I trust those who are willing to question authority. Those who have invested so much of their life to discover they were wrong and are willing to admit it. It's those brave souls that people call "sh*t disturbers", "trouble makers" - and "the crazy ones."

Hello #LongCOVID Team! In 2022, 44% of respondents in a #C19LAP survey said they had applied for #SocialSecurity #Disability. We are re-evaluating the experience of the U.S. #LongCOVID community when it comes to applying for Social Security Disability. We are asking everyone

Thank you so much for the nod to my work on symptom invalidation, Zed Zha, MD, FAAFP!

#MEAction’s narrative activity study with Mayo Clinic opens today! We’re looking for people with #MECFS or #LongCOVID with #PEM to share their experiences. The survey will be open from 5/24/2024 to 6/23/2024. Learn more & find out if you’re eligible here: surveys.mayoclinic.org/jfe/form/SV_2a…

Increase #funding for #MCAS 🎗️

I think people underestimate the power of a clinician saying “I don’t know.” It leaves space for a reality in which patients’ symptoms can still exist. 🎗️

Toxic positivity is a thing, and it’s unhealthy.

#MedTwitter: In the DSM-5 (the mental health version of the ICD-10), it is explicitly stated that somatic symptom disorders CANNOT be diagnosed solely based on the absence of medical evidence, yet this seems widely practiced by physicians. Does the ICD-10 state differently?

The status of one of my papers submitted to a journal has been “awaiting reviewer selection” for the past month. Has this happened to anyone before? Any advice? PhD Voice - Independently Run PostdocVoice #academia #publishing

Thank you for standing up for patients, Zed! We need more clinicians like you 🎗️

Research study opportunity at Mass General Hospital: ME/CFS and post-COVID ME/CFS- survey blood draw and MRI to study the underlying cause of cognitive control impairment in these conditions. More info here: rally.massgeneralbrigham.org/study/mocci

Really excited to see the NIH Women's Health update on women’s health research recognize #symptominvalidation experienced by females during their diagnostic odysseys, including in #endometriosis, at #ARM24.

Super excited for this webinar tomorrow! So so relevant for so many people 🎗️

Super proud of my good friend Arpita Jindani for passing her dissertation proposal defense yesterday Rutgers School of Communication and Information! 🎉 She is already doing so many great things!

Check out a #research opportunity on the #diagnosis journey for black and brown women and women identified people in the US with #lupus and #endometriosis some collaborators from Baylor and I are studying.

As someone who considers themself an advocate of ME/CFS and of patient legitimacy more broadly, I cannot express how angry this makes me.