TeamJacobWV (@teamjacobwv) 's Twitter Profile
TeamJacobWV

@teamjacobwv

Jacob Harper, 24, diagnosed with ALS in March, 2022! Fighting for a cure through a clinical trial at Ohio State University! "Genetic FUS-Gene Mutation" (P525L)

ID: 1362841646711386119

linkhttps://TeamJacobWV.org calendar_today19-02-2021 19:09:25

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TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

We are selling these for our @RacingforALS (Wheelin' for ALS) offroad ride in August! This event is our BIGGEST ALS fundraiser of the year! Please purchase your new raffle tickets at TeamJacobWV.org and help us #EndALS!!! #wheelinforals

We are selling these for our @RacingforALS (Wheelin' for ALS) offroad ride in August!
This event is our BIGGEST ALS fundraiser of the year!
Please purchase your new raffle tickets at TeamJacobWV.org and help us #EndALS!!! #wheelinforals
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

OK EVERYONE, We have multiple RAFFLES up right now! TeamJacobWV.org Please click the link to see our items and buy as many as you like! (LET ME KNOW WHICH ITEM(S) YOU ENTER) 100% of our $ will go directly to Marshall Health, The Ohio State University and @RacingforALS !

OK EVERYONE,
We have multiple RAFFLES up right now!
TeamJacobWV.org
Please click the link to see our items and buy as many as you like! (LET ME KNOW WHICH ITEM(S) YOU ENTER)
100% of our $ will go directly to Marshall Health, The Ohio State University and @RacingforALS !
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Former Saints player Steve Gleason was honored with the Arthur Ashe Courage Award at the ESPYs last night, giving an acceptance speech that challenged others to "discover ways to be courageous and love the life we have." youtu.be/Jar-aI1N1kc

Dante Ricci (@dantericciwx) 's Twitter Profile Photo

It was an honor to meet Rob from Urban Shield Gutter Protection at the Lawrence County Fair! A very touching session with an important message! My thoughts and prayers are with TeamJacobWV as he continues his battle with ALS! Here's how you can show your support for Jacob!

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

For all our local ppl: The McDonalds in Winfield WV has approved us for "McWheelin' for ALS" night! NEXT WEDNESDAY 07/24 from 5-8, please come out to support us and help #EndALS ALL PROCEEDS go to Marshall University Neurology Residency Program The Ohio State University Wexner Medical Center and Racing for ALS

For all our local ppl:
The McDonalds in Winfield WV has approved us for 
"McWheelin' for ALS" night! 

NEXT WEDNESDAY 07/24 from 5-8, please come out to support us and help #EndALS 

ALL PROCEEDS go to <a href="/marshalluNeuro/">Marshall University Neurology Residency Program</a> <a href="/OSUWexMed/">The Ohio State University Wexner Medical Center</a> and <a href="/racing_als/">Racing for ALS</a>
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Workout Wednesday! These are the moments we pray for every single day! #EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshua1v9 #ButGod

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Tonight's McDonald's event was a huge success! Donations and McD's sales brought in $2000! 100% of these funds are going into our #wheelinforals fundraiser on August 10th, which supports Marshall Univ ALS Clinic, Ohio State Univ ALS Research Center, and Racing for ALS

Tonight's <a href="/McDonalds/">McDonald's</a> event was a huge success! 
Donations and McD's sales brought in $2000! 
100% of these funds are going into our #wheelinforals fundraiser on August 10th, which supports Marshall Univ ALS Clinic, Ohio State Univ ALS Research Center, and <a href="/racing_als/">Racing for ALS</a>
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Jacob's 2006 Mustang GT... Ford Performance intake manifold, Ford Motor Company Performance 62 mm throttle body, COMP Cams #noCOMParison 🇺🇸 Thumper Cams , JLT 110 mm cold air intake, BBKPerformance long tube headers, and high flow cats! She's a NASTY Ford Mustang youtu.be/1xI-5K_deeM?si…

Jacob's 2006 Mustang GT... <a href="/FordPerformance/">Ford Performance</a>  intake manifold, <a href="/Ford/">Ford Motor Company</a> Performance 62 mm throttle body, <a href="/COMPCams/">COMP Cams #noCOMParison 🇺🇸</a>  Thumper Cams , JLT 110 mm cold air intake, <a href="/bbkperformance/">BBKPerformance</a>  long tube headers, and high flow cats! She's a NASTY <a href="/FordMustang/">Ford Mustang</a> 
youtu.be/1xI-5K_deeM?si…
Girl Travelin Alone (@cathystandish) 's Twitter Profile Photo

Johnny was only 13 years old when #ALS stole his life. Because ALS has no cure, no treatment, never will Johnny go to high school, drive a car, dance at prom, attend college, have a job, a family, kids or a wife. The tragedy of juvenile ALS is shattering. This fight that we

Johnny was only 13 years old when #ALS stole his life.  Because ALS has no cure, no treatment, never will Johnny go to high school, drive a car, dance at prom, attend college, have a job, a family, kids or a wife.  

