Australian Epilepsy Project (@aep_platform) 's Twitter Profile
Australian Epilepsy Project

@aep_platform

The Australian Epilepsy Project (AEP) a multi-year study, aims to change the lives of people living with epilepsy through advanced testing and AI by 2025.

ID: 1197316048392880128

linkhttp://www.epilepsyproject.org.au calendar_today21-11-2019 00:49:40

95 Tweet

114 Followers

62 Following

Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Maureen's daughter was diagnosed with epilepsy at 14. She chose to volunteer for the #AustralianEpilepsyProject to help make a difference to the lives of people living with epilepsy. Read her story ow.ly/ktiz50R77uX Volunteer for the AEP: ow.ly/vmOV50R77uW

Maureen's daughter was diagnosed with epilepsy at 14. She chose to volunteer for the #AustralianEpilepsyProject to help make a difference to the lives of people living with epilepsy. 
Read her story ow.ly/ktiz50R77uX
Volunteer for the AEP: ow.ly/vmOV50R77uW
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Insights from neuroscientist and #AustralianEpilepsyProject AI Lead, A/Prof. Mangor Pedersen on the use of AI in the AEP and the implications of the recent World Health Organisation publication addressing regulatory considerations on using AI for health. epilepsyproject.org.au/post/the-ethic…

Insights from neuroscientist and #AustralianEpilepsyProject AI Lead, A/Prof. Mangor Pedersen on the use of AI in the AEP and the implications of the recent World Health Organisation publication addressing regulatory considerations on using AI for health. epilepsyproject.org.au/post/the-ethic…
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Fiona experienced her first seizure at 34-years-of-age and has since been diagnosed with drug-resistant epilepsy. She shares her journey with epilepsy and experience as a participant of the #AustralianEpilepsyProject. ow.ly/a0yH50RcMUw

Fiona experienced her first seizure at 34-years-of-age and has since been diagnosed with drug-resistant epilepsy.
She shares her journey with epilepsy and experience as a participant of the #AustralianEpilepsyProject.
ow.ly/a0yH50RcMUw
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Gary recently participated in the #AEP to receive access to advanced testing (MRI, neuropsychology and genetics) via our national network of specialist AEP Hubs. Read his story ow.ly/PZRt50RiHhw Check your eligibility to join the AEP ow.ly/nvgl50RiHhv

Gary recently participated in the #AEP to receive access to advanced testing (MRI, neuropsychology and genetics) via our national network of specialist AEP Hubs. 

Read his story ow.ly/PZRt50RiHhw  

Check your eligibility to join the AEP ow.ly/nvgl50RiHhv
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Bruce experienced his first seizure later in life and was made aware of the #AustralianEpilepsyProject after a visit to hospital. Read his story ow.ly/IUNa50RlRm3 and check your eligibility to join the AEP and receive access to advanced testing: ow.ly/x6uO50RlRm2

Bruce experienced his first seizure later in life and was made aware of the #AustralianEpilepsyProject after a visit to hospital. 
Read his story ow.ly/IUNa50RlRm3
and check your eligibility to join the AEP and receive access to advanced testing: ow.ly/x6uO50RlRm2
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

You may have met #AustralianEpilepsyProject team member, Chath, during your medical history or follow-up interviews, as a participant of the AEP. What's her ideal weekend involve? And what's her current streaming recommendation? Click the link to find out: ow.ly/GSwI50Rx1mL

You may have met #AustralianEpilepsyProject team member, Chath, during your medical history or follow-up interviews, as a participant of the AEP.
What's her ideal weekend involve? And what's her current streaming recommendation? Click the link to find out: ow.ly/GSwI50Rx1mL
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Meet young adults Rosie and James on the eight-episode 'I’ve Got This! Owning My Epilepsy' podcast series, which delves into the experiences and challenges of young adults living with epilepsy. ow.ly/Gq7l50Ry8g7

Meet young adults Rosie and James on the eight-episode 'I’ve Got This! Owning My Epilepsy' podcast series, which delves into the experiences and challenges of young adults living with epilepsy. ow.ly/Gq7l50Ry8g7
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Are you interested in contributing to epilepsy research and helping to improve the lives of the 1 in 25 Australians living with #epilepsy? Volunteer for the #AustralianEpilepsyProject. #SomethingForEveryone in the world of volunteering. Learn more: ow.ly/Hnyi50RHRIw

Are you interested in contributing to epilepsy research and helping to improve the lives of the 1 in 25 Australians living with #epilepsy?  
Volunteer for the #AustralianEpilepsyProject. 

#SomethingForEveryone in the world of volunteering.

