TonyMay Foundation (@tonymayf) 's Twitter Profile
TonyMay Foundation

@tonymayf

TonyMay Foundation (TMF) is an NPO which aims to create awareness about and provide a united platform in the fight against sickle cell disease.

ID: 3299370665

linkhttps://bit.ly/3uVyvea calendar_today26-05-2015 15:01:48

725 Tweet

232 Followers

72 Following

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Every year, the sicklecellngosng organizes the Red Umbrella Walk to advocate for the needs of people with Sickle Cell Disorder. In celebration of #WSC2024, we walked across the streets of Maryland to advocate for #sicklecell Watch the video to know more. youtu.be/0W7k_zK0LF8

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Dear Warriors, Beyond genotype compatibility, it's high time we talk about dating or marrying someone who loves, adores and respects us for who we are. It is the best gift we can give ourselves. #sicklecell #genotypecompatibility #lovecompatibility #love

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Dear Warrior, People's healing process takes time. As you heal from the external crisis pain, you need to heal from the Internal pain. Be patient with your healing process. #sicklecell

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Dear Warrior, Love yourself, Be kind to yourself, Be patient with yourself. Identify 5 things you are grateful for. Seek to develop yourself personally. There will be hard times Be grateful for every little progress you make & most of all, Be grateful to be alive.

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Daily Warrior reminders •Your body is your temple, take good care of it. Love and maintain it to the best of your ability. •Just like a vehicle needs regular maintenance, your body needs regular checks, rest, food and proper hydration. •Your mental health is key.

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

As the engine is to a vehicle, so is the mind to the body. Take care of your mind, keep it happy and positive. •Find a buddy or someone you can share your feelings with or get a journal where you can jot your thoughts down. •Join a support group. #sicklecell

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

A support group is a safe space with people who are going through the same journey as you are. Feel free to attend one, ask questions and share your concerns. They say a problem shared is a problem half-solver

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

You are beautiful. You are strong in your weakness. You are powerful. You are resilient. Even in your pain, you still show up. Do you know how amazing you are? You are a Warrior. #sicklecellwarrior #sicklecell

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Dear Warrior Family, We know you love us and we know you care but you need to be mindful of the words you say to warriors like: "You are too lazy, can you see your mates"? Unsolicited comments and comparison are the leading causes of depression especially in people with SCD.

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

Instead of making unsolicited comments, it is important to ask questions like: How are you feeling today? I observed that you woke up late, what might be the reason? Is there anyway I can help? Remember that SCD presents itself in different ways and in different people.

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

While we advocate for couples to know their genotype and choose compatible partners, it should not be a means to discriminate against people with the AS or SS genotype. #Sicklecellawareness #sicklecell

TonyMay Foundation (@tonymayf) 's Twitter Profile Photo

There are videos circulating round social media that suggest that one should stay away from people with the AS Trait or Sickle Cell Disorder. This should not be the narrative. People can create meaningful relationships or friendships without dating or marriage. #sicklecell