#Happymothersday 🌸🌹❤️
«Oh Mother, you are my medicine against the blues. Oh Mother, you taught me so many values. To never give up even if we loose. To always struggle against issues ».
Extract from my book #Epilepsy the invisible pain©️📚 #Epilepsy Voices #Dravetsyndrome #scn1a

🏆Following the literary price I received for my #comicbook I will host a conference to raise awareness about #epilepsy and #invisibledisability 🎤So happy to share my daughter’s story to dispel myths linked to the condition! #epilepsy book #EpilepsyVoices #seizure #caregiver

For #Nationalepilepsyweek I visit children at schools to normalize what it means to live with #epilepsy .I wish it would help to create a future for people with epilepsy to feel seen, understood and supported! Epilepsy is a condition, not a definition IBE Epilepsy #seizure

Please look at this beautiful card sent by Epilepsy Association of Maritimes!Thank you for these words which give me the strength to keep on advocating for #epilepsy and #purpleday ✊Thank you for helping me to keep on fighting for my daughter ❤️ Purple Day Canadian Epilepsy Alliance

#Epilepsy is not just one condition. It’s a complex spectrum of #braindisorders with many causes. Raising awareness can reduce fear, dispel myths and help promote action! #neurology #research #dravet #scn1a #epilepsyadvocate #Epilepsy Voices #seizure #fightforher #Hope #Love

Sorry for my absence but my daughter had many #seizures 🥹Today I received a package with posters, information cards and ribbons to use for my future stands 🤩 Thank you EAM for encouraging me to keep on advocating for #epilepsy #EpilepsyVoices Purple Day #Epilepsyambassador 💟

I’m not just raising awareness. Thanks to my books, I’m trying to provide a valuable resource for those looking to understand more about #Epilepsy 📚 #epilepsybook #Epilepsy Voices #Facesofepilepsy #epilepsycanada #braindisease #seizure #caregiver #FatherDaughter #TrueStory ✍️

Please look at this video 📽️ My daughter has a rare and severe form of #epilepsy associated to #autismspectrumdisorders .She taught me how to be #resilient and to move the highest mountains! Unfortunately there is no cure but we keep faith in #research 🙏 #dravetsyndrome #scn1a

During my speech, a mum started to cry. I tried not to watch her but I could barely hide my tears🥺After reading some extracts, people said my books were screening for truth! Indeed, I’m not just raising awareness. I’m speaking with my heart 💜  #EpilepsyVoices #EpilepsyAwareness

My stand is ready 😊 Please come and share your experience with me! 30% of people with #epilepsy are diagnosed with #autism .Every act of awareness makes a difference in the lives of families and individuals affected by epilepsy! #WorldAutismAwarenessDay #Dravet #genemutation

🏫 Why did I write #epilepsy comic 📚?The idea was to start the conversation early at #school to normalize what it means to live with #epilepsy 😉I wish it helps to create a future for people with epilepsy to feel seen, understood and supported🙏 #epilepsy book #EpilepsyVoices 🧠

I’ve been invited to share my daughter’s story living with #dravetsyndrome and #autism spectrumdisorders during a regional conference about #autism 😊30% of people with #epilepsy are diagnosed with autism! #EpilepsyVoices #braindisorders #speechdelay #WorldAutismAwarenessDay 💙

I dream of a world where #epilepsy can not just be treated but cured🤞😢 Wake up sweetheart please! Dad will never give up ✊ #seizure #genetic #mutation #scn1a #dravetsyndrome #braindisorder #speechdelay #cognitivedelay #caregivers #idream #researcher #Neurology #weneedacure

Be the Ambassador for what you stand for!I stand for the 50 million people living with #epilepsy and their families worldwide! #PurpleDay is over but #epilepsy awareness is going on each day ✊Purple Day #EpilepsyVoices #braindisease #seizure #Neurology #research #YouAreNotAlone

Did you know that people with #Autism are more likely to have #Epilepsy ?My daughter has #Dravetsyndrome a rare and severe form of epilepsy associated to #autismspectrumdisorders . Autism is not a #Disability ! It’s a different #Ability 😉 #WorldAutismAwarenessDay #scn1a #dravet

Speaking in front of 200 people was stressful. I could barely contain my emotion🥺 I’m not an expert, I’m just a Dad trying to spread awareness the best I can! Purple Day Canadian Epilepsy Alliance #makemarchpurple #EpilepsyVoices #epilepsyadvocate #braindisease #seizure #youarenotalone

I spoke with my local council to have municipal buildings lit up purple in recognition of Purple Day 🟣Here is the famous Porte Serpenoise highlighted for #PurpleDay2024 💟 #Epilepsyambassador #EpilepsyVoices #epilepsyawareness #seizure #braindisease #mydaughtermylife #caregiver

So proud to represent the Purple Day association during a conference about #epilepsy My stand is ready to welcome you to raise awareness and to dispel myths! Please remember Epilepsy is a part of you but it doesn’t define you ✊ #PurpleDay2024 #epilepsy ambassador #EpilepsyVoices

Today countries all over the world come together today to raise awareness of #epilepsy and stand in solidarity with those affected by this #braindisease ! As an Ambassador for Purple Day I stand up for the 50 million people living with epilepsy worldwide 💟 YOU ARE NOT ALONE !!

Cassidy Megan created the idea of #Purpleday in 2008 motivated by her own struggles with #epilepsy 🧠Her goal is to get people talking about epilepsy in an effort to dispel myths and inform those with #seizures they are not alone! Purple Day #Epilepsyambassador #EpilepsyVoices 💟