Miss Pouty Pants doesn't want to train for her walk today. Maybe tomorrow. You can still cheer her on, though. Or even donate to this amazing cause if your heart leads you to. Thank you, friends. LGS Foundation #epilepsy #intellectualdisability #autisim

lgsfoundation.salsalabs.org/2024walkforlgs…

Savannah is walking a mile for LGS Research in 10 days! She’s working hard. If you’d like to support her, please send her your well wishes. And you can even donate.

Go Savannah, go!

lgsfoundation.salsalabs.org/2024walkforlgs…

Savannah’s Walk ‘n’ Wheel for LGS Research

The financial resource toolkit, found on the LGS Learning and Resource Center, provides financial planning, medical financial assistance, and general financial assistance links for sites that we feel contain useful information for families.

👉 Learn more: lgsfoundation.org/financial-reso…

Truly and honor to be recognized. 🥰

Can’t wait for this one!

Meet Haley! Haley was first diagnosed with infantile spasms at birth. Then, other severe seizures started happening, which led to an LGS diagnosis at age 14. Her mom said that Haley is non-verbal and non-ambulatory, but her spirit is grand.

#LennoxGastautSyndrome #Epilepsy

Meet Natalie 👋 She served as the President of the LGS Foundation’s Board of Directors from 2020-2023 and is now serving as the Past President. She and her family have dedicated much of their lives to bringing awareness to others about seizures and #LennoxGastautSyndrome .

🎉🗣️ Check out the contents covered in today’s podcast 🎧📹 the amazing neurologist & researcher Linda Dalic 🤩 from Austin Health 🇦🇺👇! Linda explains things in such an easy-to-understand way!

Here's the Chapters 📖

〰️ Meet Linda ⚡🧠
〰️ Deep Brain Stimulation (DBS) for…

😀 I don’t know if you’ll be as excited about the results as I, but…(!) In this week’s podcast, neurologist Linda Dalic 🇦🇺 shares with us the huuuuge seizure reduction in people with the rare #epilepsy 🧠 Lennox Gastaut Syndrome (LGS) - as the result of Deep Brain Stimulation…

The 9th Annual Walk ‘n’ Wheel for LGS Research is just ONE MONTH away! 📆

Join us on Saturday, April 20, 2024:
📍Kannapolis, NC
📍Tampa, FL
📍Virtually

🚨Sign up today to secure your t-shirt – available for both in-person and virtual attendees!

🔗 lgsfoundation.org/walk-n-wheel-f…

it’s online! we show that larger lesion volume, germline variants in GATOR1 genes, and connectivity with the default-mode network drive earlier seizure onset 😮

#ff KatMcButterfly KatMcButterfly Deirdre Floyd Pauline Duffy 🇺🇦 Jeknee 🦤🇲🇺🧉🌴 Dr. Tracy Dixon-Salazar Daphne Ward 𝙿𝚎𝚙𝚙𝚎𝚛 Epilepsy Warriors 💜 Epilepsy Ambassador Holly Farnsworth Kay 🇨🇦💜🐈🐶 alisa jones :: gotham girl tracey g Nicola Adamson (She/her) Emma Hall Jemma Powell 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 Seizure Assistant Innovator jai1001xr Lori Jaye

Last month, Advocates for LGS participated in Rare Disease Week on Capitol Hill. While there, they learned of current legislation aimed at supporting initiatives impacting the #RareDisease community.

Click to read the full story
🔗lgsfoundation.org/rare-disease-w…

#LennoxGastautSyndrome

Meet Andrea! Andrea had a typical childhood, until the age of seven, when she experienced her first seizure. She was diagnosed with epilepsy after undergoing some testing, and later, was diagnosed with Lennox-Gastaut Syndrome.

#LennoxGastautSyndrome #Epilepsy #RareDisease

#WCWshoutouts to Kennedy Taylor, MPS Hope Brookins Cara Brookins Savanah (Na-Na) Tracy Cox Tracy Cox Dr. Tracy Dixon-Salazar Murphy Daley CTS, PMP + author of 4 books so far Alexis Davis Amanda Blain ● Dr. Amy Price BellaWithLyme Carolina Maria Music Debbie the Texan

Excited to be a part of this!

#ff 🧚🏼‍♀️Savage Pixie PurplePenny💜💜 Epilepsy Q & A Rachel Stewart Torie Robinson 🇺🇦 Ruth ☕ 😊 Rita Zee You Chris Churchill 𝔄𝔰𝔥𝔩𝔢𝔶 𝔏𝔶𝔫𝔫 🌙🌞🍄🌸🔮 Dr. Tracy Dixon-Salazar Squidegy tracey g Sarah D epilepsy warrior Rita Zee You

#FollowFriday Holly_Wagner Christina Johansson lisa Mike Knox Meriem Bensalem-Owen, MD, FAES, FANA, FACNS Tolu Olaniyan @EpilepsyBaller Sail for Epilepsy - Phil Haydon Dr. Tracy Dixon-Salazar David Clifford Samyak Shah 𝒥𝑒𝒶𝓃𝒾𝑒 ✨💋♒️ Chris Churchill 𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 Lorrie Craig Fairclough Bolted_saiyan ⚡️💜 #EpilepsyAwareness

#ff Lady Charlie of Yorkshire 👩🏻🇬🇧🇪🇺🌍🏳️‍🌈 Randy Cotton Epilepsy Ambassador Tracy Lee Carroll 💙💛🌻🇺🇦🌻💙💛 Chris Churchill purplewarrior5.1 Leanne Coleman Deirdre Floyd Pauline Duffy 🇺🇦 Jeknee 🦤🇲🇺🧉🌴 Dr. Tracy Dixon-Salazar 𝙿𝚎𝚙𝚙𝚎𝚛 The Notorious EEG (M. Scott Perry MD) epilepsy facts & opinions (minds of an epileptic) Kay 🇨🇦💜🐈🐶 alisa jones :: gotham girl tracey g Nicola Adamson (She/her) Emma Hall Jemma Powell Holly Farnsworth

We're dedicated to providing a comprehensive LGS Learning & Resource Center! Here, you can learn about things like treatments for seizures, which offers a list of FDA-approved treatments often used in those with LGS.

🔗lgsfoundation.org/treatments-for…