TeamJacobWV
@teamjacobwv
Jacob Harper, 24, diagnosed with ALS in March, 2022! Fighting for a cure through a clinical trial at Ohio State University! "Genetic FUS-Gene Mutation" (P525L)
ID: 1362841646711386119
https://TeamJacobWV.org 19-02-2021 19:09:25
614 Tweet
931 Takipçi
325 Takip Edilen
It was an honor to meet Rob from Urban Shield Gutter Protection at the Lawrence County Fair! A very touching session with an important message! My thoughts and prayers are with TeamJacobWV as he continues his battle with ALS! Here's how you can show your support for Jacob!
For all our local ppl: The McDonalds in Winfield WV has approved us for "McWheelin' for ALS" night! NEXT WEDNESDAY 07/24 from 5-8, please come out to support us and help #EndALS ALL PROCEEDS go to Marshall University Neurology Residency Program The Ohio State University Wexner Medical Center and Racing for ALS
Tonight's McDonald's event was a huge success! Donations and McD's sales brought in $2000! 100% of these funds are going into our #wheelinforals fundraiser on August 10th, which supports Marshall Univ ALS Clinic, Ohio State Univ ALS Research Center, and Racing for ALS
Jacob's 2006 Mustang GT... Ford Performance intake manifold, Ford Motor Company Performance 62 mm throttle body, COMP Cams #noCOMParison 🇺🇸 Thumper Cams , JLT 110 mm cold air intake, BBKPerformance long tube headers, and high flow cats! She's a NASTY Ford Mustang youtu.be/1xI-5K_deeM?si…
Ulefnersen, formerly known as ION363, treats patients with Fused in Sarcoma (FUS*) (ALS) *Jacob's diagnosis... (this will forever be #Jacifusen to us (in honor of our beloved Jaci Hermstad ✝️🐮🐴 Jaci Hermstad) Ulefnersen | Ionis Pharmaceuticals, Inc. ionis.com/medicines/ion3…
If you or a loved one suffers from ALS, there are resources out there to help! Team Gleason Compassionate Care ALS Racing for ALS ALS United Ohio (or your neck of the woods). Each of these wonderful organizations have helped us in our journey with ALS!