Dose Naltrexone Baricitinib GLP-1 Receptor Agonists Stellate Ganglion Block What are your thoughts? view.officeapps.live.com/op/view.aspx?s…

Happy DecodeME eve everyone 💌 Sitting in anticipation for whatever it will bring, in hope (mostly)

1) Today's a special day as the ME/CFS community is looking forward to the release of the DecodeME results at 7 PM (British Summer Time). Here are some thoughts about what we might expect.

Tulane researchers found that even 18 weeks after infection, SARS-CoV-2 caused lasting brain inflammation and metabolic disruption in African green monkeys, with cognitive and taste deficits persisting despite no detectable virus in the brain. researchsquare.com/article/rs-713…

'Long Covid Patients Can Sign up for Remote Clinical Trial Notification, Announces CareEvolution' 'At-home participation in a study by Scripps Research and Schmidt Initiative..' “We need aggressive, rapid efforts to turn the tide on this very..." firstwordpharma.com/story/5986243

RECOVER: 'Researchers invited to submit proposals for new round of ancillary pathobiology studies' 'The NIH invites researchers—both within and outside of RECOVER—to submit proposals for a new round of funded ancillary pathobiology research studies...' recovercovid.org/news/researche…

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s

"This is a wakeup call. These extraordinary results speak the language of people with ME/CFS, often recounting people’s ME/CFS symptoms. DecodeME is now calling on researchers worldwide to join us in accelerating ME/CFS research" - Prof Ponting

Can confirm. I talked with someone just today who got sick within the last year. Now, can’t leave the house due to Post COVID ME. It’s. Still. Going. On.

New York designer Derrick Kardos, known for Black Swan and The Departed, has died at 53 from complications of Long COVID. He was a fierce creative force and advocate for Long COVID recognition. hollywoodreporter.com/movies/movie-n…

Looking for papers that compare changes in #LongCovid test results, biological mechanisms, or treatment efficacy over time of illness duration!

He died from Long COVID today. His words: “I’ve experienced more discrimination and stigma for being openly disabled by #LongCovid than I ever did for being openly gay” When will the gaslighting stop? How many more need to die?

Baltimore researchers studied 97 people with long COVID and found persistent blood–brain barrier disruption nearly 3 years after infection. This subtle leak was linked to worse motor function, suggesting a possible long-term marker of neuro-COVID. sciencedirect.com/science/articl…

Very exicited to be heading to Keystone Symposium on #LongCovid in Santa Fe to represent Patient-Led Research Collaborative ! Aside from leading researchers, there will be good # of pharma (Pfizer, J&J), & handful NIH folks. Send me any questions / intel requests / asks & will read by Sunday!

The Keystone symposia for LC starts Monday! We're spoiled for groundbreaking science this week Some of the talks I'm particularly interested in - An inflammatory signature consistently enriched across all symptom groups! A common mechanism?