Thank you, Jake Marrazzo! What a beautiful take you have on living the life, not the diagnosis. In honor of rare disease week, we’re honoring the voices of those living with Duchenne. Apple: apple.co/3xWx2so Spotify: spoti.fi/3KfjFWU #rarediseaseweek #raredisease

Today is Rare Disease Day. But, EVERY DAY is rare disease day for over 30 million Americans (300 million globally). That actually doesn't feel so rare. The science matters. The cures matter. The kindness matters. Because every single day is Rare Disease Day.

As we wrap up Rare Disease Week, how about a shout out to all those LIVING with a rare disease? To all of those living in the moment, pushing boundaries, navigating hardships and celebrating possibility, here’s to you! #rarediseaseweek #rarediseaseawareness #teamjoseph

Molly McDonald had us laughing and crying at the same time in this honest, raw, beautiful episode! Enjoy! Spotify: bit.ly/43bxq3V Apple: bit.ly/48IKuPx Google: bit.ly/4a1tuFd #podcast #newepisode #teamjoseph

US LBM is one of the largest building products distributors in the U.S. Their founder, LT Gibson started this amazing company right around the time we started Team Joseph. We’re proud to be on their newest truck alongside these other special organizations. Thank you US LBM!

We’re Evolving! Organizational updates from Team Joseph and Little Hercules, and updates on the Duchenne Family Assistance Program, below 👇

Happy News Alert! A couple of weeks ago, the Hancox family had a big day! Because of the support of our donors and sponsors, this family was able to pick up their new wheelchair accessible van! When we work together, incredible things happen. #TeamJoseph #DMDCommunity #Hope

Ruben stopped walking within six months of being diagnosed with Duchenne muscular dystrophy. This was an emotional crisis as well as a financial one for them. Now that they have a van they can transport Ruben safely and make memories as a family! #Duchenne #TeamJoseph #donors

It’s hard to find the words to describe this guest other than to say that he’s one of the most extraordinary, wise people I’ve ever met. And he’s only 25 years old. Listen here: Apple - bit.ly/49FGL5I Spotify - bit.ly/4aKp6va Google - bit.ly/3U5adfN

Here's a sneak peak into our recent podcast episode with Darrel Nicklow. Tune in below: Apple - bit.ly/49FGL5I Spotify - bit.ly/4aKp6va Google - bit.ly/3U5adfN

After months of planning, we’re thrilled to announce “What Now?”, the first (virtual) conference exclusively for older teens and adults with Duchenne -- planned BY adults with Duchenne! This is FREE and 100% VIRTUAL July 17th & 18th 1-5pm ET each day teamjoseph.org/what-now-confe…

Join Joe for our first (virtual) conference exclusively for older teens and adults with Duchenne—planned BY adults with Duchenne. It’s FREE and all online! Community Members welcome for the last hour! Save your spot here → whova.com/portal/registr…

🚀 The countdown is on!! 🚀 Don't miss out on this unique opportunity to connect, learn, and grow together. Meet Sam, the youngest member of our planning committee, who has packed a LOT of living into his first 18 years. 👉 Save your spot now! teamjoseph.org/what-now-confe…

Join Elijah and the rest of our amazing planning committee for a FREE, all-online conference exclusively for older teens and adults with Duchenne—planned BY adults with Duchenne. All community members can join for the last hour of the conference. 👉 teamjoseph.org/what-now-confe…

We’re excited to introduce you to Julio, a member of our "What Now?" Planning Committee! Join him and the rest of our committee for a FREE, all-online conference exclusively for older teens and adults with Duchenne—planned BY adults with Duchenne. 👉 teamjoseph.org/what-now-confe…

The countdown is on-- 2 weeks remaining to register! team-joseph.webflow.io/what-now-confe… Meet Darrel, one of the inspiring young men behind the scenes. He joined the planning committee because he believes in being part of something bigger than himself and finds joy in helping others.

Meet Dr. Jacob Brewer from the Planning Committee! For Jacob, this is another expression of his passion for learning and teaching. A leader in showing what’s possible in adulthood with Duchenne, Jacob holds 2 Master’s degrees and a PhD in Education. 👉 teamjoseph.org/what-now-confe…

Meet Gui- another member of the What Now? Planning Committee! Gui is a committed member of PPMD’s Adult Advisory Committee (PAAC) and has founded a PAAC chapter in Brazil to support and inspire younger people living with Duchenne. 2 Days left to register: teamjoseph.org/what-now-confe…

🚀 Last but not least, here is another member of the What Now? Planning Committee 🚀 Hawken is a familiar face at CureDuchenne conferences where he serves as an inspiring role model and advocate for those living with Duchenne. See you all tomorrow! 👉 teamjoseph.org/what-now-confe…

Thank you to all of our incredible sponsors who believe in the vision of today’s 'What Now?' Conference. Your generous support made this event possible and is bringing us together to explore and celebrate possibilities in adulthood with Duchenne.