Solve-RD wonderful keynote lecture by Tim Yu on the stunning progress for (ultra-)rare disease treatment as prime example of personalized medicine.

Last week, 125 participants met in Prague 🇨🇿 for the final Solve-RD meeting. Additional 110+ attendees joined online. It was great to see everyone in person again! Thank you all for joining 🫂 Here are some impressions of our very successful meeting ⤵️

June 1st and 2nd are the dates for the Kleefstra Syndrome Scientific Conference 2023: "Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work". idefine-europe.org/conference/ #kleefstrasyndrome #raredisease #rarediseaseresearch

Kleefstra syndrome scientific conference 2023-registration for online attendance still open! linkedin.com/posts/idefine-…

Really looking forward to the conference: linkedin.com/posts/tanjaz_c…

A fabulous day 1/2 of the European #KleefstraSyndrome conference with all things #AI, data & #KS in Ljubljana, Slovenia.

#kleefstrasyndrome #idefineeurope

Learn about AI4Gov's Policies Visualization Services in our latest deliverable: ai4gov-project.eu/2024/01/12/del… #AI #ArtificialIntelligence #AI4Gov #policy #governance #democracy #education #bias

I will demonstrate live some of the tools and functionalities implemented within the AI4Gov during this workshop! Register here if you want to attend 👇👇

In case you missed it, the AI, Big Data and Democracy taskforce #workshop reccordings are now available through the project's website below 👇👇

AI4Gov consortium in Brussels AI4Gov #research #ai #biasfree #biasawareness #technology #policymaking #decisionmaking #Citizens

Studying #RareDisease gives us insight into the fundamental mechanisms of our genes + helps to unravel the mysteries of the cell

"Living Guidelines on the Responsible Use of #Generative #AI in #Research" European Research Executive Agency European Commission A must-read for those in #AIResearch focusing on ethical and responsible AI use.📚🤖 #GenerativeAI #EthicalAI #EuropeanCommission #AIAct #HorizonEU 👉research-and-innovation.ec.europa.eu/document/2b6cf…

❓ How can policy makers adapt to the EU AI Act? 👉Read this introductory blog post from Siemens that identifies key guidelines for policymakers to follow: bit.ly/4a5BWDU #AI #ArtificialIntelligence #AI4Gov #policy #governance #democracy #education #bias #AIAct

Interested in bias identification in the patient reported outcomes in #raredisease? Check our analytics pipeline poster at the 12th European Conference on Rare Diseases and Orphan Products on 15 & 16 May 2024! api.ltb.io/show/ACBNV #ECRD2024 Tanja Zdolsek Draksler AI4Gov

AI4Gov colleagues Alenka Gucek and Tanja Zdolsek Draksler are at the 12th European Conference on Rare Diseases and Orphan Products with an e-poster about bias in rare disease data repositories: api.ltb.io/show/ACBNV #AI #ArtificialIntelligence #bias #rarediseases

Happy to share the first AI4Gov MOOC 👩‍💻👨‍💻✍️💻🖥️📖▶️ - now open for enrollment! AI4Gov #research #biasinAI #bias #AI #tech #digital

Paper on Automatic Classification and Visualization of Text Data on Rare Diseases mdpi.com/2795926 #healthintelligence #rarediseases #research

✨ Over the past 5 yrs, #EJPRD has transformed rare disease research and patient care in Europe. 💪 ERDERA now takes the baton to make a difference for 30 million Europeans living with rare diseases. 🔗 Learn more: loom.ly/4djS9eg

🚨 Call for Nominations: ERDERA Multistakeholder Advisory Group 🚨 Seeking experts in research, healthcare, digital health, policy, and more to join ERDERA's mission to advance rare disease research across Europe! 🔗 Find more info & apply by Oct 31st: [loom.ly/-fvnkKs]