Carmen A.J. Teemer
@adpkdundketo
ERN Rare Liver Patient Representative #ADPKD #PLD #Zystenleber #Zystennieren
ID: 1360525612880904193
https://www.adpkdundketo.de 13-02-2021 09:46:43
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132 Followers
220 Following
Noch eine Woche bis zum Zystennieren-Symposium Uniklinik Köln. #Zystennieren #Ernährung Wir freuen uns über bereits mehr als 300 Anmeldungen (online und Vor-Ort). Es sind aber noch ein paar Plätze frei. Mehr Informationen zum Programm und zur Anmeldung im Flyer: bit.ly/3XuZVWX
josé willemse leading the discussion on unmet PLD patients needs. Unfortunately still too many important ❓ More research is needed 🔎 First step 👉 involve patient associations such as PKD Zystennieren e.V. Leverpatiënten Global Liver Institute Carmen A.J. Teemer
Talking about #hrqol in #PLD to PKD Zystennieren e.V. ☑️Patients in for a better world 🔨Patient reported outcomes matter ❓Questions on effect of coffee & #urso Carmen A.J. Teemer @ernrareliver josé willemse #LiverTwitter Roman-Ulrich Müller ERA - European Renal Association Tess Harris ((in need of another kidney sadly)) PKD Charity UK ukorst
Talking about #hrqol in #PLD to PKD Zystennieren e.V. ❓ does coffee affect #ADPKD Probably not🚫 ☕️does not influence kidney disease 🛡️but protects against liver fibrosis Carmen A.J. Teemer josé willemse #LiverTwitter Roman-Ulrich Müller Tess Harris ((in need of another kidney sadly)) PKD Charity UK ukorst bmcnephrol.biomedcentral.com/articles/10.11…
Another important study by Sita Arjune on biomarkers in polycystic kidney disease (ADPKD) with our team Uniklinik Köln Universität zu Köln CECAD Cologne . DKK3 showed added value when combined with Copeptin. It is worth to look at this combination in larger future studies. academic.oup.com/ckj/article/do…