Are you looking after patients with #myositis ? If not already a member consider joining #MYONET registry Hector Chinoy Will need ethics & GDPR compliance University Hospitals Birmingham Chris Huntley Exeter Interstitial Lung Disease Team 💙 Malik Althobiani | مالك NHLI

Exciting session at #GCOM led by MIHRA's Vice-Chair Julie J. Paik and member LisaChristopherStine, discussing the ongoing challenges in clinical trials for #myositis. Huge progress has been made, but there's still room for important improvements!

Our experts @salfordco_nhs (Salford Royal Hospital) are looking for people aged 18-75 with dermatomyositis (DM) & polymyositis (PM) to take part in a research study. More information at clinicaltrials.merckgroup.com/en/trial-detai…

Glad to hear David enjoys his time in the New Forest 🌳

The 2024 ENMC Criteria for the Diagnosis of IBM are now published: nmd-journal.com/article/S0960-… We hope these enhance diagnostic performance over previous criteria, and improve access to appropriate care and research for our patients. NCA Research NHS Manchester Centre for Clinical Neurosciences Myositis UK

GCOM 2024 was filled with excellent sessions in all aspects of myositis. Great representation by Johns Hopkins Rheumatology Hopkins Myositis! Above all, it was wonderful to see old friends and colleagues and build new collaborations! Looking forward to Lisbon 2026!

I'm presenting at #BSR24 BSR in Liverpool ⏰Friday morning session (26th) 0900-1030 with Louise Parker & Begonya Alcacer-Pitarch Session: Optimising the role of the MDT in supporting people with CTDs My Talk: #Rehabilitation in #SSc & #myositis See you there? (or online)

🎙️ Dive into the world of #myositis with our latest bonus episode on Talking Rheumatology Spotlight! 🌟 Dr Hector Chinoy and Dr Alexander Oldroyd explore the complexities of managing idiopathic inflammatory myopathy and more! bit.ly/3ybpWm6

Our recent article about immune boosting supplements raised many questions about the effects of herbal products for those who live with myositis. Here are some answers to those questions. myositis.org/blog/more-on-i…

The Myositis Community of Great Britain & Ireland has now reached over 3000 members! 💙 m.facebook.com/groups/themyos…

🌟 Meet Alex – an NIHR Clinical Lecturer who used our ACED Skills Exchange Award to visit Stanford University. Read Alex’s story about: 🤝 Meeting the Stanford University Myositis Team 🔬 Accessing state-of-the-art facilities 🌐 Finding ways for collaborations ow.ly/gihq50REeUM

Have been asked to share this😀 wouldn't have happened without such great family and charity support, thank you! researchprotocols.org/2024/1/e57238 CCAA - Kids With Arthritis (JIA) Versus Arthritis JIA-at-NRAS Teapot Trust SNAC Myositis UK LUPUSUK 💙 The IMPACT Study @GoshOrchid National Institute for Health and Care Research GOSH Nursing

The work of EULAR is more important than ever to improve the quality of life of people with rheumatic diseases - it is a real privilege to become EULAR Honorary Member for “outstanding service in accomplishing the objectives of EULAR” UCL_QS_CNMD UCL Rheumatology UCLH

Myositis UK Small Grants Scheme Next funding call deadline is Friday 27 September 2024 (5pm), 2 separate grants (each up to £20,000) available for seedcorn grants, research consumables, top-up funding, PhD studentships & overheads etc See link for details myositis.org.uk/research/apply…

Myositis UK Conference is fast approaching, but still time to book a place 🙂 It will be held 14th July 2024 at Woodland Grange, Leamington Spa. The event is complementary for Myositis UK members (+ partner) & includes (our membership is free). myositis.org.uk/events/agm/

Pleased to launch our new website as a key tool and resource in the campaign for protection for immunocompromised. Thanks to all those involved in creating it. Wes Streeting MP Department of Health and Social Care NICE MHRAgovuk forgottenlives.uk//

New myositis genetic associations by leveraging other immune mediated disease (IMD) Human Genetics and Genomics Advances NIHR Manchester Biomedical Research Centre. 17 IMD genetically close to myositis, eg SSc, Sjogren, thyroid. Novel associations mapped to immune-related genes: BLK, IRF5/TNPO3, ITK/HAVCR2 doi.org/10.1016/j.xhgg…

Read our latest viewpoint: Is there a role for novel supplements in the management of fatigue in rheumatic diseases? RMD Open Meghna Jani @UoMMskResearch NIHR Manchester Biomedical Research Centre NCA Research NHS rmdopen.bmj.com/content/10/3/e…

WMS this year will have many presentations on #myositis. An opportunity for the #myositis community to network and learn on other aspects of muscle biology, disease, pathophysiology and therapy. The Myositis Association @Myositis_Strasbourg Myositis UK Cure IBM—Inclusion Body Myositis Myositis India Myositis Research Group@KI