
UDN PEER
@udn_peer
The UDN Participant Engagement and Empowerment Resource (PEER) group supports participants and family members enrolled in the Undiagnosed Diseases Network.
ID: 1361837957280198656
http://udnconnect.org/peer 17-02-2021 00:41:17
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Please take a look at this inspiring patient story posted by Undiagnosed Diseases Network Foundation (UDNF) . Thank you to the McGarvey Family for sharing your story and spreading awareness about #raredisease linkedin.com/posts/udnforg_…



There are plenty of opportunities to plug in 🔌 for #RareDiseaseWeek2024! 🦓 EveryLife Foundation RDLA National Organization for Rare Disorders (NORD) U.S. FDA NIH #RareDC2024 #RareDisease #RareDiseaseDay #RDDNIH #advocacy #policy #awareness #homocystinuria #HCU #HopeConnectsUs






Today @ 12 ET, come listen to the personal story of Nikki 's daughter who passed away in 2020 of an undiagnosed disease & Dr. Oglesbee of Mayo Clinic and Nicole Walley of Duke University talk about the challenges in science towards finding a a diagnosis. Register : udnf.org/tell-me-more-w…

