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Carmen A.J. Teemer
@adpkdundketo
ERN Rare Liver Patient Representative #ADPKD #PLD #Zystenleber #Zystennieren
ID: 1360525612880904193
https://www.adpkdundketo.de 13-02-2021 09:46:43
887 Tweet
132 Followers
220 Following
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Noch eine Woche bis zum Zystennieren-Symposium Uniklinik Köln. #Zystennieren #Ernährung Wir freuen uns über bereits mehr als 300 Anmeldungen (online und Vor-Ort). Es sind aber noch ein paar Plätze frei. Mehr Informationen zum Programm und zur Anmeldung im Flyer: bit.ly/3XuZVWX
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josé willemse leading the discussion on unmet PLD patients needs. Unfortunately still too many important ❓ More research is needed 🔎 First step 👉 involve patient associations such as PKD Zystennieren e.V. Leverpatiënten Global Liver Institute Carmen A.J. Teemer
![Renée Duijzer (@duijzerrenee) on Twitter photo <a href="/josewillemse/">josé willemse</a> leading the discussion on unmet PLD patients needs. Unfortunately still too many important ❓ More research is needed 🔎
First step 👉 involve patient associations such as <a href="/PKD_eV/">PKD Zystennieren e.V.</a> <a href="/Leverpatienten/">Leverpatiënten</a> <a href="/GlobalLiver/">Global Liver Institute</a> <a href="/adpkdundketo/">Carmen A.J. Teemer</a> <a href="/josewillemse/">josé willemse</a> leading the discussion on unmet PLD patients needs. Unfortunately still too many important ❓ More research is needed 🔎
First step 👉 involve patient associations such as <a href="/PKD_eV/">PKD Zystennieren e.V.</a> <a href="/Leverpatienten/">Leverpatiënten</a> <a href="/GlobalLiver/">Global Liver Institute</a> <a href="/adpkdundketo/">Carmen A.J. Teemer</a>](https://pbs.twimg.com/media/Fx735OOX0AIE6Gj.jpg)
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Talking about #hrqol in #PLD to PKD Zystennieren e.V. ☑️Patients in for a better world 🔨Patient reported outcomes matter ❓Questions on effect of coffee & #urso Carmen A.J. Teemer @ernrareliver josé willemse #LiverTwitter Roman-Ulrich Müller ERA - European Renal Association Tess Harris ((in need of another kidney sadly)) PKD Charity UK ukorst
![Joost PH Drenth (@joostphdrenth) on Twitter photo Talking about #hrqol in #PLD to <a href="/PKD_eV/">PKD Zystennieren e.V.</a>
☑️Patients in for a better world
🔨Patient reported outcomes matter
❓Questions on effect of coffee & #urso
<a href="/adpkdundketo/">Carmen A.J. Teemer</a> @ernrareliver <a href="/josewillemse/">josé willemse</a> #LiverTwitter <a href="/MuellerRom/">Roman-Ulrich Müller</a> <a href="/ERAkidney/">ERA - European Renal Association</a> <a href="/Elektra/">Tess Harris ((in need of another kidney sadly))</a> <a href="/PKDCharity/">PKD Charity UK</a> <a href="/KorstUwe/">ukorst</a> Talking about #hrqol in #PLD to <a href="/PKD_eV/">PKD Zystennieren e.V.</a>
☑️Patients in for a better world
🔨Patient reported outcomes matter
❓Questions on effect of coffee & #urso
<a href="/adpkdundketo/">Carmen A.J. Teemer</a> @ernrareliver <a href="/josewillemse/">josé willemse</a> #LiverTwitter <a href="/MuellerRom/">Roman-Ulrich Müller</a> <a href="/ERAkidney/">ERA - European Renal Association</a> <a href="/Elektra/">Tess Harris ((in need of another kidney sadly))</a> <a href="/PKDCharity/">PKD Charity UK</a> <a href="/KorstUwe/">ukorst</a>](https://pbs.twimg.com/media/FzC21uNXgAY2ggj.png)
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Talking about #hrqol in #PLD to PKD Zystennieren e.V. ❓ does coffee affect #ADPKD Probably not🚫 ☕️does not influence kidney disease 🛡️but protects against liver fibrosis Carmen A.J. Teemer josé willemse #LiverTwitter Roman-Ulrich Müller Tess Harris ((in need of another kidney sadly)) PKD Charity UK ukorst bmcnephrol.biomedcentral.com/articles/10.11…
![Joost PH Drenth (@joostphdrenth) on Twitter photo Talking about #hrqol in #PLD to <a href="/PKD_eV/">PKD Zystennieren e.V.</a>
❓ does coffee affect #ADPKD
Probably not🚫
☕️does not influence kidney disease
🛡️but protects against liver fibrosis
<a href="/adpkdundketo/">Carmen A.J. Teemer</a> <a href="/josewillemse/">josé willemse</a> #LiverTwitter <a href="/MuellerRom/">Roman-Ulrich Müller</a> <a href="/Elektra/">Tess Harris ((in need of another kidney sadly))</a> <a href="/PKDCharity/">PKD Charity UK</a> <a href="/KorstUwe/">ukorst</a>
bmcnephrol.biomedcentral.com/articles/10.11… Talking about #hrqol in #PLD to <a href="/PKD_eV/">PKD Zystennieren e.V.</a>
❓ does coffee affect #ADPKD
Probably not🚫
☕️does not influence kidney disease
🛡️but protects against liver fibrosis
<a href="/adpkdundketo/">Carmen A.J. Teemer</a> <a href="/josewillemse/">josé willemse</a> #LiverTwitter <a href="/MuellerRom/">Roman-Ulrich Müller</a> <a href="/Elektra/">Tess Harris ((in need of another kidney sadly))</a> <a href="/PKDCharity/">PKD Charity UK</a> <a href="/KorstUwe/">ukorst</a>
bmcnephrol.biomedcentral.com/articles/10.11…](https://pbs.twimg.com/media/FzC6stuX0AAihMO.png)
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Another important study by Sita Arjune on biomarkers in polycystic kidney disease (ADPKD) with our team Uniklinik Köln Universität zu Köln CECAD Cologne . DKK3 showed added value when combined with Copeptin. It is worth to look at this combination in larger future studies. academic.oup.com/ckj/article/do…