Great video. Brittany McGill, PhD Claire Wakefield PhD 🎗️

2/2: 4 key themes from the interviews. See the full paper for details. #SIOP2019 Brittany McGill, PhD Claire Wakefield PhD 🎗️ Janine Vetsch PhD “I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer‐related genetic testing in childhood onlinelibrary.wiley.com/doi/abs/10.100…

New paper on the impact of precision medicine in #childcancer. Parents, clinicians and scientists, each sharing their excitement to embrace new technologies while managing family expectations, time pressures and limited access to drugs. #PrecisionMedicine ascopubs.org/doi/10.1200/PO…

NEW PAPER! How can we improve the provision of long-term survivorship care? Our team asked childhood cancer survivors about their barriers to, and preferences for care. Many don't get the care they need despite growing risk of late effects as they age. spcare.bmj.com/content/early/…

Great qualitative study by Janine Vetsch PhD Claire Wakefield PhD 🎗️ and colleagues analyzing stakeholder perspectives on precision medicine research #childhoodcancer. Fascinating how similar themes arise around the world! #medtwitter #genomics #PHODocs #ethics ascopubs.org/doi/10.1200/PO…

Personalised or #PrecisionMedicine for #child + #AYA #cancer offers so much promise, but also so much psychological uncertainty. The fab Brittany McGill, PhD presents important #clinician & #scientist perspectives on how they feel about these new therapies @AwardTow #AYACSM #PedPC

My PhD is in a similar area, with the same amazing team. As a psychologist, I’ve found it endlessness fascinating + humbling to talk with families about their child’s serious illness how #genetictesting can provide clarity and sometimes uncertainty. So much more to explore!

'Knowledge is power': first would-be parents tested for 700 genetic diseases smh.com.au/national/knowl…

CH. Eine #Studie im Auftrag BAG – OFSP – UFSP hält fest, dass betreuende Angehörige sich ihrer neuen Rolle oft lange nicht bewusst sind und deshalb externe Hilfe für sie umso wichtiger ist. zeitlupe.ch/ueberfordert-u… #zeitlupe Pro Senectute #pflegendeAngehörige

Next week! “Narrative synthesis” of quantitative effect data in Cochrane reviews: current issues and ways forward. A webinar from the #cochranelearninglive webinar series. Sign up now at bit.ly/2OlvOA1

1/2 New paper! #Precisionmedicine is an exciting, paradigm-shifting approach in #childhoodcancer, but is not without challenges for doctors and scientists. We interviewed both to find out what they think. Paper available here 👉 mdpi.com/2075-4426/10/1…

Claire Wakefield PhD 🎗️ Janine Vetsch PhD Professor Glenn Marshall @drtraceyobrien @AProfDavidZieg1 JPM_MDPI UNSW ObGyn & Paeds UNSW Medicine & Health Childrens Cancer Institute Kids Cancer Alliance 2/2 #BSU blog post on the key findings of the paper available here 👉behaviouralsciencesunit.org/blog/new-paper… And you can read more about the incredible efforts of the Zero Childhood Cancer Personalised Medicine Program here 👉 zerochildhoodcancer.org.au/page/4/about

Are you a #childhoodcancer survivor and worried about #covid19? Check out these guidelines recently published by Children’s Oncology Group survivorshipguidelines.org/pdf/2020/COVID… Childhood Cancer Survivor Canada Kids Cancer Care🎗

Survivors of childhood cancer need help to access high-quality #survivorship care, for a better #qualityoflife after cancer. NEW PAPER! jnccn.org/view/journals/… NEW STUDY! newsroom.unsw.edu.au/news/health/ch… With support from: Cancer Council NSW The Kids' Cancer Project Kids Cancer Alliance

Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors. Our guideline is available online #openaccess #ChildhoodCancer #Survivor #fatigue lnkd.in/du_FiwU

Recommendations for the surveillance of mental health problems in #childhoodcancer #survivors are available sciencedirect.com/science/articl… Thanks so much for the hard work Jordan Gilleland Marchak, PhD, ABPP @christen_salome Jen Lee, PhD and many others