The tragedy of juvenile ALS is shattering.  This fight that we
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

SPECIAL * ALS * RAFFLE! Chris Stapleton has donated a SIGNED copy of his newest Album "HIGHER" and a SIGNED bottle of his Signature Kentucky Whiskey "TRAVELLER". Please Use PAYPAL or VENMO to buy your TICKETS! (TeamJacobWV) Entries cost: $25 for ONE $50 for THREE $100 for SIX

SPECIAL * ALS *  RAFFLE!
Chris Stapleton has donated a SIGNED copy of his newest Album "HIGHER" and a SIGNED bottle of his Signature Kentucky Whiskey "TRAVELLER".
Please Use PAYPAL or VENMO to buy your TICKETS! (TeamJacobWV)
Entries cost:
$25 for ONE
$50 for THREE
$100 for SIX
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

***RAFFLE*** Chris Stapleton has donated a copy of his new Album "HIGHER" and a bottle of his Signature Whiskey "TRAVELLER" Both Autographed! Use PAYPAL/VENMO to get your TICKETS (TeamJacobWV) **THIS IS A COLLECTIBLE AUTOGRAPHED SET** Tics: $25 for ONE $50 for THREE $100 for SIX

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

This AMAZING collectible set is STILL up for grabs!* *Winner TBA 09/01 These are AUTHENTIC Chris Stapleton signatures! Tickets cost; $25 for one $50 for three $100 for six We accept PayPal and Venmo PAYPAL paypal.me/TeamJacobWV?co… VENMO venmo.com/u/TeamJacobWV

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Our #HERO never stops fighting! #miracleshappen #EndALS #wheelinforals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshua1v9 #ButGod

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

ARE YOU A SUPER FAN? Our FINAL 2024 Fundraiser is almost over. We will select ONE LUCKY WINNER on 09/01 This combo set is the real deal and should make an AWESOME gift for anyone who is a Stapleton fan! PAYPAL paypal.me/TeamJacobWV?co… VENMO venmo.com/u/TeamJacobWV

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

With only a few months until our 3-year onset anniversary, we felt today was a beautiful day to head back to the river and bring you up to speed. #EndALS youtu.be/h6r3Jwx4wLM?si…

TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Ulefnersen, formerly known as ION363, treats patients with Fused in Sarcoma (FUS*) (ALS) *Jacob's diagnosis... (this will forever be #Jacifusen to us (in honor of our beloved Jaci Hermstad ✝️🐮🐴 Jaci Hermstad) Ulefnersen | Ionis Pharmaceuticals, Inc. ionis.com/medicines/ion3…

Ulefnersen, formerly known as ION363, treats patients with  Fused in Sarcoma (FUS*) (ALS) 
*Jacob's diagnosis... (this will forever be #Jacifusen to us (in honor of our beloved <a href="/JaciHerm_22/">Jaci Hermstad ✝️🐮🐴</a> Jaci Hermstad)
Ulefnersen | Ionis Pharmaceuticals, Inc.
ionis.com/medicines/ion3…
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

If you or a loved one suffers from ALS, there are resources out there to help! Team Gleason Compassionate Care ALS Racing for ALS ALS United Ohio (or your neck of the woods). Each of these wonderful organizations have helped us in our journey with ALS!

If you or a loved one suffers from ALS, there are resources out there to help! 
<a href="/TeamGleason/">Team Gleason</a> 
<a href="/ComCareALS/">Compassionate Care ALS</a> 
<a href="/racing_als/">Racing for ALS</a> 
<a href="/ALSunitedOhio/">ALS United Ohio</a> (or your neck of the woods).

Each of these wonderful organizations have helped us in our journey with ALS!
TeamJacobWV (@teamjacobwv) 's Twitter Profile Photo

Thanks to all who helped Jacob achieve a lifelong dream. It's nothing short of a masterpiece. Mom and I are so happy for Jacob. With his #ALS he can't emote, but when he saw the car, he cried and said, "I can't believe it's mine". youtu.be/DV15Wvc_xX0?si…