A week to aHUS Awareness Day when #aHUS awareness is raised globally by reaching out Elon Musk ahusallianceaction.org/raising-global…

Raise visibility! What physicians & #aHUS patients need to know about the Indian Government's National Program for Rare Diseases (NPRD) can help patients with the #raredisease atypical HUS. ahus.in/2025/09/how-in… Thank you @aHUSIndia for your leadership & advocacy! #aHUS24Sept

Focus on Patients - their Experiences & Needs, isn’t that what should center aHUS Awareness Day? #aHUS24Sept The #aHUS Patients’ Global Research Agenda's has 15 questions that patients & #caregivers would like researchers and clinicians to prioritize. ahusallianceaction.org/exploring-the-…

6 days until aHUS Awareness Day, Wed 24 Sept 2025! Extra-#renal involvement (outside kidneys) can include #neurological symptoms (confusion, seizures), #cardiac issues, lung or #gastrointestinal problems, and vision or skin issues. #aHUS24Sept #aHUSday #aHUS #cmTMA #raredisease

New aHUS Alliance Global Action #aHUS Fact Sheet -Read & Share! 24 Sept 2025 marks our 11th aHUS Awareness Day campaign, a pdf to Print: bit.ly/2025aHUSfacts2… Full Article: ahusallianceaction.org/atypical-hus-f… Be #aHUSaware! #aHUS is a rare type of #TMA. #aHUS24Sept #cmTMA #complement

5 days until aHUS Awareness Day, Wed 24 Sept 2025! Doctors may order blood, urine, and #ADAMTS13 tests to rule out similar diseases as #aHUS is a ‘diagnosis of exclusion’. Timely & accurate diagnosis to start appropriate treatment is crucial. #aHUS24Sept

"“Although the journey with aHUS is challenging, timely diagnosis and targeted therapies have significantly improved patient outcomes,” concluded Dr Bagga." Atypical Haemolytic Uremic Syndrome: What You Need to Know About This Rare Condition onlymyhealth.com/what-is-atypic…

Now that Soliris is available in India, it is important for us to know how to get access to the drug. We have consulted the manufacturers of the drug and understood the steps to be taken by patients or their families to get access to the drug. ahus.in/2025/09/how-yo…

Help spread awareness of Atypical Hemolytic Uremic Syndrome #aHUS, a life-threatening disease characterized by the systemic formation of blood clots throughout the body that damages the kidneys and other organs. Visit aHUSallianceAction.org to learn more. #aHUS24Sept #cmTMA

Atypical aHUS is a life-threatening #raredisease that affects the kidneys and blood system, with potential to damage other organs. Learn more about #aHUS - check out the Press Kit from aHUS Alliance Global Action at ahusallianceaction.org/ahus-alliance-… Be #aHUSaware for 24 Sept #aHUSday!

Atypical HUS: It's a challenge to live with this potentially life-threatening #raredisease which causes small blood clots & organ damage. Staying positive while rearranging family schedules, life goals, and relationships isn't easy! #aHUS24Sept Sept 24 2025 is #aHUSday

4 Days to Go! Genetics play an important role in atypical HUS. For many patients, changes in #complement system genes make them more likely to develop aHUS. Some people develop #aHUS without a family history, others may carry #genetic changes but never experience the disease.

Atypical HUS - it's a difficult balancing act, for #aHUS patients and physicians as well. #aHUS is a #RareDisease. 24 Sept 2025 (Wed) is int'l aHUS Awareness Day. #aHUS24Sept #cmTMA

aHUS #Clinicians & Investigators: An international network provides connecting points to advance atypical HUS #research in practice. ahusallianceaction.org/ahus-clinician… We recognize with deep & special thanks those who partner with patient organizations and global #aHUS advocacy efforts!

Families with #genetic diseases want to know inherited risks. On #aHUS from Ardissino et al KIReports & Int Society of Nephrology - Risk of atypical HUS among family members of patients carrying #complement regulatory #gene abnormality. kireports.org/article/S2468-… #genetics 24 Sept #aHUSday

Atypical HUS is a rare disease that’s part of a group called thrombotic microangiopathies (TMAs). Early treatment saves lives and prevents long-term organ damage. 3 days until Wednesday 24 Sept 2025 - int'l aHUS Awareness Day! #aHUS24Sept #aHUS #SHUa #cmTMA

💡 Knowledge is power. Join in aResource Rally for aHUS Awareness Day! Share infographics, videos, brochures & links to research about #aHUS, #TMA & #complement. Help us educate globally. Start posting now, tag posts #aHUS24Sept!

Atypical HUS: Just imagine a conversation that might have crossed the decades of #aHUS pioneers who - Named it, Explained it, Treated it. #aHUS24Sept ahusallianceaction.org/ahus-pioneers-… Professor Conrad von Gasser, Professor Tim Goodship Newcastle University , Dr. Lenny Bell Alexion

Atypical HUS is a #raredisease & its diagnosis is complex. DYK: We've catalogued an #aHUS ‘virtual library’ of 1500+ research publications on treatment & other #aHUS related topics: #complement, #TMA, #genetics, #transplant & more. ahusallianceaction.org/research-publi…