Robert Joyce - A 30 Minute Life (@a30minutelife) 's Twitter Profile
Robert Joyce - A 30 Minute Life

@a30minutelife

Patient Advocate, Patient Representative, #MultipleSclerosis #chronicpain #blogger #researchassistant #MS #a30minutelife #PPI

ID: 889139159251726336

linkhttp://www.a30minutelife.com calendar_today23-07-2017 15:04:29

6,6K Tweet

2,2K Takipçi

4,4K Takip Edilen

Multiple Sclerosis Neurologist dr Agne Straukiene (@agnestraukiene) 's Twitter Profile Photo

🌱 The Power of a Happy Gut in #MS! 🌟 Consistent bowel movement isn't just comfort—it's key! 🌀 An off-balance gut can amplify neuro symptoms in MS. But remember, what stirs one's gut may not stir another's. Find YOUR gut groove! 🕺💃 Seeking more lifestyle tips? Dive into

MS Ireland (@msireland) 's Twitter Profile Photo

Serena Carberry from University Of Limerick, is researching couples experience of MS - questions about your relationship, your experience of MS, and how you cope. More details in the link below⬇️ 20031912.wixsite.com/information-sh…… #msresearch #MS

Serena Carberry from <a href="/UL/">University Of Limerick</a>, is researching couples experience of MS - questions about your relationship, your experience of MS, and how you cope.  

More details in the link below⬇️ 20031912.wixsite.com/information-sh…… 

#msresearch #MS
David Gilbert (@davidgilbert43) 's Twitter Profile Photo

In the volatile NHS world, remember that ‘patient leaders’ - those who’ve been through stuff, who know stuff, who want to change stuff…. can help. We are not there just to challenge, but to support. We have insights, wisdom and (com)passion. Turn to us, not away from us.

Robert Joyce - A 30 Minute Life (@a30minutelife) 's Twitter Profile Photo

A key element of this should be that all patients who use the health service should be included. However, those on Invalidity Pension cannot without risking losing their support. Those in receipt of Carers Allowance similarly take a risk. This must change!!

Robert Joyce - A 30 Minute Life (@a30minutelife) 's Twitter Profile Photo

If @DonnellyStephen wants to give patients, like me, a voice, why is he blocking our comments. The value of comments is you will get positive and negative viewpoints. All are valuable in developing a #patient centred system which is safe for all.

Rachel Gibson Cooper (@rachelfalling) 's Twitter Profile Photo

If you have MS, live in the UK, and would be interested in taking part in some research interviews about your journey from diagnosis to managing your condition (with vouchers as a thank you for your time), send me a DM and I’ll tell you how to get involved.

DFI (@disabilityfed) 's Twitter Profile Photo

The long-awaited Disability Action Plan, the Government’s response to years of underfunding of the disability sector, will be published today. The launch will be live streamed from 1pm at this link youtube.com/merrionstreet #DisabilityActionPlan

The Struggle Is Wheel (@struggleiswheel) 's Twitter Profile Photo

Don't forget tonight 7:30p🎧📻 RTÉ One radio we highlight how ♿accessibility is still an afterthought with new tourism projects in Ireland using the example of The Emigrant Park in New Ross which cost €1million & won an urban planning award. #LastOneOnTheTrain #Ableism

Don't forget tonight 7:30p🎧📻 <a href="/RTEOne/">RTÉ One</a> radio we highlight how ♿accessibility is still an afterthought with new tourism projects in Ireland using the example of The Emigrant Park in New Ross which cost €1million &amp; won an urban planning award. #LastOneOnTheTrain #Ableism
Robert Joyce - A 30 Minute Life (@a30minutelife) 's Twitter Profile Photo

It was great to speak on this podcast about my experiences as a patient researcher Embedding Patient Perspectives into Clinical Research┃Robert Joyce youtu.be/5rqeTc4WSjk?si…