Learn more: ow.ly/Hnyi50RHRIw
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

🌍 Happy International Clinical Trials Day! Today, we honour the researchers, clinicians, and participants who drive medical advancements through clinical trials. Your work is essential for better treatments and a healthier future! #ClinicalTrialsDay #MedicalResearch The Florey

🌍 Happy International Clinical Trials Day!  Today, we honour the researchers, clinicians, and participants who drive medical advancements through clinical trials. Your work is essential for better treatments and a healthier future! #ClinicalTrialsDay #MedicalResearch <a href="/TheFlorey/">The Florey</a>
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Do you like helping others? Join like-minded people and volunteer for the Australian Epilepsy Project (AEP). Learn more: ow.ly/K63y50RHS9f #NVW2024 #SomethingForEveryone

Do you like helping others?
Join like-minded people and volunteer for the Australian Epilepsy Project (AEP).
Learn more: ow.ly/K63y50RHS9f
#NVW2024 #SomethingForEveryone
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Diagnosed with late-onset epilepsy, and struggling to understand why me and why now, lead John on a mission to create a website and Facebook group (BrainEactz), providing resources and support for others facing a similar life-path. ow.ly/z8pz50RWgcV

Diagnosed with late-onset epilepsy, and struggling to understand why me and why now, lead John on a mission to create a website and Facebook group (BrainEactz),  providing resources and support for others facing a similar life-path.

ow.ly/z8pz50RWgcV
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

#NowMoreThanEver is the theme of this year's National Reconciliation Week. So, let's all take meaningful actions towards unity and respect. Together, we can build a stronger, more equitable Australia. #NRW2024 #ReconciliationWeek #ActionsSpeakLouder

#NowMoreThanEver is the theme of this year's National Reconciliation Week. So, let's all take meaningful actions towards unity and respect. Together, we can build a stronger, more equitable Australia. 
#NRW2024 #ReconciliationWeek #ActionsSpeakLouder
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Darcey experienced her first seizure two years ago. It was initially thought she’d had a stroke. She received an epilepsy diagnosis last year and recently participated in the #AustralianEpilepsyProject. She shares her story ow.ly/e4BN50Sm5Nw

Darcey experienced her first seizure two years ago. It was initially thought she’d had a stroke. She received an epilepsy diagnosis last year and recently participated in the #AustralianEpilepsyProject.
She shares her story ow.ly/e4BN50Sm5Nw
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Lauren experienced seizures for six years before getting a diagnosis. She recently joined the #AustralianEpilepsyProject, gaining access to advanced testing to aid diagnostic and treatment pathways. Read her story: ow.ly/lzwL50Sv8bs Find out more: ow.ly/t3IL50Sv8bt

Lauren experienced seizures for six years before getting a diagnosis. She recently joined the #AustralianEpilepsyProject, gaining access to advanced testing to aid diagnostic and treatment pathways.
Read her story: ow.ly/lzwL50Sv8bs
Find out more: ow.ly/t3IL50Sv8bt
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Luke was a recent volunteer for the #AustralianEpilepsyProject’s control group. "Volunteering for the AEP is a unique opportunity to contribute to advancing epilepsy research. If I had the choice to volunteer over again, I would, without question. " ow.ly/nr0650SESct

Luke was a recent volunteer for the #AustralianEpilepsyProject’s control group.
"Volunteering for the AEP is a unique opportunity to contribute to advancing epilepsy research. If I had the choice to volunteer over again, I would, without question. "
ow.ly/nr0650SESct
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Early career researchers are a vital part of the #AustralianEpilepsyProject and to our research outputs. Find out more about their areas of study below. Suyi: ow.ly/TcPx50SETS2 Philip: ow.ly/KBBr50SETS3 Vicky: ow.ly/AlaQ50SETS5 Leila: ow.ly/Axzl50SETS4

Early career researchers are a vital part of the #AustralianEpilepsyProject and to our research outputs. 

Find out more about their areas of study below.
Suyi: ow.ly/TcPx50SETS2
Philip: ow.ly/KBBr50SETS3
Vicky: ow.ly/AlaQ50SETS5
Leila: ow.ly/Axzl50SETS4
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Meet Kylie, a recent participant of the #AustralianEpilepsyProject who's had epilepsy almost her entire life. Does she feel the AEP assisted her treatment outcomes in any way? "Yes, tremendously. The treatment gave us a new perspective." Read her story: ow.ly/FRqb50SGS0r

Meet Kylie, a recent participant of the #AustralianEpilepsyProject who's had epilepsy almost her entire life. 
Does she feel the AEP assisted her treatment outcomes in any way? "Yes, tremendously. The treatment gave us a new perspective."
Read her story: ow.ly/FRqb50SGS0r
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

#EpilepsyActionAustralia has provided support for over 65 years, dedicated to raising awareness and promoting understanding of epilepsy within the community. We spoke with Epilepsy Action Australia CEO, Carol Ireland, about the importance of their work. ow.ly/5pq750SHQXK

Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Meet Seiko, a valued member of the #AustralianEpilepsyProject’s Clinical Trials team. We sat down with Seiko to find out a little more about her favourite foods, her proudest achievement and who she’d most like to meet. Click the link to read more: ow.ly/bGIj50SJLLo

Meet Seiko, a valued member of the #AustralianEpilepsyProject’s Clinical Trials team.
We sat down with Seiko to find out a little more about her favourite foods, her proudest achievement and who she’d most like to meet.

Click the link to read more: ow.ly/bGIj50SJLLo
Australian Epilepsy Project (@aep_platform) 's Twitter Profile Photo

Along with research outcomes, the AEP portal has been a key outcome of our study and a crucial diagnostic tool for neurologists. Australian Epilepsy Project's Digital and Technology Lead, Anton de Weger, talks about its development and future outcomes. ow.ly/MyWS50SLRT0

Along with research outcomes, the AEP portal has been a key outcome of our study and a crucial diagnostic tool for neurologists. Australian Epilepsy Project's Digital and Technology Lead, Anton de Weger, talks about its development and future outcomes. ow.ly/MyWS50SLRT0