Vita Kalinsky(@Vita_Victoria2) 's Twitter Profileg
Vita Kalinsky

@Vita_Victoria2

ID:1408528326092738562

calendar_today25-06-2021 20:52:03

705 Tweets

47 Followers

31 Following

Sarah Nauser(@SarahNauser) 's Twitter Profile Photo

Day 2️⃣8️⃣As ALS progresses, adaptive equipment needs rise & the costs are alarming. Much of which aren’t covered by insurance.
Lift recliner-$2k
shower wheelchair-$9k
power wheelchair-$100k
mobility van-$35k
ventilator-$25kx2
eye gaze device-$20k
adjustable bed-3k
My fav #28 Izzy

Day 2️⃣8️⃣As ALS progresses, adaptive equipment needs rise & the costs are alarming. Much of which aren’t covered by insurance. Lift recliner-$2k shower wheelchair-$9k power wheelchair-$100k mobility van-$35k ventilator-$25kx2 eye gaze device-$20k adjustable bed-3k My fav #28 Izzy
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Christa Thompson(@thompsontweach) 's Twitter Profile Photo

Please take some time to watch this documentary and the join the fight to accelerate the timeline to treatments and cures. Go to I AM ALS to learn how.

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Jack of Hearts(@grandcasino_al) 's Twitter Profile Photo

Barack Obama Brian Wallach Sandra Abrevaya Amyotrophic lateral sclerosis (ALS), often known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It leads to the loss of control over voluntary muscle movement and can significantly impact life expectancy.

@BarackObama @bsw5020 @sabrevaya Amyotrophic lateral sclerosis (ALS), often known as Lou Gehrig's disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. It leads to the loss of control over voluntary muscle movement and can significantly impact life expectancy.
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gina Gibson(@ginaGib68993499) 's Twitter Profile Photo

Shah Minokadeh, M.D. So sorry, Shah. This is all wrong and unfair. So many fight everyday to help. We need Dr. Robert M. Califf to actually understand how people are suffering.

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Shah Minokadeh, M.D.(@MinoShah) 's Twitter Profile Photo

has taken away so much of me.

It's made me extra sensitive to certain things, especially watching any kind of ending, whether it's a show finale or a character's death.

I try to avoid it, but nothing gets me more emotional like seeing people fall in love in a movie.

It

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Kathy Collier(@KathyCo74123384) 's Twitter Profile Photo

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN
ALS ACCESS Eric Braeden
Today we remember and Honor Our Veterans
Many Veterans develop ALS
Think about it
ALS does NOT DISCRIMINATE ANYONE CAN GET IT
Children, Men,Women
ANYONE
No Cure or Viable Treatments
Stop ALS DEATH IS FOREVER

ALS-THE FORGOTTEN DISEASE/AUTISM-NOT BROKEN @brainmatters10 @EBraeden Today we remember and Honor Our Veterans Many Veterans develop ALS Think about it ALS does NOT DISCRIMINATE ANYONE CAN GET IT Children, Men,Women ANYONE No Cure or Viable Treatments Stop ALS DEATH IS FOREVER
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Ken M(@kjmark) 's Twitter Profile Photo

Shah Minokadeh, M.D. juan FDA Biologics Dr. Robert M. Califf Saying prayers for Patty, Dr Shah, all other patients and families but we need more than thoughts and prayers, we need action now to make available to extend their lives. Corrupt FDA Biologics has blocked for 9+ years.

@MinoShah @juan23188549 @FDACBER @DrCaliff_FDA Saying prayers for Patty, Dr Shah, all other #ALS patients and families but we need more than thoughts and prayers, we need action now to make #NurOwn available to extend their lives. Corrupt #PeterMarks @FDACBER has blocked #NurOwn for 9+ years. #DopeSick #BigPharma #PayToPlay
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No More Excuses ALS Watchdogs!(@als_now) 's Twitter Profile Photo

patients don't need to be better. They are already some of the best damn people on this entire planet. Calling out ' numerous, current, and past failures and conflicts of interest IS what will eventually fix - not hurt it.

Don't be better- be bolder.

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Shah Minokadeh, M.D.(@MinoShah) 's Twitter Profile Photo

100% FATAL IS NOT RARE! You or your loved one could be next

Each day is a battle against the relentless progression of the disease as we are denied effective due to FDA Biologics Dr. Robert M. Califf INFLEXIBILITY

While cancer patients often have access to

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Shah Minokadeh, M.D.(@MinoShah) 's Twitter Profile Photo

This Memorial Day, as we honor the brave men & women who have sacrificed for our nation, we must also remember those who have died/are dying/will die from HORRIFIC 100% FATAL that disproportionately affects veterans

Dr. Robert M. Califf & FDA Biologics CRUEL denial of effective

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HopOnACure(@HopOnACure) 's Twitter Profile Photo

Thank you, Lamar Advertising, for donating nationwide billboard space to Hop On A Cure for ALS Awareness Month! Let us know if you see it in your city.

💙

Thank you, @LamarOOH, for donating nationwide billboard space to Hop On A Cure for ALS Awareness Month! Let us know if you see it in your city. #kickALS #believeinacure💙
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Shah Minokadeh, M.D.(@MinoShah) 's Twitter Profile Photo

has been 100% FATAL since first identified in 1869

The incidence is expected to ⬆️40% in 10 years

>90% have NO family history, like me.
I was 35 with no medical problems, eating healthy, & exercising regularly

Overnight I was dealt this DEATH SENTENCE & every day more are

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